dating over 40

How Nice, She Included A Map

Posted on by akiwifreund

I’m officially clinically depressed.

I don’t know who was the first to diagnose me. It doesn’t really matter. You would be depressed too if you had worked your way through 54 doctors and none of them could tell you what was causing your severe physical issues, a good number of them misdiagnosed you, somewhere around 10 said it was psychosomatic, and around 49 of them told you to go away and don’t come back.

I’ve got anxiety too.

I can’t talk about a lot of the CSF stuff without becoming emotional. I also don’t sleep the night before appointments. Who wouldn’t react the same under these circumstances?

At some point, whether it was my counselor or one of my medical doctors or the actual medical insurance, someone determined that I should get help from a county organization that offers comprehensive help with mental health. Fine. I’m doing meditation, and I’m trying to be social while also trying not to wear my body out, and I’m trying to watch videos of babies and cats and dogs to keep my spirits up, but fine, if this is a resource that I can benefit from, then sign me up. But I told them that I still need a hospital bed so I can try to avoid bedsores, and I still need a neurologist and a neurosurgeon that won’t turn me away and who will listen to me.

So this past Monday the 19th I had my initial intake appointment, and two women from this organization come to my apartment to discuss the program and sign forms with me. I signed a release form for them to talk to my counselor, with whom they are very familiar, and they also went through various questions, one of which was, “Do you have a religious preference or religious beliefs?” I emphatically said, “No, thank you!” They smiled and nodded, and we didn’t go into more detail, but it was clear that I have zero interest in religion.

So imagine my surprise when I pull this anonymous letter out of my mailbox this afternoon:
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At first, I thought one of my friends (or even a frienemy) was having a laugh at me, especially since religion has been a hot topic in light of the stabbings and shooting this last Saturday. I wracked my brain; I thought there was a possibility it was the crazy German woman who was always telling me she was better than me and in addition, she was a good Christian; I fleetingly wondered if it was a relative of the ex or maybe a recent new acquaintance who contacted a friend for my address to send me this information about this can’t-miss fire and brimstone. The envelope wasn’t much help because it didn’t have a name on the return address, but I looked up the numerical portion anyway…

Bingo.

It’s from one of the two people who sat on my couch on Monday morning. They both heard me firmly say “No, thank you,” and both smiled and nodded. When I talked to them about my medical history and both were absolutely dismayed at the number of surgeries I had, my inability to still get a diagnosis, the swiftness with which I am sent away, the sheer number of doctors I have seen, my accuracy in my communication to my doctors and their refusal to “hear” me…let me say that last part again: THEIR REFUSAL TO HEAR ME. They said that they would collaborate with my counselor and also have an RN visit my apartment so that my physical and emotional needs could be addressed, and they would also review my medical records so that they would be worded more accurately for my disability case.

They saw me become emotional when I said that doctors were ignoring me when I told them exactly what was wrong with me and it would prolong my agony and pain, sometimes for years, when they ignored me; I was never wrong. They said again, “Your biggest challenge is that doctors don’t hear you.” Yes!

So why didn’t they HEAR me when I said “No, thank you” to religion?

There is a certain arrogance that comes with religion; if you practice religion, why is it assumed you are better or your life is better than if you don’t? If one person is religious and the other person isn’t and there is some debate about whether or not a ritual like going to church is practiced, why is the assumption that the ritual is the obvious choice and that the religious person should be made happy? Why can’t it be the other way around? Pray on your own time. God is everywhere, right? Why do you have to go to church to put money in the pastor’s wallet?

I got this letter after business hours so I have been left to my own imagination to compose letters, and most of them ended with an emphatic “Fuck you.” Most importantly, this organization is a county organization, and no where does it state that I must follow a certain religion in order to receive services. That was one of the first things I looked for, because if I would have known that that was a requirement to be in the program, I would have told them not to bother before making the appointment.

So now, just three days into the program, I have to file a complaint with the Clinical Director.

If I do compose a letter, it’s going to include the fact that I have traveled around the U.S. and have moved across the U.S. four times, and have used up two passports, and since I’m a 42-year-old woman who has lived a fairly adventurous life, I know what options are available to me as far as belief systems go. “Have you considered science?” I think I’ll end my letter with that.

Here’s Some Words And Some More Words

Posted on by akiwifreund

Well, even though I have tried to stay off of OKCupid, the fresh meat flag is still flying and the messages keep rolling in.

There are a few issues that I see repeating. One is that if I don’t reply within a few hours, the guys will block me. It’s either because they think I’m a robot (which always makes me laugh because robots always post pics that look like porn stars, not me) or that they want an answer NOW and if I don’t answer NOW then they aren’t going to WASTE THEIR TIME ON A BITCH LIKE ME. Another problem is that there’s always the guys who go into copy and paste mode and send the same message to everyone. I honestly don’t know if women respond; I mean, they must at some point, because men keep doing it, but I got this gem today that really didn’t make a whole lot of sense.

First, some background: This guy is a 72% match to me and 31% enemy, and at the end he said under the phrase on his profile “You should message me if”: “You are open minded and want to have fun.. You should also be 100% Active.. Keep it Spontaneous..”

So before I give you his correspondence, just know that the line “you want to have fun” rubs me the wrong way. Duh, dude – we all like to have fun. But that’s incredibly subjective. I happen to think going to an animal shelter and petting all of the cats and dogs that I’m allergic to is fun because it could kill me but I miss being around them, but that might not be everyone’s cup of tea. And the random capitalization of words and incorrect usage of ellipses is making my eyes burn. Now, on with the show.

“The truth will set us free so here goes.. Many people are uptight about race and gender the truth of the matter is they wouldn’t know a real man if he were standing right in front of them, many people are just foolish especially about something they have no knowledge about so before you jump to conclusions I want you to meet a man who has experience and knowledge➡Many relationships fall apart not only because of lack of communication but lack of understanding what true love really is.➡Love is feeling truly happy with another person, blissfully happy, as if time has stopped and you two are the only ones still moving, when you feel truly comfortable with them, when you know that you can spend the rest of your life with that one person, because there is no one you would rather be with… You cannot necessarily define love, but you will know it when you feel it because it will feel so amazing😉 that’s love.. ”

Let’s break this down.
1) Why is he talking about race and gender in relation to what a “real man” is?
2) What is this so-called elusive “experience and knowledge”?
3) If this guy is so certain he has experienced the holy grail of love and knows what it feels like, why is he on a dating website still looking for it?
4) He said there was no way to define love, but that was after he defined love.
5) He’s just talking at me (or anyone he sends this to). Since he’s not actually asking anything and there’s no indication that he’s read my profile, I’m pretty sure that lets me off the hook for replying to him.
6) What’s his fucking point?

Dancing With The Stars 1980

Posted on by akiwifreund

On OKCupid, I got a guy with a screen name similar to the title of this blog hitting me up, talking at me with his job resume, telling me he makes “pretty good money.” That’s his icebreaker. He waited about 8 hours to tell me that we needed to meet up. That’s after I didn’t respond to his initial messages, and I haven’t been on the site at all.

Out of curiosity, I logged on to see what in the world made him so sure he should make this demand of me without even talking to me first. His profile says we’re a 43% match and he’s really good at “giving messages.” Besides that, it’s the usual “ask me and I’ll tell you” laziness in the rest of the profile.

I think I’m going to let this guy keep cha-cha-cha-ing on into the sunset by himself.

Okay, OKAY, Cupid – Sheesh.

Posted on by akiwifreund

I received a message from one of my stalkers whose messages go directly to my spam folder on my phone. I somehow managed to open it in my sleep and it startled me wide awake when I saw it: “I left Minnesota.” Did I believe it? No. Because when I scrolled back further in the spam folder, I saw various messages from him desperately trying numerous tactics to get my attention. “Oh, hey, the sky is blue, so I thought of you.” Yeah, buddy, nice try.

I haven’t logged onto OKCupid since March, so it took me a few tries to get the right username/password combo. I finally got in and found this jackass’s profile, made sure he was still blocked, then tried to figure out if he truly left the state, but everything looked the same. So I really can’t tell. That means I’m going to be looking over my shoulder for a while still. His “I won’t take no for an answer” attitude has gone on for almost a full year now.

While I was on, I decided to block the profile of the most recent ex, since he also has stalking tendencies – he admitted that he was still trying to “get” a friend to love him after five years of friendship and one failed date and that she was “the woman of his dreams.” The birthday gift to me was what he had told me he was going to give to her, which was a box he had picked out from a thrift store and write out qualities he liked about her on index cards he placed inside the box like a treasure chest. On one hand it was touching, but on the other hand it hurt – it made me realize there wasn’t anything special about me as far as he was concerned, but rather I was just fulfilling some romanticized role he had created in a fantasy. It also explained why he referred to me in the third person when we talked to each other. I was an object. I could barely get him to stop using a fake accent he had concocted when we were being intimate and not silly. I can only imagine the lies he is telling everyone about why I chose to end the relationship, but now I have to worry about him showing up at my sister’s workplace across the street, or hovering around my apartment’s entrance door and slipping in and then trying to SHOW ME how even though he tried to conceal a big part of his life from me and lie about the rest of it, he was going to swoop in on his white horse and save me.

I was logged on for all of seven minutes at about 3:32 a.m., and I guess that was enough to ring the fresh meat dinner bell. Immediately I got a few messages, including the usual with no punctuation: “Hi”, “Hi how are you” “Hi” “hi” “hi how you” and then one saying, “Wow! You are gorgeous! Do you want my phone number?”

I can’t handle the bullshit yet. The littlest nope:
LittlestNope

Pay The Toll To The Troll. The Price? Your Soul.

Posted on by akiwifreund

I don’t have any idea how often this happens, or who determines it, but supposedly, Mercury was in retrograde as of Thursday this week. Why don’t frogs just rain down from the skies and we can all just be done with it? No, the psychic attack is much more stealthy, I think. The back of my neck aches. My gums and mouth burns and everything tastes metallic. I fervently wish that Facebook incorporated a disgusted eye roll emoji in their current six options, up from the original singular thumbs-up option. My inner dialog changes: Get out of my way. Stop kicking my goddamn cane. Your perfume smells like cat piss. I’m not waiting 45 minutes this time before calling in to see if they forgot me again, I’m only waiting 30. I am going to scrub my fucking toilet until it fucking sparkles.

Even before Thursday hit I could feel the earth boiling, and my mood was cooking right along with it. I encountered my first troll on Tuesday night. A friend created a private Facebook group so that (mostly) she and the rest of us could say things that couldn’t be said unfiltered in front of a wider Facebook audience. The creator also uses the page to talk about her new grandchild, so obviously it’s not as restrictive as she originally intended. Anyway, a mutual friend was going through a rough patch with her boyfriend and had already talked about it at a coffee shop reunion the week prior, so when she posted in the group, she was just looking for further confirmation that she wasn’t being too harsh in her judgment; after all, when you are the one in the situation, it’s difficult to be objective. This jackass dude pipes in and starts criticizing her and tells her that she’s probably not communicating correctly or enough with the guy she’s in the relationship with – not at all helpful.

Knowing what I know of my friend, and knowing what I know of the guy she’s dating, I don’t hold back on the troll. First I tell him that she DOES and HAS communicated clearly what her boundaries are and that they have been violated repeatedly. Every point the poster or I bring up, the troll says we’re wrong. Then the troll starts talking about how this always happens to him, that he’s always attacked for having a “different viewpoint from most everyone else.” I told him then that it’s because he’s condescending and he has contradicted everything that the original poster and I have said. He said “No, I haven’t. Tell me where I have. I genuinely want to know.” So instead of turning the post into everything about him, I tell him to go back and read. His reaction is to laugh. Obviously there isn’t anything “genuine” about this jackass. The final straw is when the troll claims that we shouldn’t be “defensive, that he is only being inquisitive.” My response was, “You’re not inquisitive, you’re correcting both ___ and I, so that does not constitute a “different” perspective as if it somehow elevates you, it just makes you repulsive.”

But then the owner of the group starts posting paragraphs about how we’re supposed to play nice. Then there’s more posts about how disappointed she is about our behavior and how she wants to shut the group down…but she doesn’t, because other people chime in that despite the fact that I’m a bad apple, the group is a “good idea” and some people claim it’s so great that she should “go global” with it – as if talking behind backs is a new concept. If that’s the case, I’ve got some oceanfront property in Arizona to sell to them. Lots of sand.

Troll #2 happens the next day, when I talk about this conversation. He listens for a few minutes, then bursts in with, “I HATE MEN!” As if I, Chelsea, hate men. I don’t. I do, however, hate men who: Lie, cheat, steal, are alcoholics/addicts, are abusive, are lazy, are filthy, are racist, are bigots, pollute, smoke, chew, are narcissists, and hate animals. I’m sure there’s more to the list, but that covers it for now. By the way, Troll #2 fits into quite a few of these categories. Hey, does someone smell butt hurt?

Troll #3 is on Thursday, the big retrograde day. I am pulled into a discussion about racism and white privilege. The person who tagged me is Native American, and the other person is white (and just happens to be an editor for Bloomberg and fancies himself to be an expert on the world and all experiences, like all white guys). The Native American wanted the privileged white dude to know that every other white person didn’t share his smugness. What it boils down to is that the white guy claims that no matter what, all people suffer, so racism, sexism and bigotry don’t actually exist, and we should just get over it. The examples I gave him – white men kick my cane when I’m in public, but women and just generally people of color don’t kick my cane; or white men shoulder check me – probably doesn’t happen, or if they do, they happen because people are just being shitty to me and it doesn’t have anything to do with privilege. He told me I needed to be friendlier (as in, “You are a woman, so you owe it to me, a privileged white male, to smile at me”), so I told him he needed to stop being a dick.

I’m not sure what the cure is. I don’t know how long this shit storm Mercury started lasts. Mercury is an asshole.

Of Saints and Sinners

Posted on by akiwifreund

I don’t drink, I don’t smoke, I don’t use drugs (not even the widely accepted green stuff); however, if I could snort chocolate, I probably would. In fact, I’ve heard that the latest craze is snorting unsweetened cocoa. Yes, it’s a thing. But what I’m referring to is more like my love of M&M’s – relatively harmless in the grand scheme of things.

Last year when 23 & Me was still mired in legalities regarding providing medical results in their gene testing, I had my genes tested because I knew eventually they would either 1) be able to find a way to package the results about the health stuff in a way where it would be understood that it was not actual advice, or 2) we would have raw data forever but it would be a starting point for me to take back to my doctors. So I got in on the action while the price was reduced. Just two months after that, they were able to legally follow the fore-mentioned #1 and also increase their price, but my info was grandfathered in, so it was a great situation for me personally.

This testing confirmed I had the addiction gene. Specifically, the results indicated that I would gain no benefit from developing a drinking habit. (Really, who does?) But certain people are definitely more vulnerable to addiction than others. I know I have that bug. Every once in a while I feel it tugging at my corners; in my 20s I had built up a tolerance to alcohol and it would take a dozen hard liquor drinks for me to perceive a feeling a drunkenness. What else could I become addicted to? Being pursued by men. Lipstick. Perfumes from Black Phoenix Alchemy Lab. I’ve managed to curb all of these, either cutting them out completely or limiting them severely. I know their price, either in dollars or with the price of my soul.

I’m bringing up addiction because it has claimed my relationship with The Saint Paul. Addiction brings with it deception, half-truths and deliberate omissions. I’m not inclined to list what his addictions are, but I discovered one of the five on our first date. I warned him early on that if I felt it interfere with our relationship in any way, it would not matter if we were 10 weeks or 10 years in, I would not hesitate to say goodbye.

As our relationship progressed, he tried to push the boundaries of my limits with what I would accept. One weekend I chose to ignore it because I was struggling so much with pain and unhelpful doctors that I needed comfort more than I needed to enforce respect. Later, other addictions became apparent. I started actively watching for evasiveness, because I realized that this was his go-to tactic when he felt cornered. I also completely lost trust in his ability to be my partner; his actions did not match his proclamations to support me, because in reality he always waited for me to take the lead and take care of everything.

This past week we did not spend time together. I rested a lot because the week before we were together every day because of non-stop activities, and then I wrapped up the week by spending time with some long-term friends. I had traded texts with him and asked him what he had done with his time and received no answer. I took this to be a deliberate, cowardly omission, a way to avoid telling me what he had been up to because he knew I wouldn’t like it.

I did not pry or send repeated messages. Instead, I went to the stash of brown bags with handles under my sink and began assembling his belongings from my apartment.

Tonight he confirmed my suspicions – he didn’t answer my question because he was doing something this weekend that he knew I wouldn’t like and broke his vow to me. It was just a formality that I asked him if that was the case. I had already mourned the loss of our relationship Saturday when I was met with radio silence. It was actually the sound of the other shoe dropping.

I encouraged him to seek counseling. I told him that I did not want to be “friends.” It would be far too painful for me to be the asshole handing out the advice that won’t be listened to, even if my advice is sought out and makes sense. I can only hope that his fear doesn’t paralyze him and that he pursues a better life by letting go of his demons.

The Princess and the Pee

Posted on by akiwifreund

There were three things rolling around in my “Personal Belongings” plastic drawstring bag – one “hat” that is used to measure output, and two tall brown jugs with screw-on lids and my name on them. It was time to collect my pee.

The jugs were about 4.5 inches wide and 4.5 inches deep but a whopping 12 inches tall, which meant that in order to fit in my half sized refrigerator, a shelf had to come out. I made sure that I set everything up on an empty bladder so I didn’t have to scramble to do it later. I rearranged my fridge and put the jugs on the top shelf so that they would already be cold, ready for the first deposit. I very loosely screwed the caps on. I got the box of green latex gloves out of my medical supplies and sat them next to the toilet; I was not going to be transporting the collected goodies with my bare hands. I put the “hat” under the seat.

Luckily The Saint Paul had a good sense of humor about the whole situation too. He was on cooler duty for me; I sent him a picture of the one I thought would fit the jugs and he picked it up on the way to my apartment after work. However, when we tried to fit the jugs, they were just about 3/4″ too big, so I had to send him back out for a bigger cooler (that I could still carry by myself while also using a cane). I thought I would only have room in my freezer for a 5-pound bag of ice and so that is what he came back with for me.

Bright and early the next morning I started drinking water.

As luck would have it, I had plans to see someone that evening whom I hadn’t seen in at least 13 years who just happened to be in the city because of a work obligation. When you get an opportunity, you do everything you can to take advantage of it! This friend was going to be only blocks from my now deceased dad’s and uncle’s hair salon (still owned by their good friend), so I thought, “Hell, I’m going to get some wigs cut too.” I managed to get a short bus for 3:45 pm to take me to the salon, and to pick me up and take me home at 10 pm, so that meant that I could only pee from 7 am to 3:40 pm, and about 10:30 pm to 6:45 the next morning. It’s a good thing I’m a planner. It’s also a good thing I have the bladder of steel. I told my friend I’d see her at a certain time and that I couldn’t pee while we were out (without offering an explanation).

I did pretty well. I took in about 80 ounces of water between 7 am and 2 pm, and managed to get a bunch of samples before my bus rolled up at 3:45. However, I did hit a few snags. First, the “hat” didn’t sit well under the seat – I almost completely lost the biggest collection and I had to jump up midstream and pull half of the container up from out of the toilet. It wasn’t dunked in the toilet water but I did manage to get both hands wet, and was so grossed out that I had to do a surgeon’s scrub before I could finish peeing, but I had to do it really quickly because I hadn’t been able to wipe my booty so I had to kind of stand bow-legged and squat like a cowgirl who had been riding the trail for days so my legs didn’t also get drenched (thank goodness for the bidet). Second, the “hat” didn’t have a very big pour spout, so when I went to the fridge to transfer my drop to the jug, I had to pour very, very slowly. I had a lot of time to contemplate my urine. I remember thinking, “Man, that smells really fruity. Why does it smell really fruity? I’m not even borderline diabetic.”

Another thought: “There are some FetLife men who would mourn the loss of this tasty liquid.” Another thought: “Replace ‘tasty’ with ‘nasty.'”

I managed to not use the bathroom once between 3:45 pm and 10:30 pm, so no samples were sacrificed in the name of reconnecting with old friends. Everything went into those jugs.

I only ended up filling up one of the jugs with my samples, and my special instructions were to bring the sample packed in a bag of ice packed in a container of ice to the hospital. However, since this cooler was much, much bigger than the one that was only slightly too small, I had to improvise when I realized the ice only reached the bottom 2 inches of the cooler when it spread out. I knew I only had minutes before the cab showed up to transport me to the hospital, so I started grabbing the nearest things – throw pillows from my couch to fill the large spaces. I stuffed those around the pee jug in a bag, then poured the ice in. There was still space not covered in ice. What to do? I had an old bag of nearly petrified cut rhubarb in the freezer that I thought was going to be used for custard bars (seriously, make these rhubarb custard bars), so that was thrown on top. Perfect.

I got to the M Health building at the U of MN hobbling with my cane in my right hand and this cooler big enough to fit a small man on my left (bad) shoulder and slowly made my way to the lab. When I got to the front desk, I notified the clerk that I had a temperature-sensitive sample, so she asked me to follow her to the back area with the phlebotomists so they could accept it and log it. The woman who ultimately took it was flustered and momentarily angry when she saw my throw pillows – she assumed that I had forgotten the ice part. I grabbed the rhubarb off of the top and threw it in the trash and she took the cooler to the back to pass it along to the technicians.

While I was waiting for my cooler to reappear, the clerk and I realized that another cooler that was sitting there was leaking water all over the floor. She opened it and it contained another pee jug. I was surprised to see it laying sideways completely submerged in water – I guess they had complete confidence that the screw top was a tight seal and there would be no transference either in or out? Either way, the clerk and I started working on mopping the floor up with paper towels. Of course, I did another surgeon’s scrub at the sink immediately afterward. If I’m not okay with getting my pee all over my hands, I’m not crazy about Stranger Danger’s either.

There is a distinct possibility that I will have to repeat this test a few more times. If so, I will be more prepared – more ice, less rhubarb!

Happy Anniversary

Posted on by akiwifreund

Exactly one year ago today I got on a plane and moved from Phoenix to St. Paul. According to the dust on my shelves, that’s the last time I dusted as well.

The first six months were difficult. I was going from doctor to doctor, trying to find any that wouldn’t turn me away. I couldn’t drive because I lose about 80% of my vision while I’m upright for a long time, so I spent about $500 a month just on cab fare alone; when I wasn’t going to doctor appointments, I simply stayed in my apartment.

It took me a lot to where I am right now: I have at least a primary care doctor, I have had 3 months of physical therapy for the pinched nerves in my shoulder and hips, I have a disability attorney (but probably no hearing until July or later 2017), and I now use the short bus and a cab company that is contracted through medical assistance to get me to appointments. I also have an incredibly supportive boyfriend.

There are still some black holes of missing pieces. One: I still don’t have a diagnosis. Two: I don’t know what in the hell I’m going to do about my shunt.

June 16-19 was the National Hydrocephalus Association conference, and I never would have been able to attend if it wasn’t right here in my back yard. I had decided that I was not going to be shy. I had also decided that although it was nice to meet other patients and commiserate, I really, really wanted to pick the brains of the researchers and doctors and manufacturers of the shunts.

At the very first speaking presentation, a researcher spoke about the work she has been performing regarding shunt occlusions (blockages). I raised my hand and first asked if the study began when the shunt was still in the patient (so they could figure out if the drainage tip was stuck somewhere, like a drinking straw that’s clogged by a large piece of fruit or an extra thick shake) or if the shunts were studied after they were removed, because I tend to immediately make 20 years worth of scar tissue in 2-3 weeks and clog my shunts very quickly. She indicated that she tests the shunts only after they are sent to her post-surgery, and that she was definitely interested in my shunt(s). I got her business card and told her about imaging that has been developed in Scotland that piggybacks off of current MRI and CT scans but is supposed to be much more accurate, and it just so happens that she is supposed to travel to Scotland in two weeks. In another talk she gave much later in the conference, she mentioned autoimmune diseases, and I’ll be seeing a doctor that specializes in mast cell disorders next week; I’m going to speak to him specifically about my issues with the shunts and about contacting her and speaking with her regarding shunt rejection. Not a bad start for networking!

But with the good comes the not so good. Another talk I attended was facilitated by a neurologist and a neurosurgeon who were experts in normal pressure hydrocephalus. That is one of my placeholder diagnoses and they kept talking about enlarged ventricles on MRI and CT scans. I asked if it was possible to get that diagnosis without the enlarged ventricles, and they said no. I talked to them afterwards and quickly covered my symptoms and demonstrated my unusual ability to move the fluid around in my brain. They actually became very condescending and a little pissy, asking if I had considered the Mayo. I thanked them and left the room.

At another session, there was a representative from the Social Security office talking about the process of filing for disability. He opened the session by saying that he actually never handled disability cases where health was involved – I mean, when it’s a health conference, why send someone who is knowledgeable? I raised my hand during this one too and asked two questions: 1) Is it correct that since my request for a hearing was filed in early February of 2016, it’s pretty backed up and I shouldn’t expect a hearing to be set until July or August of 2017? and 2) I was told that even though I can’t see well, that my arms and hands still work, so I should be able to get a job. What criteria is used to determine whether I should be employed when my records indicate I should be laying down for 20-22 hours a day? He said, 1) It’s not unreasonable that the hearing would take that long to be set (and I answered that maybe it’s not unreasonable to him, but it’s unreasonable to me), and 2) It’s not just my inability to see or be upright that’s considered, but also my education and my age, so yes, no matter how impaired I am, I may be “too young” to be disabled. That absolutely floored me – no wonder I have to fend off assholes telling me that every day, because that’s the idiocy that the social security office perpetuates every single day.

One session was put on by the Metropolitan Center for Independent Living right here in Minnesota and a particularly energetic and passionate woman dedicated to helping people find the best and most resources available. Of course I raised my hand and said something to the effect of, “Dude from the SSA yesterday said that even though I am impaired when I’m upright, I can still use my hands and arms and I’m only 42, so of course I’m going to be denied. Does this seem correct to you, and would you deem needing to lay down flat 20-22 hours a day a ‘reasonable accommodation’ to request of a workplace?” (In other words, can I lay on a hospital gurney while I’m ringing people out as a cashier at Target?) She rolled her eyes and said that she was told a while ago that when dealing with the SSA, never to apply logic, because what they do defies common sense. She also said that one guy was told by the SSA that he should be able to find a livable wage somewhere “folding napkins” because that was all he was capable of. I asked if there was ever any communication between the SSA and her office for them to base their findings off of, and she said absolutely not.
While we were waiting to be picked up by the short bus at the hotel in downtown Minneapolis where the conference was taking place, there were plenty of people partying and women wearing the most ridiculous heels and short skirts because the Twins were playing the Yankees at a home game. One drunk hanging with his two very drunk buddies began to loudly read my shirt, and so rather than roll my eyes and be pissed, I invited him to read the other side of my shirt. His immediate demeanor took on the tone that he was going to make fun of me, but after I gave him a brief history, all he could say was that he was sorry, and he doffed his hat to me.

Through all of this, The Saint Paul weathered some really dry presentations, and probably learned more than he ever wanted to. However, when I met his dad and stepmom for the first time on Sunday night and they began to ask me questions about my health, he answered them exactly as I would have. The Saint Paul really takes all of this to heart in addition to reminding me that we are a team and that I no longer have to do everything on my own. I mean, man, he got me paper towels because he noticed I was running low on his own – he didn’t even have to ask, and I didn’t have to tell him! Forget “don’t sweat the small stuff” because it’s the small stuff that counts!

One of the sessions I wanted him to attend (while I was in listening to a much heavier topic) was about caring for the caregiver. All of the men in my immediate family have had to put their own health and happiness on hold because my mom and sisters have had chronic and severe diseases. The Saint Paul believes he can handle whatever happens to me, but I warned him that things can change suddenly and completely and permanently for either he or I, and even with the best of intentions, it’s absolutely possible that he can be so deeply affected by this unnamed change that he’s going to lose his shit. It’s a lot to ask of one person.

So, back to this anniversary: this is also the day a year ago that my sister and her husband brought home their second rescue dog from Secondhand Hounds and renamed her June. Just recently, June has started to mimic her dog brother and put herself on the floor and position herself for belly rubs, something she never would have been relaxed enough to do a year ago. It’s amazing what thousands of dog treats and a loving family will do.
2016-04-12 21.37.08

Yes, All Women

Posted on by akiwifreund

The thing that gets me is that we women tend to carry these emotional burdens as our own secret parcels until someone else recognizes them. This young woman experiences the rarer form of bodily violation: the stranger rape. Through her letter to her attacker and thanks to the outrage that most of us feel over the stupidly light sentence he received, we have all been made aware of what happened to her that night and at the trial. It was especially difficult for me to read that one of the Swedish men who came upon the attack was so upset that he broke down in tears while giving his statement to the police. It gives me hope that not every man is being raised to be an asshole like the rapist obviously is.

In the bigger picture, nearly every single woman I know has experienced sexual violence. In my late teens, one young woman was raped by my friend; I cut off all communication with him despite his pleas. She chose not to press charges (because who would believe her?). My own first sexual encounter was violent – the guy didn’t believe that I was a virgin because “virgins don’t move like that” and he left me cut and bruised everywhere including my mouth. Over the years, various men have told me what I liked rather than listened to me if I told them they were being too rough or actually scraping or cutting my lady bits, and they would actually press or bite harder. I found out an ex-friend tried to force himself on one of my best friends within the last year and was outright pissed because she threw him out of her house. After all, he has a penis and therefore a right to her body is his line of thinking. How dare she tell him no?

That’s the stuff that’s even more difficult to prove. If that young woman can’t even make a convincing case for why it’s not okay for this asshole to drag her behind a dumpster and violate and mutilate her while she’s unconscious, what can the rest of us do with the men that are in our social circles who violate us?

https://www.buzzfeed.com/katiejmbaker/heres-the-powerful-letter-the-stanford-victim-read-to-her-ra?utm_term=.eaY45kj6yz#.qrwMXWGNbn

The Boyfriend Invasion

Posted on by akiwifreund

The Saint Paul and I have been dating for two and a half months now. Our first date was many hours long, so many that we approximated it to be the equivalent of four dates. We’ve had many dates since then where we’ve had up to fourteen hours together until I’m physically holding my eyelids up with my fingers and he’s stumbling into his shoes to go home. We’ve also fallen into the habit of not going more than three days without seeing each other. But we’ve never had a full-on sleep-over; he’s always gone home.

I live in a historic area of St. Paul, Minnesota, and every year on the first Sunday of June there is a celebration called Grand Old Days that includes music, food vendors, a parade, artists and sports/health vendors. Attendance has been anywhere between 170,000 and 270,000, and attendees can even print a bus pass for certain routes to park and ride to this area for free. It has gotten so large that this year they have expanded the festival to the whole weekend instead of just Sunday. My flat just happens to be right next to one of the sound stages – and I’ve checked the lineup, doesn’t look promising.

Healthy me would have been absolutely thrilled. This is the stuff I used to live for, and it’s right at my front door. But the new me has to come to terms with the fact that I can’t walk a couple of miles or stand for hours to listen to live music or spend money on food and pottery. The thought of trying to navigate throngs of people while my brain is being squeezed and my eyes are drooping gives me extra anxiety. If I’m being completely honest I can whine and say that it’s not fair, but then who in the world can I blame that on?

The Saint Paul has opted to come over Friday night so he can score a parking spot and not have to stress about it after that. We might run out to get a few groceries, which will require us planning out meals for two whole days together, and then he’ll head home Sunday night. He’s going to try to borrow a camp chair for the parade, since I have my own already – we have to stake out a place on the sidewalk along the parade route pretty early in the morning Sunday, because it’s going to get gnarly. We’re fully expecting drunks to be trying to get into my building or to be peeing in our planters or every barfing in every doorway. I’ve heard stories. Non-food businesses are now in the habit of shutting down completely for this festival.

Other things take planning too. I’ve suggested that he bring over his favorite pillow to help him sleep better (because we all know that makes a huge difference when sleeping in unfamiliar territory). Sometimes I wake up coughing because of acid reflux, so I kind of have to be ready to move to my couch (five steps from my bed) if I think I can’t get back to sleep right away. And to hear The Saint Paul tell it, he flops around like a fish when he sleeps, which does not bode well for me, the ultimate light sleeper.

Most importantly, 48 hours together guarantees that there is going to be poo involved. Knowing my GI tract means there’s going to be multiple incidents each day. I have a brand new bottle coming that should be arriving just in time for Friday that is ruby red grapefruit-scented that may prolong my relationship with The Saint Paul. I am telling you, every house should have PooPourri because everyone poops, and no one wants to die by Lysol or any other chemical stuff that you spray in the air that makes it smell like you shit out a pine tree. I cannot say enough good things about this product. Buy it. You spritz it in the toilet bowl before you unload your load, and all is right in the world.

Lastly, most of my lounging and sleeping when I am solo in my flat is done sans hair. My wigs are just not at all comfortable, and wearing them in bed actually wrecks the fibers. So The Saint Paul is going to get a full dose of me au natural, and I have warned him that once I have taken them off in his presence, I will probably lose all motivation to wear them all of the time. I like how I look in them, but they are so damned scratchy and uncomfortable, plus wearing them less will also help me to be able to keep them longer since I have no money coming in. So for your viewing pleasure, here is (a very dirty) Mr. Clean taking your day to a whole different level: