I Know You Don’t Mean It

After I told the Go Stand In The Corner guy that I didn’t want to be his fantasy chat friend on Fet, he still tried to draw me in with more messages. So in the vein of Lin-Manuel, no means no means no means no means no…….well, anyway.

[Break for making arrangements to get the compounded medication to control my hives. I have to try one week of pills to see if I’m going to be allergic to the vegetable-based capsule they use for the powder. Total for 14 pills: $38. Not covered by Medicaid.]

Then I get another gem in my FetLife inbox, completely out of the blue, from a guy I’ve never had any contact with before in a town that is about an hour and a half south of Minneapolis:

Hey there beautiful. I just thought I would send you a text and tell you that you’re one great looking woman. In my eyes bald women are beautiful as I am bald myself. I know you say that you have health problems right now but I still wish that we could talk and hopefully meet as I will come to you as long as you let me. You seem like the type of woman that knows what she wants and I’m the type of guy that also knows what I want and that is you. I’m a gentleman that works too much but also enjoys beautiful women As You Are. I’m serious about meeting you as I would like to meet you now today tomorrow Sunday soon as possible as I don’t want no one else to steal you away from me. Give me a shout out if you’re interested in talking and we can go from there.

So, this is what my profile says:

I relocated from Phoenix back to my home state to be closer to family so they can take care of me during a serious health crisis. Feel free to message me but be aware that I cannot do any socializing of any variety right now. Respect my boundaries.

Now, is there anything in there that says, “Except you, guy. You know absolutely nothing about me including whether I even drink coffee but you know you’re going to make me happy for the rest of my life because you want to do dirty things to my bald head.”????

Sleeping Single In A Single Bed

On Monday I finally had my bed delivered. It is an honest-to-goodness hospital bed complete with handrails and a hand control to raise and lower the head and foot areas. I actually got it because I’m in bed so much that I am wearing through my traditional mattresses in a matter of months and I’ve gotten a few bedsores. I was afraid that it was going to be super noisy – both the motor and the mattress itself – but the motor is completely silent and the mattress doesn’t crinkle at all (and maybe it helps that I folded up my foam topper from my queen mattress to add to the cushion of this one).

So of course my friends already suggested that things could get kinky with the handrails and the adjustable bed. Like I didn’t already think that. This shit was made for tying.

I had a few _______ exchanges on OKCupid (you can fill in your own adjectives). The first was from the guy from this post where we didn’t get very far before it got weird.

Him: Long time no hear.
Me: When we were trading messages, you said, “I just need to what hours are better for you.” (I presume you meant to say “I just need to know what hours are better for you.”) I told you that I don’t have a set schedule and that I wouldn’t be logging on the next day. You replied and said, “I’ll have some free time tomorrow, Chelsea.” I repeated myself and said that I wouldn’t be signing in and indicated why so that you would understand I was not simply ignoring you. Then you admonished me for telling you that I wouldn’t be logging in, saying, “You don’t have to alert me when you’re signing on.”

From this short exchange, my takeaway is that you are looking for someone to correct so that you feel intellectually superior. It doesn’t sound appealing to me, but maybe it’s your kink. Be happy, or be right, but you can’t be both.

Him: It was really so people know that I’m not a small-minded misogynist who is afraid of an intelligent woman. Sorry if you felt admonished. I should have been paying closer attention while messaging you.

Me: I wish you luck in finding someone who can capture your attention.

(At this point I blocked him.)

Then I got a message from a screen name that didn’t ring a bell. I saw the email first, and the message said, “Will you ever forgive me?” I logged on to see if I could figure it out. There were two messages. “Will you ever forgive me?” and “I hope I hear back from you…”

I looked at the profile picture. I recognized it as a picture a guy used for a profile and I met him a year ago, but the picture was nothing at all what he looked like. I actually did a reverse image lookup of him before we met but I couldn’t find the picture anywhere else so I still don’t know where he got it from, but it absolutely, positively is not him. He also has a home in France and before we were able to meet up for our date I asked him to take a few pictures from his rooftop, which he did. I did a reverse lookup and didn’t get any “hits,” so again, I had to take him for his word. But after our first date and his very enthusiastic insistence that he wanted to see me again the next day, he completely disappeared. You know, for the next YEAR. And then he comes back with this. No explanation, no apology. So this is how I replied:

Oh, do you mean about using a picture that is not a true representation of you, and then disappearing completely? Nope. You are free, petit cochon. (Note: “petit cochon” is French for “little pig.”)

I didn’t realize it but there has been a message in my inbox for four days now, but OKCupid didn’t send me a notification. It says:

I’m JOHN LOPES im here to date a woman that will make me happy till the end of life you can kindly reach me on my facebook i’d JOHN FILLIP LOPEZ……..or you can add me on my email adress johnfilliplopez23@gmail.com ……….you can also text me on my number …. 3155064755

And then immediately below it is a warning from OKCupid:
Never transfer funds to someone you met on the Internet and keep your conversations safely on OkCupid.

So kids, when you see this message, just know whomever is running this profile is from a foreign country and is running a scam. They like to post photos as military personnel (like this one did) and then quickly shift to a story about how their “work laptop” stopped working and they are in tears because they can’t work and they need money and can’t you send money? They are crying their eyes out, honey baby sweetie. Oh, and I like how this dude can’t decide how to spell his last name – Lopes or Lopez.

There’s a lot of weirdness rolling around right now. I don’t feel like I’m missing out on anything at the moment, so I’m perfectly fine flying solo with my new little ugly bed.

 

The One That Got Away & Other Lies

There is a guy on Twitter that I started following who is a life coach and motivational speaker, but is definitely not a Joel Osteen/Tony Robbins type, though closer to Tony than Joel – he reminds me of the fast-talking Italian types that I think all of us have seen a time or two whenever guys in suits are interviewed about whatever happens on Wall Street. And they’re Italian. And they’re loud. And they say “fuck” a lot. And they have a lot of big, white teeth and they talk fast and they say “fuck” again, just for emphasis.

What Brenden says in 140 characters on a regular basis at least once a day is what I have said at least once myself, or maybe have taken a few more words to have said it, but the sentiment was there. One downside to Brenden is that he is a staunch supporter of Trump, so I have to sometimes decide if I have to walk away from what he’s saying for an entire day because he’s humping Trump. I wish he would leave the elections out of his life coaching, but it’s his choice, so I have to deal with it.

To be clear, I’m not following Brenden because I feel I need life coaching. I think I have a pretty good handle on who I am, and I think Brenden has a pretty good handle on who he is. For a good portion of my life people have come to me for my help and advice. I feel like Brenden should be my backup bitch. I haven’t got the energy for it. Actually, I need to reword that: I don’t have the fucking energy for it. I’m at doctor appointments nearly every day and worrying about where I’m going to live when my money runs out.

Anyway, one of his posts today was this: “You can’t move forward in life until you’ve got a proper context for the past and are completely at peace with it.”

I think proper context is something that a lot of people miss out on, especially if they are finding themselves stuck in the same patterns.

Because I’ve been on OKCupid a few times in that past couple of weeks, I’ve seen old messages that were not previously deleted – even from a few years ago! Some exchanges cracked me up, some made me roll my eyes, some guys made me think of course you’re still on here, you’re just looking for someone to bang, not a relationship like you claim in your profile.

Of course, the messages between the most recent ex and I were in there too. He told me in the course of our exchange that he had taken expensive dance lessons to impress a woman who had no romantic interest in him and never would. I found out this happened sometime between age 38 and 44 for him, and he turned 45 when we dated. He was supposedly madly in love with this woman for five years while she said she only wanted friendship from him (and maybe once in a while emergency assistance like errands or bail-outs).

He told me, “She’s the closest thing to the one that got away, I guess.” This is not proper context. If one is going to use this Nicholas-Sparks-antiquated term, it refers to both parties loving each other and feeling as if they could, indeed, be in a long term or forever relationship, but distance or circumstances (like one of them is taking care of an ailing parent for 20 years and it’s the 1940’s and unmarried people don’t live under the same roof) keeps the couple from getting together. This woman could not imagine dating him. He was really, really trying hard to make her change her mind. For five years.

She does not owe the Ex-Saint because he really, really wanted her to change her mind. She is not, nor will she ever be, the one who got away.

Same goes for me. I am not one that “got away” – but I did call bullshit.

It’s weird and creepy how much of a departure from reality his imagination took him, but here’s a glimpse: He would tell everyone he managed a “call center.” Now, I’ve worked in call centers for 15 years. Hell, the campus I worked at in Arizona had 4500 people. His area has 3 people including him. He’s never worked in a call center in his life because this has been his only job in his entire adulthood besides the pizza place in college (which also wasn’t a call center, incidentally). My apartment has a cell phone and a VoIP phone. Do I live in a call center? No. But if he were describing it and it was his apartment, then yes, it would be a call center.

The Ex-Saint would get many calls that he wouldn’t answer while we were spending time together. I suspected that they were bill collectors, but he never admitted it.

The Ex-Saint had a gambling problem and would drop large bills on pull tabs. I only knew about it because the few times that we were at bars, he couldn’t pass by the pull tabs without spending a minimum of $50-100 in 5 minutes.

The Ex-Saint is a binge drinker. Every weekend, and even a few days a week, he gets stupid drunk. I estimate that he drinks somewhere around 50-70 12 oz. beers a month (but that might even be conservative). He’s also obsessed with putting jalapenos on all of his food, which has been identified as being an indicator that someone is an alcoholic – they seek out the spiciest food because they have fucked up their entire taste system.

The Ex-Saint is a binge eater. He slurps all of his food from his fork in a frenzied fashion as if it’s the first and last time he will ever eat, chews frantically with his mouth open and his eyes glaze over. He also eats 2-3 full plates at a time. This one is particularly hard for me because I have certain triggers myself, having struggled all my life with food addictions and seeking comfort emotionally through food. (Side thought: Where’s the damn gene that makes us addicted to vegetables??? WTF?)

The Ex-Saint is a hoarder. I was never allowed to see his apartment because apparently it was packed with junk and boxes.

The Ex-Saint is a compulsive liar. From the job description to the denial about drinking and gambling and just about anything else you can think of (too much to list here), lying is so much a part of his life because addiction is. I remember one time he tried to accuse me of lying about playing the violin, clarinet and piano; I told him that he had walked past my violin a few hundred times in my closet without realizing it, but it was there on the top shelf right in the open if he looked. No lie there. I’m musically inclined.

Proper context would happen if he actually got professional help to work through his issues. Unfortunately, he’s back on OKCupid (so now I can properly block him) – but that means he’s going to be telling his lies to a whole new audience. I’m sure his family feels sorry for him and has told him to get out there and try again. But if he’s lying to them, or worse, they are enabling him to continue to hoard and binge drink and gamble and wrack up debt, they’re not doing him a lick of good.

If he’s ready for some honesty, I’ve got Brenden’s info. Brenden will help him kick some fucking ass with truth and live an authentic life.

(Just don’t vote Trump or we will all die by February 2017.)

Can’t Find What You’re Looking For? Try The Thesaurus!

This was cute. Normally I’m not a fan of the Copy-and-Paste-Monster, because clearly the man is sending out hundreds of messages and just waiting to see who responds, but this guy either didn’t ask a friend for a second opinion before he started sending his out en masse or he had great confidence in his writing skills. Whatever the reason, enjoy:

Hello hope this finds you well!
I wanted to take a moment of your time and introduce myself, my name is J++++++n.
I have read your profile and really liked what you said concise and interesting.
Anyways you seem like a very interesting person to me and I would enjoy getting to know you better. Check my profile and hopefully there’s something that will interest you and if so, and you are interestead feel free to write me back.
Have a great day.

(Just as a reminder, this is what my profile says:
*******I’M ALLERGIC TO:********

– Hookups, FWB, DTF
– Threesomes, foursomes or moresomes
– All animals furred or feathered (even “hypoallergenic” animals), though I love them
– Misogynistic behavior
– Lame excuses
– Cheaters, liars, thieves
– Poor dental hygiene
– Conspiracy theorists
– Stalkers
– Contemporary country music, rap, hip hop
– Republicans
– Being called “cutie”
– Organized religion or prayer

What I’m doing with my life: Writing articles regarding rare and chronic diseases, trying to find the joy in life with new restrictions. Seriously – there is no way “arrow root pudding” is a real dessert!

I spend a lot of time thinking about: the fact that no one wanted to share a deep, dark secret, so OKC took that question away.

You should contact me if:
– You practice kindness and wit.
– You strive to live an authentic life.
– You are not addicted to beverages or chemicals.
– You are a non-smoker (of all things) and don’t use chew/snuff (ever).
– We live in the same country; my preference is to connect with someone in the same metro area because I dislike long distance relationships.
– You understand that no means no.
– You know and use proper grammar, spelling and punctuation.
– You would like me to proofread your profile for grammar, spelling and punctuation errors.
_____________________________________________________________

You would think that with just the basics, there would be at least a few things to chat about, even if it’s “Why can’t I snort coke off your tits?” – if you remember, that’s a gem from a previous OKCupid guy. Anyway, I would be interested to know why the guy doesn’t know any other term to use besides interested because there’s a whole world of knowledge out there on Thesaurus.com.)

********Fun fact:  In the time it took to sign on and copy my profile to this post, 23 guys looked at my OKCupid profile! Dangit, there’s going to be more material soon, I can just feel it. Breaking hearts and taking screen names……

‘Scuse Me, Are You The Lady With Some Honesty?

A week ago I received a message from a guy on OKCupid who seemed pretty sane. What I mean by this is that he typed complete sentences that included all of the proper punctuation, he didn’t call me “sweetie,” “honey,” “dear,” or “beautiful,” and he didn’t simply say “Hi.” He did tell me right off the bat that I had a lot of negatives in my profile (as in, “Don’t send me dick pics”) so it was hard for him to get a true sense of my personality.

I wrote him back and thanked him for contacting me. I told him that I wrote my profile in that manner because in the past, it never mattered what I wrote – every guy who contacted me wanted to get right down to showing me his penis, so I had to immediately make my personal boundaries known.

I also told him that I wasn’t really in top form for dating for the time being; my time and attitude are both being consumed by medical stuff and I am not the best company right now. His response was, “Hey, I understand on both fronts – it’s gotta be pretty frustrating to be a woman on this site and fighting off all the trash, and if you have stuff going on that is too much to deal with, I won’t take it personally if I don’t hear from you again.”

I wrote back and said, “Hey, thanks for understanding! I don’t want to be one of your “stories” because of the stuff I have going on, so I think it’s best if I take a time out right now.” So…crickets. He’s being a gentleman and taking no to mean no at face value, which I appreciate to no end. It’s times like these when I really, really feel cheated about the body I currently dwell in.

From another guy an hour ago: “Hello! I love the profile. Very Intelligent way to let people know you are a no-nonsense, straight forward woman, who know what she wants. And I like that.” However, he’s a holy-rollin’ Christian and I’m not at all attracted to him physically, so I’m going to have to thank him and turn him down gently. I’m going to stay on hiatus for now.

And I just saw someone from the town where my mom’s business is located. There’s only 1,000 people in that town on a good day, about 80 miles from here, and I can’t figure out if I know him…I’m afraid to click on his profile. I guarantee you he’s a Trump humper and we’d have nothing in common anyway, but it creeps me out that I’m back to being in the same state as the place that I ran away from two decades ago and I’m going to keep running into people I know exactly in the same manner.

Here’s Some Words And Some More Words

Well, even though I have tried to stay off of OKCupid, the fresh meat flag is still flying and the messages keep rolling in.

There are a few issues that I see repeating. One is that if I don’t reply within a few hours, the guys will block me. It’s either because they think I’m a robot (which always makes me laugh because robots always post pics that look like porn stars, not me) or that they want an answer NOW and if I don’t answer NOW then they aren’t going to WASTE THEIR TIME ON A BITCH LIKE ME. Another problem is that there’s always the guys who go into copy and paste mode and send the same message to everyone. I honestly don’t know if women respond; I mean, they must at some point, because men keep doing it, but I got this gem today that really didn’t make a whole lot of sense.

First, some background: This guy is a 72% match to me and 31% enemy, and at the end he said under the phrase on his profile “You should message me if”: “You are open minded and want to have fun.. You should also be 100% Active.. Keep it Spontaneous..”

So before I give you his correspondence, just know that the line “you want to have fun” rubs me the wrong way. Duh, dude – we all like to have fun. But that’s incredibly subjective. I happen to think going to an animal shelter and petting all of the cats and dogs that I’m allergic to is fun because it could kill me but I miss being around them, but that might not be everyone’s cup of tea. And the random capitalization of words and incorrect usage of ellipses is making my eyes burn. Now, on with the show.

“The truth will set us free so here goes.. Many people are uptight about race and gender the truth of the matter is they wouldn’t know a real man if he were standing right in front of them, many people are just foolish especially about something they have no knowledge about so before you jump to conclusions I want you to meet a man who has experience and knowledge➡Many relationships fall apart not only because of lack of communication but lack of understanding what true love really is.➡Love is feeling truly happy with another person, blissfully happy, as if time has stopped and you two are the only ones still moving, when you feel truly comfortable with them, when you know that you can spend the rest of your life with that one person, because there is no one you would rather be with… You cannot necessarily define love, but you will know it when you feel it because it will feel so amazing😉 that’s love.. ”

Let’s break this down.
1) Why is he talking about race and gender in relation to what a “real man” is?
2) What is this so-called elusive “experience and knowledge”?
3) If this guy is so certain he has experienced the holy grail of love and knows what it feels like, why is he on a dating website still looking for it?
4) He said there was no way to define love, but that was after he defined love.
5) He’s just talking at me (or anyone he sends this to). Since he’s not actually asking anything and there’s no indication that he’s read my profile, I’m pretty sure that lets me off the hook for replying to him.
6) What’s his fucking point?

Okay, OKAY, Cupid – Sheesh.

I received a message from one of my stalkers whose messages go directly to my spam folder on my phone. I somehow managed to open it in my sleep and it startled me wide awake when I saw it: “I left Minnesota.” Did I believe it? No. Because when I scrolled back further in the spam folder, I saw various messages from him desperately trying numerous tactics to get my attention. “Oh, hey, the sky is blue, so I thought of you.” Yeah, buddy, nice try.

I haven’t logged onto OKCupid since March, so it took me a few tries to get the right username/password combo. I finally got in and found this jackass’s profile, made sure he was still blocked, then tried to figure out if he truly left the state, but everything looked the same. So I really can’t tell. That means I’m going to be looking over my shoulder for a while still. His “I won’t take no for an answer” attitude has gone on for almost a full year now.

While I was on, I decided to block the profile of the most recent ex, since he also has stalking tendencies – he admitted that he was still trying to “get” a friend to love him after five years of friendship and one failed date and that she was “the woman of his dreams.” The birthday gift to me was what he had told me he was going to give to her, which was a box he had picked out from a thrift store and write out qualities he liked about her on index cards he placed inside the box like a treasure chest. On one hand it was touching, but on the other hand it hurt – it made me realize there wasn’t anything special about me as far as he was concerned, but rather I was just fulfilling some romanticized role he had created in a fantasy. It also explained why he referred to me in the third person when we talked to each other. I was an object. I could barely get him to stop using a fake accent he had concocted when we were being intimate and not silly. I can only imagine the lies he is telling everyone about why I chose to end the relationship, but now I have to worry about him showing up at my sister’s workplace across the street, or hovering around my apartment’s entrance door and slipping in and then trying to SHOW ME how even though he tried to conceal a big part of his life from me and lie about the rest of it, he was going to swoop in on his white horse and save me.

I was logged on for all of seven minutes at about 3:32 a.m., and I guess that was enough to ring the fresh meat dinner bell. Immediately I got a few messages, including the usual with no punctuation: “Hi”, “Hi how are you” “Hi” “hi” “hi how you” and then one saying, “Wow! You are gorgeous! Do you want my phone number?”

I can’t handle the bullshit yet. The littlest nope:
LittlestNope

Pay The Toll To The Troll. The Price? Your Soul.

I don’t have any idea how often this happens, or who determines it, but supposedly, Mercury was in retrograde as of Thursday this week. Why don’t frogs just rain down from the skies and we can all just be done with it? No, the psychic attack is much more stealthy, I think. The back of my neck aches. My gums and mouth burns and everything tastes metallic. I fervently wish that Facebook incorporated a disgusted eye roll emoji in their current six options, up from the original singular thumbs-up option. My inner dialog changes: Get out of my way. Stop kicking my goddamn cane. Your perfume smells like cat piss. I’m not waiting 45 minutes this time before calling in to see if they forgot me again, I’m only waiting 30. I am going to scrub my fucking toilet until it fucking sparkles.

Even before Thursday hit I could feel the earth boiling, and my mood was cooking right along with it. I encountered my first troll on Tuesday night. A friend created a private Facebook group so that (mostly) she and the rest of us could say things that couldn’t be said unfiltered in front of a wider Facebook audience. The creator also uses the page to talk about her new grandchild, so obviously it’s not as restrictive as she originally intended. Anyway, a mutual friend was going through a rough patch with her boyfriend and had already talked about it at a coffee shop reunion the week prior, so when she posted in the group, she was just looking for further confirmation that she wasn’t being too harsh in her judgment; after all, when you are the one in the situation, it’s difficult to be objective. This jackass dude pipes in and starts criticizing her and tells her that she’s probably not communicating correctly or enough with the guy she’s in the relationship with – not at all helpful.

Knowing what I know of my friend, and knowing what I know of the guy she’s dating, I don’t hold back on the troll. First I tell him that she DOES and HAS communicated clearly what her boundaries are and that they have been violated repeatedly. Every point the poster or I bring up, the troll says we’re wrong. Then the troll starts talking about how this always happens to him, that he’s always attacked for having a “different viewpoint from most everyone else.” I told him then that it’s because he’s condescending and he has contradicted everything that the original poster and I have said. He said “No, I haven’t. Tell me where I have. I genuinely want to know.” So instead of turning the post into everything about him, I tell him to go back and read. His reaction is to laugh. Obviously there isn’t anything “genuine” about this jackass. The final straw is when the troll claims that we shouldn’t be “defensive, that he is only being inquisitive.” My response was, “You’re not inquisitive, you’re correcting both ___ and I, so that does not constitute a “different” perspective as if it somehow elevates you, it just makes you repulsive.

But then the owner of the group starts posting paragraphs about how we’re supposed to play nice. Then there’s more posts about how disappointed she is about our behavior and how she wants to shut the group down…but she doesn’t, because other people chime in that despite the fact that I’m a bad apple, the group is a “good idea” and some people claim it’s so great that she should “go global” with it – as if talking behind backs is a new concept. If that’s the case, I’ve got some oceanfront property in Arizona to sell to them. Lots of sand.

Troll #2 happens the next day, when I talk about this conversation. He listens for a few minutes, then bursts in with, “I HATE MEN!” As if I, Chelsea, hate men. I don’t. I do, however, hate men who: Lie, cheat, steal, are alcoholics/addicts, are abusive, are lazy, are filthy, are racist, are bigots, pollute, smoke, chew, are narcissists, and hate animals. I’m sure there’s more to the list, but that covers it for now. By the way, Troll #2 fits into quite a few of these categories. Hey, does someone smell butt hurt?

Troll #3 is on Thursday, the big retrograde day. I am pulled into a discussion about racism and white privilege. The person who tagged me is Native American, and the other person is white (and just happens to be an editor for Bloomberg and fancies himself to be an expert on the world and all experiences, like all white guys). The Native American wanted the privileged white dude to know that every other white person didn’t share his smugness. What it boils down to is that the white guy claims that no matter what, all people suffer, so racism, sexism and bigotry don’t actually exist, and we should just get over it. The examples I gave him – white men kick my cane when I’m in public, but women and just generally people of color don’t kick my cane; or white men shoulder check me – probably doesn’t happen, or if they do, they happen because people are just being shitty to me and it doesn’t have anything to do with privilege. He told me I needed to be friendlier (as in, “You are a woman, so you owe it to me, a privileged white male, to smile at me”), so I told him he needed to stop being a dick.

I’m not sure what the cure is. I don’t know how long this shit storm Mercury started lasts. Mercury is an asshole.

Pat, I’d Like to Solve the Puzzle — Patient Worthy

One Thursday night, I was completely emotionally wiped out. There was something that went down in my family and I spent that evening on the phone and in tears. I’m not going to go into detail; I feel like it’s not my story to tell. I had as much pep as a wrung-out washcloth. I…

via Pat, I’d Like to Solve the Puzzle — Patient Worthy

It’s Not Easy Being Green

I thought I had a diagnosis. In fact, I thought I had THE diagnosis: Lyme, picked up seven years ago on a hike down into the Grand Canyon, yadda, yadda, yadda. Don’t get me wrong, I still have it.

However, after seeing a physical therapist, a pain management specialist and the neurologist who specializes in movement disorders at the U of MN, they are throwing me back in the rare pool. They have never seen anything like my symptoms even with the confirmation of the antibodies particular to the Lyme bacteria. The PT and the pain management doc both marveled at my party trick, which is to lay flat or tilt my head so it’s perpendicular to the floor, which moves the fluid off of the area where it’s pooling when I’m upright and I can move my face again. The neurologist refused to evaluate me and instead scheduled me for an EMG of my face and head. Good thing I am a baldie, because it will be easier for the doctor who performs the EMG to easily find landmarks and previous poke marks. They want to rule out myasthenia gravis (again).
I’m now getting a little overzealous on recording my symptoms again. I know of a couple of people who developed POTS at the same time as their Lyme infections, and so now that’s on my radar too. But the issue with the CSF is really puzzling.

I signed up for a “scholarship” through the Hydrocephalus Association so that I can attend the hydrocephalus conference at little or no cost, which just happens to be going on about 10 miles from me (as opposed to another city/state) in June. I had to provide information as to why I was asking for the scholarship. I refrained from saying “Because I’m a freak of nature” but I did indicate that I would like to know if there are any new shunts out there that I wouldn’t be allergic to, or discuss possible advances in surgery and technology that would allow me to get an operation to fix the issue instead of having to implant a shunt at all. I’m hoping that some of the doctors attending will be interested in my demonstration about shifting the CSF away from where it’s pressing.

Oh, and I deactivated my OKCupid profile. I’m getting to know the man who considers himself a feminist – you know, right up my alley. So far no red flags, and he actually follows through on being a decent human being. Small children like him. He volunteers at an animal shelter. First and foremost, he’s nice to me.