Okay, OKAY, Cupid – Sheesh.

I received a message from one of my stalkers whose messages go directly to my spam folder on my phone. I somehow managed to open it in my sleep and it startled me wide awake when I saw it: “I left Minnesota.” Did I believe it? No. Because when I scrolled back further in the spam folder, I saw various messages from him desperately trying numerous tactics to get my attention. “Oh, hey, the sky is blue, so I thought of you.” Yeah, buddy, nice try.

I haven’t logged onto OKCupid since March, so it took me a few tries to get the right username/password combo. I finally got in and found this jackass’s profile, made sure he was still blocked, then tried to figure out if he truly left the state, but everything looked the same. So I really can’t tell. That means I’m going to be looking over my shoulder for a while still. His “I won’t take no for an answer” attitude has gone on for almost a full year now.

While I was on, I decided to block the profile of the most recent ex, since he also has stalking tendencies – he admitted that he was still trying to “get” a friend to love him after five years of friendship and one failed date and that she was “the woman of his dreams.” The birthday gift to me was what he had told me he was going to give to her, which was a box he had picked out from a thrift store and write out qualities he liked about her on index cards he placed inside the box like a treasure chest. On one hand it was touching, but on the other hand it hurt – it made me realize there wasn’t anything special about me as far as he was concerned, but rather I was just fulfilling some romanticized role he had created in a fantasy. It also explained why he referred to me in the third person when we talked to each other. I was an object. I could barely get him to stop using a fake accent he had concocted when we were being intimate and not silly. I can only imagine the lies he is telling everyone about why I chose to end the relationship, but now I have to worry about him showing up at my sister’s workplace across the street, or hovering around my apartment’s entrance door and slipping in and then trying to SHOW ME how even though he tried to conceal a big part of his life from me and lie about the rest of it, he was going to swoop in on his white horse and save me.

I was logged on for all of seven minutes at about 3:32 a.m., and I guess that was enough to ring the fresh meat dinner bell. Immediately I got a few messages, including the usual with no punctuation: “Hi”, “Hi how are you” “Hi” “hi” “hi how you” and then one saying, “Wow! You are gorgeous! Do you want my phone number?”

I can’t handle the bullshit yet. The littlest nope:
LittlestNope

Please, Sir, May I Have Some More?

My parents’ generation were the product of parents who lived through the Great Depression. My grandparents had to be creative with their resources; the flour companies started making pretty prints on their flour sacks once they figured out that mothers across America were using the sacks to make dresses. Re-purposing so that nothing went to waste, our grandparents were also guilty of turning their yards and barns into trash heaps. They were fearful of throwing anything away in case it would be needed in the future.

My parents’ generation, the baby boomer generation, turned around and said to their kids, “I’m going to give you everything I didn’t have,” which really meant that they wanted their kids to have new stuff. This started a trend of some of my classmates actually having cars being purchased for them, or having college tuition being paid for them, and by middle class – not wealthy – parents. Credit cards also started circulating heavily and regulations became non-existent, making it incredibly easy to rack up debt.

Now my peers are struggling to make ends meet and are in debt up to their ears while still providing cars and tuition and pocket-sized computers to their children as if they are staples, not privileges.

There’s a lot of talk about going back to basics and scaling back, while also teaching our children about how to manage money and understanding the consequences of debt.

I’m in a different kind of quandary, however. I need to figure out how to be poor. I mean really, really poor, in the current system – not what it was, and not what we wish it would be.

Back in 1995 when I took the road trip around the U.S. to pick a new place to live and ran out of money and said, “Okay, Albuquerque!”, I was poor. I landed with $100 and slept on someone’s futon for a month. But I was also able-bodied and picked up two jobs and moved into an apartment within a few weeks. I still had times where I lived off of $10 a week for groceries, but this is a little different. This is finite.

I sat down with the financial planner at my bank and figured out the rest of my bills for this year. However, I’m really stressing about my bed. It’s sagging and I can feel the springs poking through even with a thick foam topper – really bad for my fibromyalgia – and it’s only a year and a half old, and I’ve worn through it because I’m in bed for about 20-22 hours every day. Sleep Number is running a sale right now through September 11th and I could replace this bed for about $1100 including their least expensive base, and that would take care of the springs issue and would probably last 6-10 years. Do I buy it? Or does buying it now put me that much closer to eviction next year? If I’m evicted, what am I going to do with the bed? If I get housing at some point down the line, I’m going to need it again, uncontaminated by mold/dust/dander because of my mast cell disease.

I’ve had alopecia since the age of 3, and I lost my hair completely 14 years ago. There is a 30% off sale going on right now, which would give me a considerable discount on the wig I usually wear. Should I get that instead of a bed (it’s much less expensive)? Should I just give up on wigs now anyway because if I’m evicted next year for non-payment I won’t be able to afford them anyway and I don’t deserve to be so vain?

I have enough in my account to get me through to November of 2017. I’m a worrier by nature. All I can think about is, what am I going to do if I get turned down for disability? I mean, I hope the disability hearing happens by November 2017, because I filed for it in February 2016, and they are running 18-22 months behind (but just in case I have my senator flagging this case as “congressional interest”). Priority housing is given to people who are verified as disabled or who have children; if I am not verified as disabled (because I don’t have a diagnosis) and I don’t have children, I won’t have enough “points” to qualify for housing. All of my friends and family have pets and I’m deathly allergic, so moving in with them is not an option.

I’m concerned about both my mom’s health and my mom and step-dad’s financial stability, and my step-mom’s husband’s health and their financial stability. I’m concerned about my sister’s health and her family’s financial well-being. I’m concerned about my brother’s brand new baby who is due in the next few weeks and his little family’s financial stability. I recognize that they all have grave concerns of their own while they try to shield me from them and simultaneously try to take care of me. Certainly none of them can afford to pay for another adult’s living expenses.

I receive notices from friends telling me that I should support certain causes. I’ve said repeatedly that I don’t have any income and I won’t for at least another year, if at all, but they take “income” to mean working income. They just assume that I receive disability, even though I’ve said repeatedly and clearly that I’ve been turned down for disability numerous times. It wears me out to worry about being homeless, and I’m pretty overwhelmed by all the stuff I have to do to further my own cause since all of the offers of help were not really followed up on except by a select few, and it’s humiliating that I have to repeat myself to be heard.

This weekend I had a former fuck buddy hit me up out of the blue after years of silence to try to give me shit about moving back to my home state, mocking me about my claim that I was done with snow and cold when I moved to Arizona in 2003. I told him that I was pretty fucking sick and had stumped 54 doctors so far and could no longer live without assistance; he said he was working on three hangovers and he was sorry I was sick. He loves to talk about how he’s tired of welfare assholes, and I’m sure he thinks I’m one now too. We can’t even really have a conversation with each other anymore because in his eyes as well as in the view of the government, I have no value.

So where is the class that teaches me to navigate being homeless on the streets in a snow state? Do I get a free map to all of the soup kitchens? Where’s the best place to stash my cart outside while I warm up and surf the net in the library? How do I make a shank?

Pay The Toll To The Troll. The Price? Your Soul.

I don’t have any idea how often this happens, or who determines it, but supposedly, Mercury was in retrograde as of Thursday this week. Why don’t frogs just rain down from the skies and we can all just be done with it? No, the psychic attack is much more stealthy, I think. The back of my neck aches. My gums and mouth burns and everything tastes metallic. I fervently wish that Facebook incorporated a disgusted eye roll emoji in their current six options, up from the original singular thumbs-up option. My inner dialog changes: Get out of my way. Stop kicking my goddamn cane. Your perfume smells like cat piss. I’m not waiting 45 minutes this time before calling in to see if they forgot me again, I’m only waiting 30. I am going to scrub my fucking toilet until it fucking sparkles.

Even before Thursday hit I could feel the earth boiling, and my mood was cooking right along with it. I encountered my first troll on Tuesday night. A friend created a private Facebook group so that (mostly) she and the rest of us could say things that couldn’t be said unfiltered in front of a wider Facebook audience. The creator also uses the page to talk about her new grandchild, so obviously it’s not as restrictive as she originally intended. Anyway, a mutual friend was going through a rough patch with her boyfriend and had already talked about it at a coffee shop reunion the week prior, so when she posted in the group, she was just looking for further confirmation that she wasn’t being too harsh in her judgment; after all, when you are the one in the situation, it’s difficult to be objective. This jackass dude pipes in and starts criticizing her and tells her that she’s probably not communicating correctly or enough with the guy she’s in the relationship with – not at all helpful.

Knowing what I know of my friend, and knowing what I know of the guy she’s dating, I don’t hold back on the troll. First I tell him that she DOES and HAS communicated clearly what her boundaries are and that they have been violated repeatedly. Every point the poster or I bring up, the troll says we’re wrong. Then the troll starts talking about how this always happens to him, that he’s always attacked for having a “different viewpoint from most everyone else.” I told him then that it’s because he’s condescending and he has contradicted everything that the original poster and I have said. He said “No, I haven’t. Tell me where I have. I genuinely want to know.” So instead of turning the post into everything about him, I tell him to go back and read. His reaction is to laugh. Obviously there isn’t anything “genuine” about this jackass. The final straw is when the troll claims that we shouldn’t be “defensive, that he is only being inquisitive.” My response was, “You’re not inquisitive, you’re correcting both ___ and I, so that does not constitute a “different” perspective as if it somehow elevates you, it just makes you repulsive.

But then the owner of the group starts posting paragraphs about how we’re supposed to play nice. Then there’s more posts about how disappointed she is about our behavior and how she wants to shut the group down…but she doesn’t, because other people chime in that despite the fact that I’m a bad apple, the group is a “good idea” and some people claim it’s so great that she should “go global” with it – as if talking behind backs is a new concept. If that’s the case, I’ve got some oceanfront property in Arizona to sell to them. Lots of sand.

Troll #2 happens the next day, when I talk about this conversation. He listens for a few minutes, then bursts in with, “I HATE MEN!” As if I, Chelsea, hate men. I don’t. I do, however, hate men who: Lie, cheat, steal, are alcoholics/addicts, are abusive, are lazy, are filthy, are racist, are bigots, pollute, smoke, chew, are narcissists, and hate animals. I’m sure there’s more to the list, but that covers it for now. By the way, Troll #2 fits into quite a few of these categories. Hey, does someone smell butt hurt?

Troll #3 is on Thursday, the big retrograde day. I am pulled into a discussion about racism and white privilege. The person who tagged me is Native American, and the other person is white (and just happens to be an editor for Bloomberg and fancies himself to be an expert on the world and all experiences, like all white guys). The Native American wanted the privileged white dude to know that every other white person didn’t share his smugness. What it boils down to is that the white guy claims that no matter what, all people suffer, so racism, sexism and bigotry don’t actually exist, and we should just get over it. The examples I gave him – white men kick my cane when I’m in public, but women and just generally people of color don’t kick my cane; or white men shoulder check me – probably doesn’t happen, or if they do, they happen because people are just being shitty to me and it doesn’t have anything to do with privilege. He told me I needed to be friendlier (as in, “You are a woman, so you owe it to me, a privileged white male, to smile at me”), so I told him he needed to stop being a dick.

I’m not sure what the cure is. I don’t know how long this shit storm Mercury started lasts. Mercury is an asshole.

Of Saints and Sinners

I don’t drink, I don’t smoke, I don’t use drugs (not even the widely accepted green stuff); however, if I could snort chocolate, I probably would. In fact, I’ve heard that the latest craze is snorting unsweetened cocoa. Yes, it’s a thing. But what I’m referring to is more like my love of M&M’s – relatively harmless in the grand scheme of things.

Last year when 23 & Me was still mired in legalities regarding providing medical results in their gene testing, I had my genes tested because I knew eventually they would either 1) be able to find a way to package the results about the health stuff in a way where it would be understood that it was not actual advice, or 2) we would have raw data forever but it would be a starting point for me to take back to my doctors. So I got in on the action while the price was reduced. Just two months after that, they were able to legally follow the fore-mentioned #1 and also increase their price, but my info was grandfathered in, so it was a great situation for me personally.

This testing confirmed I had the addiction gene. Specifically, the results indicated that I would gain no benefit from developing a drinking habit. (Really, who does?) But certain people are definitely more vulnerable to addiction than others. I know I have that bug. Every once in a while I feel it tugging at my corners; in my 20s I had built up a tolerance to alcohol and it would take a dozen hard liquor drinks for me to perceive a feeling a drunkenness. What else could I become addicted to? Being pursued by men. Lipstick. Perfumes from Black Phoenix Alchemy Lab. I’ve managed to curb all of these, either cutting them out completely or limiting them severely. I know their price, either in dollars or with the price of my soul.

I’m bringing up addiction because it has claimed my relationship with The Saint Paul. Addiction brings with it deception, half-truths and deliberate omissions. I’m not inclined to list what his addictions are, but I discovered one of the five on our first date. I warned him early on that if I felt it interfere with our relationship in any way, it would not matter if we were 10 weeks or 10 years in, I would not hesitate to say goodbye.

As our relationship progressed, he tried to push the boundaries of my limits with what I would accept. One weekend I chose to ignore it because I was struggling so much with pain and unhelpful doctors that I needed comfort more than I needed to enforce respect. Later, other addictions became apparent. I started actively watching for evasiveness, because I realized that this was his go-to tactic when he felt cornered. I also completely lost trust in his ability to be my partner; his actions did not match his proclamations to support me, because in reality he always waited for me to take the lead and take care of everything.

This past week we did not spend time together. I rested a lot because the week before we were together every day because of non-stop activities, and then I wrapped up the week by spending time with some long-term friends. I had traded texts with him and asked him what he had done with his time and received no answer. I took this to be a deliberate, cowardly omission, a way to avoid telling me what he had been up to because he knew I wouldn’t like it.

I did not pry or send repeated messages. Instead, I went to the stash of brown bags with handles under my sink and began assembling his belongings from my apartment.

Tonight he confirmed my suspicions – he didn’t answer my question because he was doing something this weekend that he knew I wouldn’t like and broke his vow to me. It was just a formality that I asked him if that was the case. I had already mourned the loss of our relationship Saturday when I was met with radio silence. It was actually the sound of the other shoe dropping.

I encouraged him to seek counseling. I told him that I did not want to be “friends.” It would be far too painful for me to be the asshole handing out the advice that won’t be listened to, even if my advice is sought out and makes sense. I can only hope that his fear doesn’t paralyze him and that he pursues a better life by letting go of his demons.

Yes, All Women

The thing that gets me is that we women tend to carry these emotional burdens as our own secret parcels until someone else recognizes them. This young woman experiences the rarer form of bodily violation: the stranger rape. Through her letter to her attacker and thanks to the outrage that most of us feel over the stupidly light sentence he received, we have all been made aware of what happened to her that night and at the trial. It was especially difficult for me to read that one of the Swedish men who came upon the attack was so upset that he broke down in tears while giving his statement to the police. It gives me hope that not every man is being raised to be an asshole like the rapist obviously is.

In the bigger picture, nearly every single woman I know has experienced sexual violence. In my late teens, one young woman was raped by my friend; I cut off all communication with him despite his pleas. She chose not to press charges (because who would believe her?). My own first sexual encounter was violent – the guy didn’t believe that I was a virgin because “virgins don’t move like that” and he left me cut and bruised everywhere including my mouth. Over the years, various men have told me what I liked rather than listened to me if I told them they were being too rough or actually scraping or cutting my lady bits, and they would actually press or bite harder. I found out an ex-friend tried to force himself on one of my best friends within the last year and was outright pissed because she threw him out of her house. After all, he has a penis and therefore a right to her body is his line of thinking. How dare she tell him no?

That’s the stuff that’s even more difficult to prove. If that young woman can’t even make a convincing case for why it’s not okay for this asshole to drag her behind a dumpster and violate and mutilate her while she’s unconscious, what can the rest of us do with the men that are in our social circles who violate us?

https://www.buzzfeed.com/katiejmbaker/heres-the-powerful-letter-the-stanford-victim-read-to-her-ra?utm_term=.eaY45kj6yz#.qrwMXWGNbn

The Remains Of The Day

Yesterday I was picked up by the short bus for back-to-back appointments at the health crisis center. I was the only one on the bus and so I felt comfortable chatting with the driver, unhindered by eavesdroppers or joiners. First I asked if he was a Prince fan. Hey, why not? He didn’t look to be much younger than me, and it’s still big news around here since it’s Prince’s home base. Rumors are still flying and spreading like wildfire. How did he actually die? How will his estate be handled? Will his family completely melt down and will it get ugly like it so often does when there is money involved?

The guy admitted he wasn’t much of a Prince fan. Our conversation wandered around the world of entertainment, and he talked about how dissatisfied he was with staying hooked up with satellite TV, but he kept it for sports. But then he said that he really didn’t enjoy watching any sports either. I asked him if he liked to see games in person as opposed to seeing them on TV and he said he kind of did, but he couldn’t afford to go to games. I asked him if he liked to go to shows like theater or dance, and he said he’d rather be burned alive. He also didn’t really “get into” movies or music.

A 20-minute bus ride isn’t really the place to offer life coaching. I also can’t make people feel what I feel, which can’t necessarily be put into words. A sense of urgency, maybe, or finality? It could be that my bullshit meter goes off a lot more than it ever has before. What I wanted to tell him is that he needs to find his joy. I cannot say this loudly enough, though, but this cannot be confused with finding his next fix. So many men are stuck in this cycle of seeking thrills and the adrenaline wears off and they are onto the next conquest while constantly feeling empty and wondering why they do. Where is their humanity?

Before connecting with The Saint Paul, I talked to a few men through OKCupid by text and/or phone who made excuses to play stupid games with me or not respect boundaries. I changed their identifiers in my phone to start with “Asshole ______” and programmed my phone to automatically send their calls and messages into my spam folders. I don’t even think about these folders unless I get weird calls like I have been for the past three days from recruiters based on resumes I put out in the universe over a year ago when I got laid off of my job in Phoenix before I had my last surgery. I went to update the blocks and thought to myself, “I should check my spam folder.” Lo and behold, there were some messages.

The first was from the Christian asshole who had no respect for my boundaries, and who previously tried to bait me into talking to him again by randomly telling me he had arrived at his hotel room. This time he just said, “Hey stranger how are you?” Of course, it’s been almost three months since we’ve texted, and we never even talked on the phone – but by God, he’s not gonna give up!!!! Answer, bitch!!!

The other two were from the last guy I talked to on the phone and texted with before I met The Saint Paul who abruptly said he met someone and cut off all communication after he tried to sext, which I guessed to be a lie since he was constantly logging into OKCupid still when I had an account before mine was deactivated. After two months of silence, he sent texts saying, “How have you been? Just wanted to say hi.” Gawd, please – I am not new. He didn’t “just” want to say hi. We were not casually keeping in contact and staying friends. He’s trying to keep his options open in case whomever he is currently trying to bang doesn’t work out.

I resisted the urge to reply to both of these messages because really, neither one of them deserve a response. I really, really like this phone I purchased on New Year’s just for this blocking feature alone.

There are a couple of great lines in this song by Sean Rowe that I think applies to these guys (and really, listen to the whole song because it fucking rocks): “I’m a man, I am the world, I’m a man, I am the Lord” and “He puts out the lights and jerks off alone.”

I can’t save everyone. They need to figure this shit out.

I’m Just The Patient

Today was my big appointment with the movement disorder neurologist at the U of Minnesota, and it was decidedly anti-climactic. My first impression was that he was a young version of Derek Jacobi, pictured here:
Derek Jacobi
All of the doctors seemed to be excited that I was scheduled to see this particular one and told me repeatedly how thorough he was. In fact, I was supposed to see him over a month ago, but he looked over my file a few days before I was due in and instead insisted I get my face tased (with an EMG) before seeing me, which pushed my appointment back so that he could rule out myasthenia gravis (a second time). I knew I didn’t have it as of 2010 and I still don’t.

This doctor was short on bedside manner, so I immediately shortened my answers and didn’t elaborate on anything. We went over my family’s extensive history of autoimmune diseases. He made me walk and do things with my eyes closed to deliberately make me fall (which made me sweat and because I was under so much stress, the tremors started up almost immediately). He shook my shoulders, sending white hot pain through my left shoulder that I’ve been going through PT for but am going to get an MRI for after next Friday because I’m not healing – I spent three years laying on that shoulder because all of my surgeries were done on the right side for that length of time, and the pressure really messed up the tendons and ligaments.

After all of that, the doctor told me that his nurse gave me the website in December that I should have checked out on movement disorders. He must have seen my eyes glaze over and the stubborn set in my chin because he left the room and returned with screenshots of the website. I politely folded them into squares and stuffed them into a pocket in my purse. He said that a doctor from July of 2015 believed that I have a facial movement disorder. I told him it was news to me, since the only thing that was said to my face was that I wasn’t a good candidate to have surgery to relieve the pressure on my optic nerves. This doctor said that the other doctor may have chosen not to tell me that I have a movement disorder because there’s “nothing that can be done about it anyway.”

This entire conversation is deeply flawed. First, I don’t have a facial movement disorder. I have a problem with CSF pooling in my cranium while I’m upright and it presses on some of the nerves leading to my face as well as my cerebellum; as soon as I lay flat, the fluid moves away from the area and I get full functionality back. Second, I have plenty of issues in which “nothing can be done” for them – including alopecia universalis, though he was quick to point out that someone was doing a study. I told him that it was low on my list of priorities. Third, I’m the motherfucking patient. Doesn’t it stand to reason that if this is one or more of the thought process of the doctors that it should be discussed with me?

When it was time to go home, the cab driver that got the dispatch to take me home pretended to come and pick me up but then acted like I didn’t show up – even though I was outside sitting on a bench in between approaching every cab that rolled up asking if they were there to pick me up, so it took me an extra hour to get home after I had to call dispatch to bitch.

I really could have just stayed home.

In fact, I would have benefited from a day in bed. I predicted that I would be laid out for a good week after last Saturday, but I think that it was an accurate call. Now that I have an honest to goodness boyfriend, we’ve been trying to do activities that I can actually handle for a few hours. There was a flea market/antiques expo at the state fairgrounds and I thought we could just take the bus because it stops right outside my building and seemed to spit us out right at the fairgrounds gate. I was not a good planner for this trip and we ended up doing a lot more walking than we thought – and it wasn’t like we had a choice, no one could do the walking for us. My phone tracks my walking automatically and I wasn’t surprised when I saw 2.5 miles for the day rather than my usual high of 0.5 miles. By the time I climbed the steps to my building, I was visibly shaking and was fighting fatigue tears.

But damn, this boyfriend rocks. The Saint Paul is loving and affectionate, and goes on food runs and lets me stay behind so I don’t have to get out of bed. I have begun meeting his family and friends, and he is in the process of meeting my people.

Most importantly, we have said the “L” word, and meant it, and will continue to say it. When someone great comes along, you absolutely can’t take for granted that they just automatically know how much they mean to you or how much you appreciate them. I’m infinitely grateful to the universe for nudging me in his direction.

And then there were two.

Ch-Ch-Ch-Changes

I’ve been laying low for a few weeks. Actually, that isn’t quite right – I’ve had to put on makeup nearly every day and wear a bra and be polite and make sure my pants aren’t falling off of my ass every time my name is called and I stand up because of non-stop appointments and activities. Most of the time it’s exhausting because my brain is being smushed like people have sent over a few of their puppy-monkey-babies to sit on my head and bounce around a little. At the end of each day I’ve had very little energy to do much else than watch my TV boyfriends Jimmy Fallon, Trevor Noah and Larry Wilmore on Hulu.

My uncle’s memorial service was Monday. There was quite a large turnout – something in the neighborhood of 300 people, I think. It was lovely and sad, and especially tough to see pictures of my aunt and my dad on the slideshow that was run during the service, who preceded my uncle in death by 20 years. Every single one of us cousins on that side lost a parent at a very young age. Thankfully there were a few funny stories and pictures to break up the sadness.

About a month ago I went to a session at a health crisis center where a musician brought his guitar and we had a little singalong activity. It was nice to sing – it’s one of my favorite things to do – and I have a decent voice, and I met a woman who seemed to be fairly friendly. The thing about the crisis center is that people attend whether they have physical illnesses, mental illnesses, or both; this woman happens to have mental illnesses, though I didn’t know it when she started talking to me. She gave me her number and said she would be interested in getting together because she wanted to expand her friendship circle.

Well, I didn’t know it at the time, but “expand” really meant that she wanted to make A friend. One. Me.

I had new orders put in for nerve impingements in both my left shoulder and right hip, so I’m going to PT twice a week now. Besides that I have other appointments for counseling or additional doctor appointments at least once a week, including an EMG for my head and face tomorrow morning. I’ve still got the tremors going on in my legs from being upright so much.

I didn’t realize that the lady didn’t fully expect me to actually call her, or that I was the only one polite enough to give her the time of day. However, slowly as she cornered me on the phone day after day for a few hours at a time, she revealed she had some issues with obsession and stalking, including the fact that a man who attends her church has a restraining order out on her. At one point she told me that she thought that he was trying to be friends again; what did I think? I told her that he might have been polite, but she should keep her distance. I finally told her that I can’t talk on the phone every day. Now she texts me every day and asks if we can go and do stuff like shopping. I tell her every day that I have appointments and it’s really difficult for me to be running around all of the time. Now I’m at the point where I’m going to have to be firm and tell her that I just don’t have the energy or health to be her one and only friend. I’ll let y’all know if I come home to some rabbit stew and her standing in my bathtub with a knife.

I have been working on making the changes to my diet to make it anti-inflammatory, and that includes experimenting with ingredients. Today I made crispy chicken, which was breaded with garbanzo and fava bean flour (okay) and coconut flour brownies (eh), and I’ve determined that coconut flour and my esophagus do not mix. I’ve tried three different recipes that are coconut flour-based and they burn going down every time. I don’t think it’s a true allergy because I don’t get hives or asthma, but it’s still unpleasant enough to stop trying to make it work.

Four doctors now at the University of Minnesota have told me that they don’t think I have late stage Lyme, and they’re not quite sure what I have. No one can figure out why the hell I can lay down and make the CSF move away from wherever it’s pressing on my brain and I can open my eyes again. I talked to my PCP today about the possibility of getting my shunt removed completely since it’s not draining properly anyway and it’s just causing me pain now. It will probably be another six months before I will be able to go under the knife for that one since I first have to jump through the hoops for the pain doctor. I finally got the letter for the NIH Rare Diseases unit from my PCP and started that process tonight. Now I’m back on the rare disease boat.

Last, and most exciting:

I am no longer on OKCupid. I mean, yeah, sure, I was getting some really nutty stories to pass along (and I certainly haven’t told them all yet), but it’s because The Saint Paul really is worth it. The Saint Paul is close to my age, never married, no children, heart of gold, helpful, accommodating, matching sense of humor, curious, well-read and liberal. He supports my feminist stances and most importantly does not view my body as “his” space, as so many men still do with women. We had the best first through fifth dates, the last one involving him taking me to his favorite animal shelter so I could pet kitties. (I brought a shirt in a plastic baggie that I could change into so I wouldn’t contaminate my jacket on the way home.)

Stay tuned for further developments on the love front.

Gaslighting

Drummer #2 was the absolute master of gaslighting. I keep a lot of emails – yes, even the really shitty exchanges I’ve had with boyfriends – and recently re-read a couple from Drummer #2. When I read his words, the shame felt nearly as intense as it did when I tried to break up with him for six months running in 2009. He worked hard on me to convince me that I was confused about what I was feeling. He was condescending and repeatedly told me that if I would just do things his way, I wouldn’t struggle so much. He told me that I wasn’t identifying my emotions correctly. It was exhausting. I was an emotional wreck. But just like this author, I finally got away, and I have never looked back and said, “Gee, maybe I should have stayed with him.”

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You know when you have a lightbulb moment, when you read something, spit out your coffee and suddenly go WHAT THE FUCK, WHAT, THIS IS EXACTLY LIKE READING ABOUT MYSELF! Well, I just spat out my cof…

Source: Gaslighting

But I’m A Nice Guy

I have grown to dread this self-proclamation: “But I’m a nice guy.” In fact, I have grown to develop a specific distaste for OKCupid profiles that are like “Niceguy4U” and “niceguy69” and “goodguy98787.”

Why? Well, if someone has to keep telling others that he is “nice” or “good,” it’s likely he’s not. The key is to get past the words and watch the actions. 

For about a week I was chatting back and forth with a guy who claimed he wanted a real relationship. His screen name was something like “Love4You” – red flag right there. We messaged for a few days and then he asked if we could text, so I agreed and gave him my phone number. Then he asked if we could get on the phone, so we chatted that way. He told me it was really great to talk to me, and that he felt at ease with me, and that thinking about me and our conversation made him smile. I thought he was really friendly and enjoyed our conversation too.

We made a date for last Saturday, but it fell through because he had to have work done on his truck. He suggested we make a date for the next Saturday. Between that afternoon and this evening, we spoke on the phone a few times, and we texted multiple times each day. Mr. Nice Guy said that he wasn’t interested in sexting at all. I told him that I thought that was refreshing. I also told him – multiple times – that I don’t want to talk about anything like that until after we met, because it puts unrealistic expectations on us when we do meet for the first time. He agreed and told me he was much more interested in sharing his life with someone – specifically, me – and he was already talking future plans, like what he was going to cook for me and where we could go, even with my physical challenges.

Again, through all of this, Mr. Nice Guy repeatedly told me that he liked my sense of humor and that he smiled when he thought of me. He told me that I had a very positive attitude. I told him that I was looking forward to our date on Saturday. He said he was too, that he thought we’d have a great time.

Another red flag: On Tuesday (Super Tuesday for voting!), I got a message from Mr. Nice Guy saying, “Can we meet Sunday instead of Saturday? Busy day.” I told him that would work for me, and he thanked me. This was the second time in less than a week that he changed the date.

We had gotten into the habit of saying good night every night. On this particular night, I told him sweet dreams, and asked him what he would like to dream about that night. Mr. Nice Guy answered, “You.” I said, “Thank you. Where would you like to go in your dream?” He said, “In my dream with you?” I said, “Yes. Pick a place and we’ll go there. I’ll see you in your dreams.” He said, “In bed.”

I didn’t see this right away because I was still trying to change for bed as well as wash my face and brush and floss, so he noticed the big pause and said, “Too direct?” When I saw his messages, I said, “Didn’t we say we weren’t going to go there at this point?” He said, “Yes very sorry.” I said, “I just don’t want to jump the gun.” Mr. Nice Guy said, “That sounds good to me. Falling asleep” and he ended his text with a very enthusiastic smiley face. The trouble is, he didn’t go to bed. OKCupid showed him logged into the system until 9:40 pm, later than our interaction. That reeks of looking for a piece of ass, in my book.

The next evening I sent Mr. Nice Guy a text greeting him by name and asked him how his day was. He answered, “Very busy. Had a 5 minute lunch. Stayed 45 minutes on overtime. Gonna get much more busy.” And then he said, “Good night” – at 7:45 pm. You bet your sweet ass he was logged on for a few more hours on OKCupid.

Then at 6:05 pm tonight, I got a message that said, “I met someone. Good luck in your seach” (bad spelling included).  How did I respond? “Nice.” How did I want to respond? “You’re a dick” would have been appropo; so would have “You’re a fraud.” I mean, for someone turning 50 in a month, you would think he would have the manners and integrity to be truthful with me and call me instead of texting this ridiculous made-up story. I am pretty sure that’s why he’s still single.

I have his number and messages blocked on my phone and I blocked him from seeing my profile or messaging me on OKC. However, I can still see his, and he was logged on for three and a half hours this evening. With as quickly as he wanted to move to chatting on the phone, Mr. Nice Guy’s claim that he met someone is obviously false because he’s still trying to hook up with someone.

A couple things could be happening here:

1) Mr. Nice Guy really does just want sex and is not interested in a relationship;
2) Mr. Nice Guy is still married;
3) Mr. Nice Guy is embarrassed that I turned him down;
4) Mr. Nice Guy is pissed that I turned him down.

Whatever the reason, that’s one less man-child for me to raise. Mr. Nice Guy isn’t so nice after all.