When Life Hands You Lemons

Another article has been posted on Patient Worthy! The picture is of lemons from my tree in Phoenix, something I dearly miss. My body is rebelling and my dates are in retrograde. Where’s my unicorn??

Hello Tremors, My Old Friend

Valentine’s Day is 80% Off

10363795_461119117413686_8488688079924407159_n

I’m going to do a little update on Walks with Wood (https://thesickandthedating.com/2015/06/10/hello-world/) because as I stated before, I snoop to keep track of exes. Though he and I no longer live in the same state, he did try to contact me out of the blue at the end of March of 2015 because he wanted sympathy for driving drunk without his seat belt and crashing his car (and his head in the process).

OLYMPUS DIGITAL CAMERA
Diamond Dust Necklace (I’m assuming. He claimed he spent “a lot” on it.) WwW gave it to me on Feb. 11, 2015.

So this is their post confirming one year:

WWWandOphelia

The last time we saw each other was February 28th when he showed up late and drunk. Either Ophelia has no idea there was an overlap, or she has forgiven him because he is a project to fix. Either way she has not had it easy; he told me his friends assumed that I was ugly without even meeting me. That didn’t exactly endear them (or him) to me. Maybe they are kinder to her because she was already part of the circle.

In other news, Walgreen’s has all of their candy on deep discount. Unfortunately, just like my love life, I am being forced to clean up my diet before it maims or kills me, so no sugar, soy, gluten or dairy. Welcome to February 15th, where the chocolate is 80% off, and so are the relationships.

Hannibal

This fear of cannibalism could explain why some dates have cancelled on me in the past few months. Seriously, just because I believe in feminist values doesn’t mean that I wish anyone ill will. On the other hand, fava beans and a nice chianti…

http://www.cnn.com/2016/02/15/us/seattle-aquarium-octopus-mating-canceled/index.html?sr=fbCNN021516seattle-aquarium-octopus-mating-canceled1054AMStoryLink&linkId=21272696

one billion rising

Source: one billion rising

With so many women affected by dating and relationship abuse, you would think we would have worked out a better way to raise awareness (and boys to men who don’t believe they have the right to use and abuse women’s bodies however they see fit). But here it is. I guarantee you, if not you, then more than just a few women in your life have experienced violence at the hands of a date or partner.

You Spin Me Right ‘Round, Baby, Right ‘Round

Okay, I admit it: These words together make absolutely no sense to me. However, they keep popping up as a successful search phrase that someone is using to plug into a search engine and then be directed to my site:

“fragile handle with care name that porn”

No, it’s not two phrases – “fragile: handle with care” or “name that porn.” It’s all of those words mashed together. I suppose the fact that I am posting the phrase to call attention to it is also going to lead that party back here a third time, but seriously, weirdo, that’s messed up. A phrase that is normally used to ship expensive art work doesn’t normally immediately precede a phrase about porn. Porn isn’t fragile. I actually dislike a lot of porn that’s floating around because it always looks like the women are in pain. They do their best to hide their discomfort and disgust because they’re trying to make the big bucks, but at the first sign of acting, I lose my lady boner. Maybe it’s not the naming part you need to worry about, Anonymous.

I got another voice mail from Nashville. His voice sounded all hang dog, like “Gosh, I’m real sorry.” (Make sure you say that sentence in your mind with a twang, so all of the words are at least two syllables – “ree-yawl”). Oh, wait, that’s what he actually said. Then he followed that up with, “I know I didn’t call you (“yee-ooo”), I just got real busy with work and all (“aw-wall”).” Nashville ended the message saying he wanted to talk to me. Now I’m just flat out irritated that he is going back to his original lame excuse. Did he think I wouldn’t recognize it? Did he think I’d forget that I know he has a minimum of 3 days off each week, and which days those are? Now I know I can’t call him back, because I’m going to talk to him like he’s a flat out idiot, and he’s not going to like it. Oh yes, I’ve made grown men cry, usually because I don’t take their shit.
Lastly, I got a text on Tuesday night/Wednesday morning at about 12:30 a.m. from Hidden Creeper (https://thesickandthedating.com/2016/02/04/crouching-tiger-hidden-creeper/) saying, “Sweet dreams.” Wednesday night at about 9:30 pm I wrote back, “Thanks, you too.” He must have been waiting for my reply, because it took him two seconds to respond with, “Good night babe I want to see you :|”

Here’s the problem with technology: it’s a lot easier to analyze the shit out of everything that appears in front of your face in writing instead of having to improvise with someone in person. I had already established that he does not respect women’s boundaries since he couldn’t honor my repeated requests to not be addressed as “cutie.” Now he’s calling me “babe” as if we have actually exchanged bodily fluids, when in reality, I’ve never met him. Also, he’s making it sound like we had a couple of dates and he is now pining for me. Sorry, Hidden Creeper, your texts and phone calls are now going to be hidden from me permanently (unless I’m looking for entertainment, then I’ll peruse my spam files).

Speak Easy

Last week Friday, February 5th, Nikki (http://ilivebreathe.com/) and I had our first chat on Blab. The agenda was to talk about toxic people, the diverse challenges we face when interacting with them, and when to let them go. The recording went much longer than we planned at 1 hour 45 minutes, but if you are interested, here is a link to the show:

https://blab.im/82740adeac204a028576bc288ef25703

We decided to come back this week with another show, and this time the topic is self-care. What do you do to bring yourself back from the pit of despair? Do you allow yourself to laugh or cry? If you have seen the movie “Amelie” (French with subtitles), you know that each character is assigned a list of things that seems like a very simple pleasure. Amelie’s father likes to take all of his tools out of the toolbox, clean out the box, and very carefully put the tools back in. A patron at the eatery carries a mini tape recorder with him everywhere, and then records unusual laughs. Amelie likes to stick her hands into barrels of dried peas.

What do you do to make yourself feel better about your circumstances?

Join us on Blab for a discussion on self-care; we’ll start at 6 pm EST/3 pm PST Friday, February 12th.

https://blab.im/nikkiseefeldt-sickadilly-chat-2-self-care-strategies-rare-dis-disability-chronic-illness

Lemme Tell You a Wake-Up Story

Warning: Adult Language

The Shit Theory

Nashville (https://thesickandthedating.com/2016/01/18/i-saw-another-ghost/) sent me messages saying, “I’m sorry, please don’t be mad at me.” When I asked him why he ghosted me, he just said, “Don’t be mad” again. He “hates to fight.” Then he said he didn’t call me back for a few weeks because he “had his dog.” Zero explanation, unless that dog dials his phone for him. No response at all to my repeated asking of why he disappeared. I even resorted to saying, “Did my infection make you uncomfortable?” I mean, seriously, I would say the words for him if he couldn’t. But he couldn’t even respond to that. So I told him that if he can’t communicate with me, then there’s no point in seeing each other anymore.

I know he’s sleeping right now because he wakes up right before he has to go in for his third shift hours. When he wakes up, if he gets all whiny again, I’ve decided I’ll have to lay the shit theory on him. It’s something I’ve thought up just this afternoon that I think will explain what I see happening and what I think he needs to do.

Most of us who have had chronic illnesses for years (or even decades) are familiar with the “spoon theory” that a very clever woman came up with on the fly to teach her good friend about what it’s like to have a chronic condition that greatly affects the quality of life. Sufferers have even self-identified as “spoonies,” which makes it hella easy to find each other online.

I don’t expect this theory to find the same fame, but it would be funny if it did.

Okay, let’s say Nashville got up from a full 7 hours of sleep and did his business in the toilet, including a #2. (I know dudes are super regular like that, all of them that I’ve lived with are like clockwork.) But instead of flushing his shit down the toilet, he reaches down into the bowl and picks up the shit. He looks around the bathroom, and then he starts smearing. He gets a good amount on the floor and the shit cakes up a bit in the grout between the tiles. He also goes for the walls – big smears, maybe some letters. He even saves some shit for the sink and the dookie gets into the joints of the faucet handle. Nashville stands there for a minute, looks at the shit on his hands and fingers, and then yells for me. I come to the door, take one look and I say, “What the fuck, Nashville? Why did you smear shit all over the bathroom?” He says, “Don’t be mad at me. I have to go watch my dog wag her tail.” I say again, “Why the fuck did you smear shit all over every single part of the bathroom instead of just flushing it down the toilet like a healthy person?” Nashville says, “I don’t want you to be mad at me. Can you stop being mad at me? I love my dog.”

Nashville (as well as many people in general) claims he hates chaos. Chaos = shit, in this story. He could have just flushed the shit down the pipes. In other words, if you don’t want chaos, then don’t bring it into your world. You have a choice. If you choose to reach down into the bowl, cradle it in your hands and start smearing it around, it’s not okay to 1. Keep doing it until it’s in every nook and cranny of your life (no matter how much you B.S. yourself that you’re keeping it separate), and 2. Ask for someone to clean up the shit that you chose to spread. Certainly don’t ignore it (as Nashville did when he ignored my questions). All it’s gonna do is dry where it sits and be even harder to clean (aka all I’m going to do is get pissed, and he’s STILL going to have to deal with it). Sometimes a person has to hire a plumber (psychiatrist, psychologist or counselor) to help figure out clogs in the pipes (brain), but it’s better to take care of that sort of thing before the problem becomes completely out of control.

So, Nashville, the moral of the story is: Clean up your own shit.

The End

 

 

Life Lessons Learned From Being Homeless – by Kenny Murray

These are all wonderful points; some of them will save you from homelessness if you ever find yourself close to it. (The only one I don’t practice is believing that it can always be worse. As I like to say, it’s not a competition for the shit cookie.) Be well and be loved.

Kindness Blog's avatarKindness Blog

I’ve been homeless four times in my 25 years on this planet.

When I was 7 my father kicked my mother, me and my four siblings out of the house.

When I was 9 my father had found where we lived and my mum fled with us for our well-being.

When I was 11, he found us again. We ran.

The last time I was homeless was when I’d refused to get involved in my local gang in Easterhouse (one of Scotland’s poorest housing estates), so drew attention from one of the local hooligans. I was beaten up so badly that we left the area for our own safety.

I’m not writing this so people feel sorry for me, rather I’m writing it to illustrate that yes, whilst I was homeless four times I’ve not let it dictate my life in a negative manner — rather I use it as a means…

View original post 768 more words

Are You There, God? It’s Me, Chelsea

Judy Blume wrote from the perspective she was most familiar with – her own. It’s what we all do. It’s what makes our stories unique, especially when we look at the story teller as female vs. male, as tall vs. short, as narrow vs. wide, as black vs. white, as wheeled vs. walking.

Something that Judy Blume would have no perspective on is the experience of a girl going through puberty and dealing with questions about her body and her sexuality while also experiencing a physical disability. For instance, would it be so easy to use a tampon if your hands did not have the dexterity and strength that most girls had simply because you had cerebral palsy? It seems unfair that a girl with CP have to advertise to the world that she had to install a brick (aka pad) in her underwear because a tampon was just too damn complicated.

For me, my baldness has flavored many stories. I didn’t choose to lose all my hair. I had absolutely no control on it falling out, and I have no control on it growing back. However, wigs have gotten so good that I can “pass” to the untrained eye. I still get a once- or twice-over.

This woman is hugely disappointed because she has never been catcalled. I’m sure she’s faced many, many types of discrimination, but she is heartbroken because she has never been desired simply for her appearance. She is always going to be liked for her personality, and only after she has been passed over by many, many men. She has never written in her journal that some stranger said something sexual and inappropriate to her, and she told him to fuck off and then ran-walked away.

Right now I only use a cane to help me walk – my walker stays in my closet. But I know a bit about what she feels. I am treated completely different when I’m walking with my cane compared to no cane. I even feel different, more vulnerable without it, because I know that when my feet are slapping together and my face is paralyzed, I’ve lost all desirability.

http://www.huffingtonpost.com/the-establishment/nobody-catcalls-the-woman-in-the-wheelchair_b_9130226.html

 

Crouching Tiger, Hidden Creeper

I’ve been on an opera kick this week. Puccini is my absolute favorite composer, so I’ve had that station going all week while I have read articles, organized my taxes, and for the first time have colored in my “adult coloring book.” I’m a little slow on trends sometimes.

I often don’t understand the meaning of the songs because who here speaks fluent Italian? Not I. But it certainly adds a little flavor to my tasks. Also, it’s the funniest thing to run across some slow-motion films of dogs wiping out in the sand or attempting and failing to catch treats or toys in their mouths – so dramatic when Maria Callas is wailing!

I was feeling very passionately that my OKCupid profile needed another revamp. Guys don’t care what I’m doing with my life or which books I’ve read or if I know all of the cool places to eat. They just want to know if I will go hunting and fishing with them (welcome to Minnesota) and if I can hook my ankles behind my ears. So I took all that crap out. This is what my profile says now:

MY SELF-SUMMARY
*******I’M ALLERGIC TO:********

– Hookups, FWB, DTF
– Threesomes, foursomes or moresomes
– All animals furred or feathered (even “hypoallergenic” animals), though I love them
– Misogynistic behavior
– Bad behavior and excuses
– Cheaters, liars, thieves
– Poor dental hygiene
– Conspiracy theorists
– Stalkers
– Contemporary country music, rap
– Republicans
– Being called “cutie”
– Organized religion or prayer

The most private thing I’m willing to admit

I don’t get out as much as I would like to because of some major health issues.

You should message me if

– You are a non-smoker (of all things) and don’t use chew/snuff (ever)
– We live in the same country; my preference is to connect with someone in the same metro area because I dislike long distance relationships.
– You know and use proper grammar, spelling and punctuation.
– You would like me to proofread your profile for grammar, spelling and punctuation errors.

Almost immediately after posting these bullet points, a guy hit me up and said I was hilarious, and unfortunately, he was a hardcore Catholic and a Republican – but he really appreciated my sense of humor. We ended up having a really good chat through the site. He talked about his daughters, and how one of them was living with him as well as a nearly 2-year-old grandson. We chatted about the intricacies of finding and keeping a job that could pay the bills without the need to add another job. We talked a little bit about my disease and how it affected my ability to be social.

In all, a respectful, flowing conversation happened. Then I got an unexpected but very welcome call from my close friend in Arizona, and told the guy that I couldn’t chat because of the phone call. He said that was fine and posted his number, and I replied back with mine. He asked if I would be interested in a date. I thought what the hell, if we get along, we both could include each other in our circle of friends.

My call with my friend was pretty lively. She told me about the difficulties she had with men she had dated (or really, had minimal contact with) who kept calling and texting, even though she wasn’t interested and told them so. She told me how one had briefly been a professional MMA fighter, and took it upon himself to put her in a choke hold and then forced her to the floor. Another was a guy who couldn’t seem to accept the fact that she had gotten into a relationship with someone else instead of him, and even agreed to a double date so my friend could introduce him to our other friend – until he realized that my friend was also bringing her boyfriend.

My advice was that she must use small words and tell them why she is cutting them off, and then cut them off. First, they are not respecting her boundaries, and she does not owe them anything. Second, she needs to get her mind out of the space where women are required to be people pleasers and make sure they don’t anger men. That anger rears its ugly head when men think they are simply entitled to women’s bodies. How dare we reject them?

After we ended our call, I texted the dude and apologized for taking longer than I had planned. He called me “cutie” with a smiley face, just to piss me off. The next thing he did was tell me how beautiful my eyes are. I thanked him and told him I appreciated his complement, but I put more value in values than I do appearance. We discussed options for activities where I wouldn’t be up and out for too long (hopefully longer than a high five).

And then Hidden Creeper came out.

I was trying to discuss meeting places with him, and he kept talking about my appearance and how “cute” I am and that he just couldn’t help it. Then he asked me if he could kiss me.

In my head I was saying, “Hold on there, buddy – where in the hell did this come from, Mr. I’m-a-Hardcore-Catholic?” It doesn’t take a rocket scientist to figure out that him talking about kissing me is his code for testing me to see if he can go balls deep. It happens all of the time.

I told him that if we both felt attracted to the other person, then sure, we can have a smooch. But I also told him that I didn’t want to discuss it further, because it has been my experience that if all you do is talk about what you want to do with the other person once you have entered their personal space, and then you actually meet, it doesn’t end well. Sometimes there’s no attraction from one or both parties. but then they feel obligated to ______ because it was talked about. I told him that I wanted to make sure we’re not getting ahead of ourselves.

He replied with, “Ok sounds good” and then stopped texting me. So I still have no idea if this date is going to happen, but my guess is that it won’t.

I feel the change in personality happened as soon as we started communicating off of OKCupid and that is because he knows I could easily block him there and he would have no idea how find me. Luckily I can push his calls and texts to spam if I get some on my cell, but he doesn’t know that. I just feel sorry for his daughters. He revealed to me that his oldest daughter moved back in with him because she’s 24, has a 2-year-old, is kind of lost, and the baby’s daddy is an asshole who took off. I want to shake him and say, “He took off because you didn’t teach your daughter how to value herself, or she may never have let him in in the first place.”

Being able to look at everything and process it in a much healthier way than I have in the past is my present to myself. I’m not perfect, but I’m getting better. I wish everyone else luck, would like to remind you that it sometimes takes effort to get on the right track, and keep holding yourself and other people accountable.