This is a Test

Another chronic illness blogger has been kind enough to let a bunch of us tell our stories on her site, and late last week my most up-to-date info was included. She has indicated that she may discontinue the series if she no longer has parties interested in being part of the project, but there are so many of us out there that I would be surprised if the well ever dried up.

From This Point. Forward.

Today was a really big day in my little alien world. I finally got the upright MRI that I’ve been asking for for 6.5 years. In all of the 56 doctors that I’ve seen, it has only been the most recent neurologist who hasn’t fought me on my request and put the order in.

So I got strapped into a chair and a cage was lowered over my head and screwed into place like I was Hannibal Lector. Like I was ready for some football and to call out some huts! I was sandwiched and squished between two huge, white panels, a bar propped between the panels for my hands and then one lower for feet to rest on to make my very own roller coaster ride more comfortable.

A couple of times the tech buzzed in and said, “I’m picking up movement. Try to keep very still.” I had explained to her that I sometimes have trouble with tremors in my neck when we were going over the questionnaire, but maybe she’s heard that line before and doesn’t think it’s important to remember. I breathe with my diaphragm, so at a break between segments, I moved my arms as far away from my torso as far as the sandwich bread slices would allow me – that way there was less of a chance that my smushed arms would move my head when I breathed.

The tech had given me the option of tilting the chair back at 30-45 degrees, but I explained that it would compromise what we are trying to catch on imaging, so I had to stay completely upright. The MRI takes about 40-45 minutes, and to make sure the pressure in my skull was really high, I exercised my arms for about five minutes both before the cab picked me up, and then again when I changed my clothes. All I have to do is mimic the bicycle motion with my arms like what I do in PT and I nearly go completely blind from the pressure in my skull. This is why I can’t exercise. I would probably give myself seizures.

At the end of it when I was extricated from the face trap/sandwich boards, I got up to walk and ended up stumbling around like a cat coming off of anesthesia. I had to have a lot of assistance to walk back to the room where my cane was waiting for me. I might have said, “No, I don’t need a fucking walker.” This scan had better not let me down.

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Jann Arden Made Me Do It

Sometimes nostalgia makes us remember things incorrectly, or forgive those who did us wrong. Sometimes when we re-watch movies we thought were once great, they fall flat and we figure out we should have just remembered them fondly instead of watching them one last time. I’m talking about “Bed of Roses,” people. Christian Slater was trying to soften up his image a bit after going through a darker phase (“Heathers” and “Pump Up the Volume,” anyone?), and Mary Stuart Masterson was trying to transition into more grown-up roles. Hell, I was trying to transition into more grown-up roles myself when this movie came out.

“Bed of Roses” was released just as I got my first job under the general umbrella of real estate, specifically for me in title work, throwing me into a 20-year career path. It was also the birth of my dating life as I never experienced it before. Men were actually pursuing me. One of them was an assistant to a very successful real estate agent who used my team for closings. I will call said young man Mr. Sweater (to be explained later). Mr. Sweater was a fast talker, demanding but charming, drove a BMW, tall, and good looking in an Izod-Polo-Gap kind of way. He asked me out, and I accepted. We went to see “Bed of Roses” and then went to eat at Albuquerque’s infamous Rainbow Cafe.

At the cafe, Mr. Sweater ordered me a fruit torte just to “watch my mouth” as I ate it. He talked about how he wanted to fall in love with a woman and send her thousands of roses and buy out a city. I talked about Jann Arden’s song “Insensitive” and that I recognized the song in the movie because I already owned the CD, and Mr. Sweater nearly danced on the table, asking if he could borrow it so he could memorize all of the songs like I had.

Apparently it didn’t take much to get in my pants, because we had sex to close out that first date. I don’t remember much about it, that’s how unremarkable it was. No fireworks. No heady thoughts that I had found my soul mate or that he suddenly cared about me. I certainly didn’t expect to have thousands of sterling roses show up on my doorstep. I did leave some CDs with him, though. My music has always been precious, and for any of you who grew up pre-MP3s, you know how difficult it sometimes was to replace stuff once it was gone (for instance, it took YEARS and YEARS to replace an imported EP of Nine Inch Nails “Get Down Make Love” that a friend gave me from England after it disappeared with an asshole ex who felt entitled to it). I expected to get the CDs back because we talked about future dates – they were definitely on loan, not a gift. The CDs included Jann Arden’s.

This is how different we were in our approaches: Mr. Sweater had a very idealized way of thinking about love and how it should look like a Hallmark commercial; I thought he should treat me like I am a living, breathing human being. Whenever I didn’t act in a way that he wanted me to, he would immediately get pissed and chastise me. Mr. Sweater was all about status and money. It was exhausting for me, because I’m the opposite. I mean, sheesh, yes, I LIKE money, but we seem to not be able to spend much time together – it’s more like a distant and divorced relative. Mr. Sweater would always talk about how much one article of clothing would cost, and I would say, “Gosh, that’s an entire month of rent for me.”

We were doomed. We barely had much in common bringing us together in the first place – in fact, that first date was our last, even though we talked on the phone many times after that. But the final straw was him talking about spending $350 on a sweater and then buying a very high-strung cocker spaniel for $800 (both in 1996 dollars, not adjusted to 2016 dollars). Said dog chewed the hell out of said sweater when Mr. Sweater imprisoned the dog in his apartment and barely took him out for a few minutes at a time – the dog was going fucking crazy. I finally laid it out for him and said, “Hey, how about if you stop talking about how fucking expensive everything is? That’s all you ever talk about, and it’s boring. By the way, take care of your dog or he’s going to keep acting out.”

That didn’t go over so well. Mr. Sweater kept talking about how important the price of the sweater was, and that I just didn’t understand because I didn’t own anything that expensive. From there we quickly progressed to “Fuck you” from both sides.

The problem was that he still had some of my music. That included my precious Jann Arden CD. Why didn’t I just go out and get another one? Well, besides music not always being easy to find (especially a Canadian artist in Albuquerque), I was also on a very tight budget – sometimes I only had $10 a week for groceries. (As a side note, my menu for weeks was 1 bag frozen veggies, 1 can cream of whatever soup, 1 bag cooked white rice, 1 can tuna, and I mixed that up for an entire week and a bowl was either my lunch or dinner – nothing else). For a week and a half, I asked him to bring my music back. Finally one night to shut me up he threw everything in a box and put it at my door located at the back, knocked and then ran. My roommate opened the door while I opened my window and yelled out the front, “YOU AND YOUR SWEATER CAN GO FUCK YOURSELVES!”

Yeah, not my best moment. My roommate had no idea the drama that was unfolding under our roof, and she certainly didn’t expect me to yell expletives out the window like we were living in Hell’s Kitchen on a 5th floor walk-up. One date. One lousy lay. Days and days angst over a guy who didn’t have a clue about how to truly invest himself into a loving relationship. I mean, how could he be so…insensitive?

“Bed of Roses” is available now so you can watch it on Netflix like I did this morning. It feels kind of lackluster, and I’m not really sure if it’s because we’ve seen better scripts come out since then, or if it’s because I know what it’s like to be in love and it’s not just about reciting a bunch of lines and hitting your marks and buying out an entire city’s supply of purple sterling roses. In fact, I’m pretty sure it’s not about the grand gestures. It’s about my boyfriend seeing my face and knowing that I either need to sit down, lay down, or be done for the rest of the day – even if it’s 2 pm. It’s about being able to let down your guard and have your inside jokes and sacred space, and celebrate laugh lines and hold each other through vulnerabilities.

The Jann Arden song that was in “Bed of Roses” was actually quite fitting for Mr. Sweater – Jann, seriously, did you know that guy?? I wonder if he ever figured it out or if he is like countless other men who are still stuck on empty.

Grief and Acceptance

Every other week I am in my counselor’s office, and there seems to be something new that brings me to tears, which drives me crazy. I can’t figure out why I am crying so much. I mean yeah, I have experienced loss on a major scale in the last nine months – my sister, my friend, my uncle, moving states, losing my job, losing all of my doctors, losing my option for more surgeries – but I keep thinking that I should be adjusted by now. But reading this post by my fellow blogger reminds me that I keep experiencing loss and that I still have a sense of instability. Since my U of MN doctors insist that I don’t have Lyme, I have to go through the long process of getting set up through the NIH rare diseases unit and make arrangements through Vanderbilt University to be studied there, as they have locations designated throughout the country for patients to be screened. In the meantime, I have to continue with my treatments with my naturopath, even though I have NO IDEA if it’s the right thing to do.

In addition, I’ve been given the option of getting a TAP block in my abdomen with the hope that it will relieve some of the nerve pain that I’m having from being allergic to the drainage catheter from the shunt. The doc is going to numb nerves on both sides of my abdomen leading to my lower belly. The kicker? I have no idea if it’s going to affect my sexual functionality. And I’ve got a brand new boyfriend. And I really like said new boyfriend and I want to jump him every time I see him. And I don’t think it will be fair to lose what little functionality I do have, because who knows how much longer these good years of responsiveness are going to last? It’s asking a lot of a new boyfriend to possibly give up intimacy for an unknown period of time (forever???); I mean, I call him The Saint Paul, but Jesus H…I don’t know, is there something that is a step above sainthood? If I lose my ability to orgasm, that’s gonna take a LOT of mourning. Maybe some booze and mood stabilizers. I’m already stressed out about possibly taking out the shunt permanently because it’s clogged and I’m allergic to all of the shunts, which means that I may be stuck laying down forever and can’t be up for even an hour.

In closing: Send kittens and puppies and rainbows.

+ + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + +

Picnic with Ants

When people think of grief they often think of death, they don’t think about grieving over other significant losses.  Those of us who have had major losses due to chronic illness know all too well that we grieve those losses.

The five stages of normal grief that were first proposed by Elisabeth Kübler-Ross in her 1969 book “On Death and Dying” are: Denial, Bargaining, Depression, Anger, and Acceptance.  Kübler-Ross describes these stages as being progressive, you needed to resolve one stage before moving on to the next.  This is no longer thought to be true.  It is accepted that most people who have loss go through states of grief but it is not linear nor is it finite.

The 

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Don’t Ever Think ‘Equality’ Is A Dirty Word

We need women (and MEN) from all walks of life, from all occupations, from all age groups, to get on the bandwagon with the idea that equality is worth it. Already my nephews, aged 10 and 6, have started reciting the ugly words, “Boys are smarter than girls.” They certainly didn’t learn that from me or their parents. Now our work is even harder with trying to turn that thought process around (if it is even a process – because they are more parrots at that age than scholars).

I want all girls and boys to grow up to appreciate differences while embracing each other for their value as human beings first.

I want women to receive equal pay for equal work.

I want men to stop claiming all space as their own, including women’s bodies.

I want women to be supportive, rather than see each other as competition to be beat.

But in addition to that:

I want people who are labeled “disabled” to be out in the work force (if they are able) and have a social life filled with inclusion, and to be portrayed correctly in advertising, TV and movies.

I want “inspiration porn” to end.

I want the freedom to practice – or NOT practice – any and every religion of my choosing.

I want churches to start paying taxes.

I want people of ALL races to be valued, truly, but I want privilege to be acknowledged and then driven to extinction.

I want our actions to match our words.

I want choices, whether it’s the company I keep, the job that pays the bills, the food I put in my body, the chemicals I keep away from my dwelling and the doctors I see. The more we work towards total inclusion, the better our lives will feel, period.

http://www.huffingtonpost.com/entry/jennifer-lawrence-feminism-equal-pay_us_56d08bfee4b03260bf769e58?

Dude, You’re Stepping On My Personal Space

I wrote this article for Patient Worthy on February 14th; since that day I got daily (sometimes twice daily) texts from this guy saying, “Good morning cutie” or “sweet dreams cutie.” The most recent ones – because he still won’t stop – say “Just got to my hotel” and “How are you?” For the life of me, I can’t figure out why he would bait me with the hotel remark because that one really came out of the blue. I haven’t traded texts with him since February 10th. Was the hotel text his clumsy attempt at a booty call? Or was it not intended for me, and instead should have gone to whomever was playing the part of his dirty little secret?

Dude, just…stop.

Boundary Waters and Dating Boundaries

Where Have All The Good Men Gone?

Yesterday I posted an article on Twitter from The Good Men Project site.

http://goodmenproject.com/featured-content/bots-wedding-feminism-marriage-cost-jrmk/

With the post, I said, “If men are butt hurt by women having careers and their own income, they’re not worth marrying.” Then I included the hashtag #feminism.

I always, always hesitate to include this hashtag. It’s not because I don’t believe in equal rights – I do – but some days I’m just not up to being attacked. There are a multitude of men on Twitter who create mask accounts and watch hashtags like “feminism” because they immediately jump on that thread of conversation to argue with women and tell us we don’t know what we’re talking about, and that we’re stupid, and that we don’t know how to read, and that we are emotional, and that we are fat, and that we just need a good dick to stick it to us.

The first kid that jumped in wasn’t using very strong language. In fact, he was a lot less forceful than the others, but I am thinking this is because of his age; as he gets older and continues to buy into this thought process that men are the “victims” of feminism – rather than understanding that a more equalized and emotionally connected society brings happiness and contentment to most rather than just a select few – he will become more and more angry and disillusioned about his life. When I remarked upon the fact that the ex Dumb and Angry wanted to shoot me because he felt threatened by me earning my own income (that was behind the fight I had to call the cops on), at first the kid said he didn’t know if that was true, but if it was, he wouldn’t continue discussing this topic because I would only be able to see my own experience. I keep saying “kid” because I’m guessing this one can’t be a day over 19. His next argument was that his dad wanted to be the breadwinner and his mom wanted to stay at home, though she ended up having to work. Did I deny those people exist? On the contrary, I absolutely know they do, and told him he can still find them in the 1950’s household fetish group on FetLife. I’m not speaking for them. I’m speaking directly about the men who feel threatened about women earning their own wages.

Another guy jumped in. I’m not sure if his picture was actually of him, but I’m guessing him to be about 27. His first statement was something like, “What if men won’t marry because when they divorce, the ex gets custody?” My reply was, “What if you’re assuming the sole purpose everyone gets married is to procreate and overpopulate the earth?” Then he started MANSPLAINING. He was alternately condescending and insulting. I could tell that he’s been hating on women for a very long time and participating in these “manosphere” groups and picking up their vocabulary. At one point he told me I must be “thick” if I didn’t understand what he was saying. I had restated his argument as “Marriage = children = divorce = custody.” He also pulled up some statistics saying that men work harder and longer than women (not taking into account, of course, that the imaginary children he was so worried about would be taken care of first by his imaginary wife – meaning, if the imaginary children got sick at school, the imaginary wife is traditionally the first one called if she can be reached to pick them up from school, therefore she misses work. We were also missing a chart that allotted time for each spouse for household chores like laundry, cleaning and yard work. Guys, the work doesn’t end when you leave your job). Then he started using the ultimate phrase that is the favorite of all white men from ages 18-60, and that is “strawman.” It didn’t matter what I said, he made sure that became a regular part of the exchange. Then he started calling me pet names (adding to the condescension), so of course, I used them right back. At one point I said something like, “Oh, Bunny, it will be okay. I’m sure some women will worship you – or at least you will tell them they do.”

A third man jumped in. My guess is that he is, again, white and probably around age 47. He said he would never ask “her” because if they got divorced, she would get custody of the kids and he would be ruined financially. He did not use any punctuation. Basically, his argument was the same as the 27-year-old’s: Marriage = children = divorce = custody (with a little child support thrown in). My guess is that he has already procreated with a long-term girlfriend and works at a job that he greatly dislikes; he’s one step away from living in mama’s basement.

A fourth kid (again, maybe 19-22) jumped in and said to me, “You’re a fucking retard.”

A fifth guy cutely said I just needed to get shagged. The 27-year-old agreed, then crowed about how happy he was being a white guy living in Asia (thereby revealing his oh-so-common fetish for Asian women as complacent sexual servants).

So a couple of accounts were reported for being abusive. Keep in mind I didn’t know these guys before they jumped my shit for including the hashtag #feminism. I wasn’t hanging out on the hashtags they use to talk about how stupid women are. They came over to my side to call me an idiot and a retard.

Today a friend sent an article without knowing what had transpired on Twitter. It very well could have been written about these guys. Why it resonates so deeply with me is because it seems to be EVERY man I encounter on OKCupid: not a single one I have interacted with has been interested in a relationship and commitment; rather, they want to fuck as many women as they can, and they are constantly on the lookout for a better choice. It happened most recently with Nashville, and with the guy who is currently separated and probably going to go back to his wife, and with countless others before them. Motherfucking internet.

“The systematic, quantified pursuit of women tends to make men bitter and resentful.”

This statement was written by the author of “The Game” as well as the most recent book, “The Truth: An Uncomfortable Book About Relationships.” He’s a male who has fallen into the trap of fucking around and always looking for the next best thing, never placing any value on the person he is with, and he has fought his way out of that harmful thinking multiple times. There’s a whole subset of vocabulary used in the manosphere. I invite you to read the article below. It’s the most enlightening thing I’ve read in a very long time – mostly because I realize that it’s not my imagination, and that men are actually congregating and deciding to be heartless, nasty, promiscuous, belittling, dissatisfied, condescending, derogatory and abusive. As was pointed out in the article, all of them have missed the conclusion of each book where the writer talks about how all of that behavior is destructive to the man (and women).

As one of the guy’s grandmothers pointed out, “We’re women too.” Women are not anonymous islands; we are just as interconnected as men in our roles in this society. We are mothers, daughters, aunts, granddaughters, friends. Violence carried out on women affects ALL women. It’s not okay to punch your girlfriend and then turn around and kiss your mother.

It’s a long article, but I promise you, it’s absolutely worth the read from beginning to end:

http://nymag.com/thecut/2016/01/jared-rutledge-pickup-artist-c-v-r.html#

As a side note, no one – male or female – joined in this conversation to speak up and say, “Hey, it’s not okay to call her “thick” or a fucking retard or say she just needs some dick.”

Digging for Gold

This morning, when I retrieved my mail while I was waiting for my sister and her husband to arrive, I received a notice from the Social Security Administration regarding my disability appeal. They said:

*You have the ability to stand and walk without assistance. (That’s a blatant lie – I use my cane for everything.)
*You have the ability to use your hands and arms to perform tasks. (Apparently it’s not a requirement for me to see what I’m doing.)
*You are able to get along with other people for short periods of time. (It’s called Minnesota Nice, bitches.)

“We do not have sufficient vocational information to determine whether you can perform any of your past relevant work. However, based on the evidence in the file, we have determined that you can adjust to other work.”

What would be really helpful is if they included a list of employers who had job offers for me and would not require me to be upright at any time. I can’t see well enough to travel to a location outside of my home, and most employers at least want an interview. So their insistence that I work “somewhere” is pretty weak, considering they don’t have an prospects lined up for me. (I don’t want to hear, “That’s how they do it.” I know they’re assholes.)

The next step is for my attorney to file a request for a hearing, which I understand takes 12-15 months to occur. In the meantime I’ll continue to go to doctor visits and try to find someone who can put a name on this disease and tell me what to expect.

This morning I went to the surgeon’s office at the U of MN to have my wound checked. When he put a fair amount of pressure on it, I started yelping, which led him to believe that there is still some pockets of pus hanging out back there.

Rather than going through the process of shooting me up with Lidocaine and slicing down deeper and purging out more junk, the surgeon took the stick end of a swab and used that to dig around in my wound – think of it as a meat tenderizer, he just kinda made hamburger out of my flesh – without any topical numbing whatsoever. I broke out in a sweat and I had tears rolling down my face. I knew I had to lay still but I was also fighting to get away from him and just make the PAIN STOP.

He said he was stepping out for a few minutes to allow the bleeding to die down; about 10 minutes and a good, sobbing cry later, his nurse came in to re-dress the wound. I’m glad I had that time to myself.

 

 

That Girl Is Poison

Recognize this phrase? I have a station set up on my Pandora titled “New Edition,” and since some of the members of the singing group New Edition split off and formed Bel Biv Devoe, the song “Poison” comes up on my play list. Bel Biv Devoe sang about the dangers of getting tangled up with a woman who was bad news; however, it’s not just romantic relationships that suffer when someone is nasty or devious – friends can be poisonous too.

I am eternally grateful to the friends I have made over the years who tolerate my weirdness and bluntness. Without a doubt, I am humbled by the friends who have mopped and sanitized my house when I have returned from the hospital. I am indebted to the people who have shuttled me around to doctor appointments and grocery store runs, and who have replenished my stock of food and supplies. I have tried to be a good friend in return when I have been able to, which admittedly has been very infrequent for the past 5.5 years because I can’t seem to stay well enough to be out of bed for any length of time.

Unfortunately, because I have the reputation of being a good listener and the voice of reason, my bedridden status has trapped me into being something of a therapist for some. One friend helped me get to a doctor’s appointment about five years ago. This woman and I had become friends back in 2006 when I was working a couple of jobs to pay for my second trip to Europe. That one ride of eight miles nearly cost me my sanity.

Because she found out that I was stuck in bed when I called her to help me get to the appointment, I believe she saw it as an opportunity to unload all that was bothering her – after all, I didn’t have anything better to do, right? This friend was going through a nasty divorce. She would call me at all hours nearly every day, crying and asking me what she should do in certain situations. She would never actually take my advice.

Our interactions became more strained. I finally resorted to telling her, “I don’t know what you should do” every time she called with a new crisis. She switched to texting me instead of calling me. I’m not sure if she thought my answer would somehow be different. Just for the record, it wasn’t.

This woman had a good heart, and I did get a ride from her when I needed it most. I just did not think that I was forever obligated to take on the stress of her failing marriage. For that reason, I cut her off completely. Subtlety wasn’t working, and telling her I was exhausted and stressed from fighting to be heard in doctor visits had absolutely no effect. I feel a twinge of sadness when her birthday shows up on my calendar, but I know that if I pick up the phone and wish her a happy birthday, the cycle starts again.

Another woman I became friends with was introduced by a mutual friend. We became acquainted after we spent a holiday together; I brought a movie that she had watched many times in her native country as a young girl, and she translated the film for us as it did not have any subtitles. I’m going to christen her Ms. Lederhosen.

I met Ms. Lederhosen as she was going through a nasty divorce with her second husband. I had suggested we get together for movies or nights out because it seemed like she needed to do things that would distract her from all of the emotionally draining stuff she was going through. Unfortunately, it was all she would talk about. I’m not exaggerating when I say that. I could say something like, “This tomato soup is good.” Ms. Lederhosen would reply by saying, “Oh, R. (her ex) likes soup too. You know, when we were married, he used to make me take care of his daughters, but they were lazy and did not like me. I would tell them to do something and they would go to their dad and he would tell them they didn’t need to do it.” It’s how every conversation would go. Everything tied back to her ex, no matter what I said, no matter what I tried to talk about.

I remember one time we made plans to see a movie. When we picked our seats out and got settled with our beverages and snacks, she started talking about the ex. The lights dimmed and the movie started; Ms. Lederhosen was not letting that stop her. Other patrons in the theater started saying “Shhhh!” loudly, turning towards us. She wouldn’t shut her trap. I told her that we should wait to chat until the movie was done. She kept talking in a loud voice because she had to finish that story. Well, she finally did…and then throughout the movie, she ran a commentary on what was happening on the screen. At that point I made a mental note to never see another movie in the theater with Ms. Lederhosen.

The ex was dragging out the divorce, filing extensions and demanding spousal support. Ms. Lederhosen was constantly calling and texting to rehash what he had done. At one point she asked me to proofread letters and documents for her because they were going to be used in her case. I would always set aside what I was working on and comb through her submissions because I knew how picky judges could be.

Ms. Lederhosen finally decided to pursue her U.S. citizenship. She didn’t have many friends, so she asked me to prepare a letter of good character for her attorney. Again, I set everything aside and whipped together a professional piece to convince the Court that she was a productive member of society.

She didn’t care for her job or boss, so Ms. Lederhosen sent me her resume so I could send it out to my contacts and enter it in my employer’s database. She wanted to respond directly to her ex’s demands through family court but didn’t want to pay her attorney to do it, so I arranged for a friend who was a paralegal in family law to assist her.

Ms. Lederhosen met a man through a woman who facilitated a social group for foreign-language speakers. I had hoped that meeting someone new would calm her down regarding the ex and encourage her to discuss other items of interest, but no. She even told me that her new man was complaining that she was too focused on the ex.

I was able to meet the new boyfriend when Ms. Lederhosen brought him and her little sister over to my house to visit; it was her sister’s first time in the U.S., so I made an effort to speak slowly – her English was good, but there is always a huge adjustment period when anyone is suddenly immersed in a country where the language is not their native tongue. Often Ms. Lederhosen would interrupt to talk about her ex. At one point, her current boyfriend grabbed her face, squeezed her cheeks and said “Stop talking.” She didn’t, of course. Her sister got completely put off and eventually just fell asleep on my couch while the boor hijacked the conversation.

A few months later, I had reached the point of blinding pain with my shunt – I had developed an uncontrollable leak. Ms. Lederhosen had indicated that she was at her boyfriend’s house but that if I needed a ride to the ER, she was more than willing. I took her up on the offer. They didn’t end up keeping me to bring me into surgery as I had hoped, because at that point they wanted to figure out which parts of the shunt I was allergic to, which would take months. They sent me home with big bad painkillers instead.

Facebook can make or break friendships, and in our case, it broke ours. Actually, for me it was the last straw. I had posted a story about a product that was being given to girls in sub-Saharan Africa to allow them to continue safely attending school during the bleeding days of their menstrual cycles. This charity was distributing silicone cups that could be used to collect the fluid for up to 12 hours and then be emptied and washed in private. Well, Ms. Lederhosen did not like that at all.

She hijacked the post by first saying that she would never want to use a product like that and that she was perfectly happy with her birth control pills. I explained that birth control pills were not an option in this region, and that it was a much safer alternative for the girls instead of their normal methods, which included stuffing their bodies with dirty rags, newspapers or mud. Ms. Lederhosen said she asked her boyfriend’s mom, and she agreed that she wouldn’t use a product like that either, and they were stupid for not using birth control pills. I explained that in this region, pills were not readily available or transported easily, and not everyone could or should be on hormones, and that the girls just really wanted to attend school and the cups were a viable option. Then Ms. Lederhosen posted a huge paragraph about how American women are stupid, fat and lazy, and she was able to lose weight by eating organic foods and exercising (which had nothing to do with what was being discussed).

I blocked her on Facebook. It’s no wonder she has few friends! Unfortunately, my phone at the time was not able to block calls or texts, so for two days she sent me all kinds of nasty messages about how she was prettier, smarter, more successful and thinner than me. Ms. Lederhosen told me how I was jealous of her relationship with her boyfriend, and how my college degree was the equivalent of elementary school in her home country. I sent back one message saying I was not interested in competing with her, and her messages just got nastier. She told me how she was a much better friend than me because she drove me to the ER that one time; of course, she conveniently forgot about all of the ways that I tried to help her when she needed it. Finally she stopped and went radio silent.

Two months later I got a card without a return address. I opened it to discover it was a note from Ms. Lederhosen, telling me she missed me as a friend and that we should be friends again. I didn’t have a return address for her and so couldn’t send anything back, and her info had been deleted from my phone long before that. A week later I got a text message from her saying that she didn’t hate me anymore and that we should be friends. I again told her that I did not want to compete with her, and that she said horrible things that made it difficult for me to want to be friends with her. Well, that just set her off again – 16 messages of vile, nasty words.

Around Thanksgiving of 2015, I received another text from her. Ms. Lederhosen said that she missed me and that I probably still had some bad feelings, but she was there for me if I needed her. The response that I didn’t send but really wanted to? No fucking way.