Arizona

Gaslighting

Posted on by akiwifreund

Drummer #2 was the absolute master of gaslighting. I keep a lot of emails – yes, even the really shitty exchanges I’ve had with boyfriends – and recently re-read a couple from Drummer #2. When I read his words, the shame felt nearly as intense as it did when I tried to break up with him for six months running in 2009. He worked hard on me to convince me that I was confused about what I was feeling. He was condescending and repeatedly told me that if I would just do things his way, I wouldn’t struggle so much. He told me that I wasn’t identifying my emotions correctly. It was exhausting. I was an emotional wreck. But just like this author, I finally got away, and I have never looked back and said, “Gee, maybe I should have stayed with him.”

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You know when you have a lightbulb moment, when you read something, spit out your coffee and suddenly go WHAT THE FUCK, WHAT, THIS IS EXACTLY LIKE READING ABOUT MYSELF! Well, I just spat out my cof…

Source: Gaslighting

What I Know, What I Don’t Know

Posted on by akiwifreund

Okay, first of all, a very specific search appeared on my radar yesterday: “Indian sites for compression hose fetish.” Hats off to your freak flag flying proudly, whomever you are. Also, hats off to wanting your objects of desire not to have to suffer from varicose veins. I’m sorry that my mention is probably repeatedly bringing you back to my blog; I wish you luck.

Second, I got a diagnosis.

I’m going to start where I think I should, and that is May of 2009. I was living with the very controlling and very violent Drummer #2 in a beautiful 3 bedroom/2 bath on a man-made lake. My friend who is a CPA and has taken care of my taxes for 16 years as of this year flew down from Cincinnati. Drummer #2 was on the verge of nearly smashing my head with a drinking glass, but I didn’t know it. He made me feel like absolute dirt because my friend was visiting, so much that the friend had to stay at a hotel rather than in the spacious home we occupied.

My friend rented a car so that we could run around the state of Arizona, and most importantly to the Grand Canyon. We hiked down into part of the canyon; it was not easy for me because I had already had fibromyalgia since I reached adulthood, but I did my best to keep up. I was so happy that my friend had made it down to visit, even though the nastiness of Drummer #2 put a damper on things. Drummer #2 didn’t accompany us and that was absolutely fine with me. I wanted to be able to relax. My friend flew home and life went back to walking on eggshells to try to not make Drummer #2 angry – which proved impossible. The week after that trip was when everything went down with the asshole and I moved out in a hurry.

Fast forward to October of 2009: I went to the emergency room because I developed a stiff neck and excruciating pain. Every time I moved my neck I cried. I didn’t sleep for four days and was starting to hallucinate. The ER doctor had no explanation for me because I didn’t have any other symptoms like a sore throat or a fever. He sent me on my way with muscle relaxants. The pain didn’t abate for a full week.

Around the same time, the naturopath I was seeing started documenting new symptoms for me, mainly that I had a constant rocking feeling, and I was always nauseated. We tried different remedies including Dramamine, but nothing even made a dent.

Have you thought up a diagnosis yet? Just wait.

In July 2010, I developed crushing fatigue. I drove over to San Diego mid-month to spend time with a man from Germany who made yearly trips to Comic-Con, the big one. I struggled to walk a few blocks between my hotel and nearby restaurants. He was used to walking up to ten miles a day; I felt a bit ashamed because I felt as if I embodied the lazy American stereotype. I was also plagued by deep bouts of vertigo to the point where I nearly fell down an entire outdoor cement staircase.

During the last week of the semester at school in July, I had to drop out and not take any finals. Fatigue and vertigo ruled my life. My parents were concerned because I spoke like a zombie, no intonation – very unusual considering I was a theater major in school. My speech was slurred, the top portion of my face became paralyzed, and my head began to nod uncontrollably. Because my body was under so much stress, my cortisol levels shot up to ten times the normal amount.

Have you guessed it yet?

In July of 2011, I finally started getting relief from the pressure in my head because a neurosurgeon installed a shunt. However, I had a total of 10 shunt surgeries in 46 months because my body fights them, clogs them, breaks them, strangles them. I have had horrible abdominal pain since July 11, 2011, because that is the first day a drainage catheter began living within my peritoneum and my small and large intestine, and there is a war being waged 24/7.

46 doctors and two states later, a naturopath in Saint Paul suggested I get some blood tests for Lyme disease. I ended up having to pay full price for them up front because they were not covered by insurance/medical assistance. I will admit that I didn’t think I had Lyme but I just wanted to rule it out like I had done with everything else up to that point. Two of the tests had inconclusive results; the third one lit up like a motherfucking Christmas tree.

I have late stage aka chronic Lyme, and have had it for nearly seven years. It wasn’t on anyone’s radar. Why should it be? I didn’t have a bull’s eye rash. I lived in Arizona, a state with a very small tick population compared to other states. The CDC has very strict guidelines about what can be reported for Lyme and I may not fit their parameters; however, I am still going to contact the state health board and let them know I was infected while I was a resident in the state. I think that only 8 cases have been reported to the CDC for Arizona. I don’t even know if they will take my data because I was diagnosed based on antibodies specific to bacterial exposure, and they only want tests showing the bacteria, which may not be detectable because of the time that has passed.

I know that most of the doctor visits and labs are not covered by insurance, so I will truly be destitute in short order. They are not covered because insurance companies and even the government get bucky about late stage/chronic Lyme, sometimes refusing to acknowledge it exists. There are now temporary laws in place in Minnesota that allow physicians to prescribe antibiotics far longer than they have before, for years instead of months, and the law is set to expire in 2019. I feel like my diagnosis is sitting on the cusp of being dismissed and being accepted. I don’t know how they will deny that my facial paralysis ties into the positive results on the blood work, but I’m sure they’ll find a way to tell me I just need counseling. It wouldn’t be the first time I heard that.

I don’t know what will be irreversible with the neurological problems when treatment starts. I think the facial palsy and ptosis may go away. I think the tremors will take years to adios if they stop at all. The left side of my body has lost some sensation. For example, when I am descending stairs, I have no concept of the pressure my foot exerts on the steps (and vice versa) and so must go very slow. I have been doing exercises to counteract the bed rest and try to gain some of the muscle I have lost, but I always feel like my nerves are disconnected on my left side, and I tire much more easily when I work on that side. I’m also having some cognitive difficulty including word recall. As I type, I fight to spell words correctly – I have developed some weird form of dyslexia. If you knew how particular I am about spelling, you would be as alarmed as I am. Sometimes it takes me a dozen tries to write single words correctly that would have been a breeze previously. Ultimately there is a 50/50 chance that treatment will work, and it may take years to get any positive results.

Besides notifying the board of health in Arizona and Minnesota, I have decided to write letters to my team of doctors in Arizona to let them know about the diagnosis. I am not trying not to think in terms of, “Oh, if only someone would have tested for Lyme, I wouldn’t have had to have 10 brain surgeries.” Honestly, the disease has really fucked up my body, and it’s possible I would have needed the surgeries even with the right diagnosis.

If my symptoms do abate, I’m going to have a serious conversation with some neurosurgeons about removing the current shunt. It has adhered to my chest and the abdominal pain is still constant, and I just think I would have an easier time without it. However, that also leaves me more vulnerable to CSF leaks – and I don’t ever, ever want that pain again.

Lastly, I don’t know if this is a “rare” disease. The data is poor. On a survey of health, chronic Lyme rated the worst for quality of life as outlined in this article – worse even than congestive heart failure, multiple sclerosis, fibromyalgia, diabetes and depression. In other words, I truly won the shit cookie.

Chronic Lyme Disease

 

Speak Easy

Posted on by akiwifreund

Last week Friday, February 5th, Nikki (http://ilivebreathe.com/) and I had our first chat on Blab. The agenda was to talk about toxic people, the diverse challenges we face when interacting with them, and when to let them go. The recording went much longer than we planned at 1 hour 45 minutes, but if you are interested, here is a link to the show:

https://blab.im/82740adeac204a028576bc288ef25703

We decided to come back this week with another show, and this time the topic is self-care. What do you do to bring yourself back from the pit of despair? Do you allow yourself to laugh or cry? If you have seen the movie “Amelie” (French with subtitles), you know that each character is assigned a list of things that seems like a very simple pleasure. Amelie’s father likes to take all of his tools out of the toolbox, clean out the box, and very carefully put the tools back in. A patron at the eatery carries a mini tape recorder with him everywhere, and then records unusual laughs. Amelie likes to stick her hands into barrels of dried peas.

What do you do to make yourself feel better about your circumstances?

Join us on Blab for a discussion on self-care; we’ll start at 6 pm EST/3 pm PST Friday, February 12th.

https://blab.im/nikkiseefeldt-sickadilly-chat-2-self-care-strategies-rare-dis-disability-chronic-illness

Isn’t That A Co-inky-dink?

Posted on by akiwifreund

This year began on pretty rough ground. First, Quato from Total Recall was growing in my left ass cheek and trying really hard to bust out. Every day for three weeks (including some weekends) someone had to look at my bare ass. Then my body got so stressed out from not being able to stay flat every day that my tremors came back. I have been feeling just exhausted. I wish I had a Keebler elf that I could pull out of my pocket and demand that s/he do all of my dishes and scrub my tub and toilet.

But here’s the thing: I’ve been getting some validations.

The start was getting the image of a lemon cake, the kind like my mom made when I was a kid, in my head. I could picture myself mixing the lemon curd to make the frosting, putting that on the layers, and then cutting myself a slice, still kinda warm. Later on, before I left to go to the meditation class, I caught up with a friend I haven’t talked to in about a decade. She told me that she made herself a lemon cake that afternoon to celebrate her own birthday.

Last night I thought to myself, “Call S. in Scottsdale.” I didn’t know why I thought that, because we talked two weeks ago and I figured that update would have carried us over for a bit. Ten minutes later she called me to tell me she had moved (somewhat abruptly) and her plans changed from what she told me two weeks prior – she decided to stay in Scottsdale rather than pursue a job opportunity elsewhere.

My final ride for the evening yesterday on the short bus involved me being picked up from the grocery store and redeposited at home. It ended up being a really, really long ride – since it’s a ride share, rarely is one rider picked up and then brought to their destination without stopping elsewhere first. The driver and I started chatting while we waited for one rider to finish with her church group. I heard, “Tell her you’re selling your car” in my ear, or brain, or however you’d like to think about it. Anyway, I worked it into the conversation. She became serious and asked me what kind of car it was because she and her husband were looking for a second vehicle. I didn’t really do a hard sell with her because ultimately I didn’t think it would be something she would seriously consider; my car is a hatchback, and she was talking small SUV. Still, it was worth a shot.

I’m not really sure what I have to do to keep connecting with the universe, but I guess I had better get a move on.

 

Seek And Ye Shall Find

Posted on by akiwifreund

Yesterday didn’t strike me as being especially significant. It wasn’t a holiday and my rare disease wasn’t cured, so…

Okay, first of all, I’m paying more attention to the things that bring people to this little blog – and I do mean little. Six months ago I was lucky to get three visitors in a single day. Now my number of visitors is increasing because of the ways that I am networking with other bloggers and the content that I am including.

Nothing could prepare me for some of the search terms indicated by the program, though. (You’re welcome.)

*where does horny women hang in nashville
*fragile handle with care advertise porn
*pantyhose kik names
*stocking fetish social sites in India

Congratulations, and let your freak flag fly. There’s no way for me to identify the people making these searches. I have to point out, though – no one searched for hot, bald, unmarried women?? I mean, it’s been a while since I’ve been proposed to by a total stranger. I hope that issue remedies itself shortly.

In the evening yesterday I took the short bus to a guided meditation session held in a health crisis center. I wasn’t sure how it would go because I tend to just kind of throw my hands up in the air and then rush onto the next thing, whatever that is, to keep my brain stimulated because I get bored easily. During the actual meditation, which really only lasted about 20 minutes, I had to fight against dozing off twice, and luckily I didn’t snore or accidentally pas gas.

Twice I saw an orb rise out of a pool. I only “saw” it to the left of my left eye. I told some of the attendees during our recap about my experience and let them know that their vibes had a specific effect on me. One woman asked me if I had always been able to read strangers’ energy. I have, but I have never really put effort into following through on what I read; usually I push it away or ignore it, which is actually very destructive because then everything gets a free pass into my life and I end up hip deep in crap.

Whatever happened, the universe made a connection appear for me. My short bus driver made a stop after mine to pick up a lady in a wheelchair. She greeted me when she was lifted into the van, and immediately we started chatting. I asked her if she had just come from a dance performance because the building she had come out of was a theater specifically set up for that purpose. The answer was no, in fact; she was on the board for VSA Minnesota, the “state organization on arts and disability” (I got that from the website).

I told her a bit about my arts background as well as what I’m doing now (which is admittedly very little because my days are consumed by endless doctor appointments), and she gave me three organizations to get involved with besides her own to network, meet new people, be creative, and maybe even apply for a grant in my area of interest.

To the casual observer, this may not seem to be a big deal. It just drove home to me the fact that this state is so much more inclusive than where I moved from. I never, ever would have had so many resources to access for my particular physical challenges if I would have stayed in Arizona. I wouldn’t have been able to even ride the short bus because of their strict rules regarding who should be allowed to ride.

Really, meeting and speaking to that woman last night helped to open my eyes to the fact that even though I’ve got these major problems, I might actually be able to find a group of people who can see art where others may only see injury and illness. I am still working on retraining my brain to accept this as my new reality because the doctors have refused to keep operating on me. I still really miss driving my car while harmonizing at the top of my lungs.

Face Forward

Posted on by akiwifreund

I have been listening to Pandora and catching up on correspondence, and this song by Hinder came on:

 

Lemme interrupt and say that the advertisement that ran for me immediately preceding this song was for cat food. If we think about placement algorithms, I personally would draw the conclusion that the advertisers assumed that the people most interested in this song/video would be single spinsters with 20 cats for company.

Here’s my beef with this song: The singer is talking about how he wants to fuck around with his ex. He wishes his current girlfriend was actually the ex he is talking to. His “girl is in the next room.” Some of my acquaintances have never paid attention to the entire song, just hearing the chorus, which goes:

“It’s really good to hear your voice saying my name, it sound so sweet
Coming from the lips of an angel
Hearing those  words, it makes me weak”

Sounds hot, right? I mean, who wouldn’t want to know you’re turning someone on just because you’re speaking to them?

Here’s a quote for you:

“Stop looking for happiness in the same place you lost it.”

I always told all of my friends to never go back. There was a reason for breaking up, and the reason didn’t change. In my 30’s, I did exactly what I was preaching not to do – I went back. I went back to Drummer #2 and ended up having to call the cops on him. I went back to Dumb and Angry and ended up having to call the cops on HIM too. I went back to Ping Pong, many times, and nothing ever changed. I am fully aware that a lot of the problem rests on my feelings of being unattractive and inadequate. My inner voice tells me that if they wanted me, then I must settle, because that’s as good as it gets. I am only worth men who control me, or threaten to kill me, or tell me they never want me to meet their parents or children, and I should just be happy that they want to stick their penises in me.

Of course this isn’t true, but that inner voice can be louder than anything else.

The other topic addressed in this song is cheating. Cheating takes a lot of effort. You have to keep track of your lies. You have to make sure you don’t see someone who knows your official significant other while you are out messing around. You have to constantly worry about being caught.

I went to a concert in Phoenix at the Musical Instrument Museum, and by pure chance, I caught someone cheating. I had been at his house a week or two prior to this concert and I met his very cute, very friendly girlfriend. He did not bring that girlfriend with him to this concert. Instead, he concerned himself with sneaking around ME, trying not to hold his date’s hand while I was turned in his direction. I played dumb. He made out with the other woman in a corner that they thought was hidden from my eyes. I saw everything.

Since I had only met him once, I didn’t feel like I knew enough about him and his personal life to call him out on his obvious side dish.

This song really gets under my skin and makes me see red. I want the singer to stop whining about what he has and wishing for something/someone else. Instead, just commit to something, whether it’s to respect and love his current girl fully, or to go back to his ex and and respect and love her fully. I see this all of the time, the indecision, the whining, the keeping the options open in case someone better comes along.

Here’s a better anthem:

A Prayer Before Dating

Posted on by akiwifreund

Today, a good friend posted a surprising quote from her Christmas Eve church service: “Lord, touch us where we need to be touched.”

Amen to that!!! I mean, that’s almost exactly, word-for-word, the prayer I say before each date. Well, okay, mine is a little more elaborate: “Lord, please let him have clean teeth, pleasant breath, an unsloppy kiss, magic hands, a great personality and recently bathed bits.”

This holiday is a bit rough. First, I’m no longer in Arizona and gathering with friends to feed ourselves silly and play games like Cards Against Humanity. They are all my “other” family. I have hosted as few as one and as many as ten friends at my house, depending on if they had already been extended an invitation or they had family in the area. I have always made sure they had presents under the tree. I try not to think about this or any aspect of my former life, because it inevitably causes tears.

There is also a gap with our sister passing in July. Her absence also brings tears. This is the first time in about 23 years that I, my other sister and our half-brother are in the same city around Christmastime, and it would have been perfect to have our oldest sister here too. We are still scattering a bit – our brother is heading back to Wisconsin to be with his girlfriend and her family for the holiday. I wonder if we will all ever be in sync; none of us has experience in how to act like siblings as adults living in the same area, and I watch friends who have mastered this skill with envy.

And of course, there is no soul mate under the tree. Santa baby, what the hell???? It’s too soon for me to be able to tell if the person I recently met is a match; we have a few strikes, including my inability to drive, our distance (50 minutes on a good day) and his recent purchase of a puppy (since I’m deathly allergic). He has a good heart, though. Right now we are enjoying each others’ company.

This is a difficult holiday for a lot of my friends who are struggling with illness, loneliness, isolation or job loss. I don’t have any words of wisdom to pass along. All we can do is get through the next week. Maybe what we have wished for this Christmas – a job paying a living wage, gatherings with friends, a loving partner – will show up, but just a little late.

Below is a picture from my house in Phoenix when I had two living rooms and decorated two Christmas trees. Again, tears. God, I loved that house and the life I made in Phoenix. But happy holidays to you, wherever you may be.

2ChristmasTrees

Send Up The Bat Signal

Posted on by akiwifreund

From Thursday morning until today at around noon, I was so excited. I felt this enormous surge of energy, and I wanted to do everything – go to the movies, go on job interviews, retrieve my car from where it’s being stored and drive around, go on real dates, go to Costco and buy 30 rolls of toilet paper. I felt like my old self. For 108 hours, I felt capable. I was sitting and standing and walking just like everyone else. The vertigo was still present but I wasn’t running into furniture or doorways.

The weather has been unseasonably warm, so I went on a few walks around my neighborhood for the first time since moving here. The last one this morning was to walk a few blocks to Redbox to rent a few movies. And just like that, the drooping face appeared again. As I was approaching my door, my steps became slower and slower, and all the while I was chanting to myself in my head, “No, no, please no.” I often have to try to explain the sensations to doctors and nurses who haven’t seen me before, and this is the best I have come up with: It feels like a big slab of raw steak has been laid across my forehead and left eye. The weight of it and the paralysis makes it impossible for my eyelids to stay open, and if you look closely, you’ll see my left eyebrow twitching because the nerves are misfiring or losing their connection completely when I try to move it. Everything becomes very blurry and starts swimming in front of me, kind of like what movie directors do to try to portray fainting from the viewpoint of a character. I lose depth perception and peripheral vision. I also become immediately exhausted.

I had seen my sister before I went on my walk and we were discussing the mystery of the symptoms lifting. After I got back, I had to send her a text saying, “Fuck it. Sell the car. It’s back.”

Today we talked about how this has been a really tough year. We lost our oldest sister, and then just a few days later my friend died, and now our uncle is running out of options to treat his stage IV throat cancer. My sister has health issues herself, and though she has told me numerous times that she is happy to help and that she knows this has been difficult for me too, I am fully aware that I am a burden to her. I don’t want this to be my permanent reality.

Some of my friends have gotten involved with getting in touch with people in the TV industry to see if there are news stations or shows that would be willing to feature my story. (I told one person that if I got on “Ellen,” I don’t want a car or cash, I want a doctor.) An uncle’s girlfriend is a freelance writer and we have been in contact with countless publications; I have been turned down by all of them because they want a happy ending. I am still hoping that I can get some exposure and a fire will be lit under someone qualified and knowledgeable enough to deal with this shit.

Oh, and Mr. Friday Night is done. When he was here, he asked me over and over again if he could return on Saturday for some more nookie. Late Friday afternoon, he texted me things like, “Miss me yet?” and “I’ll be back, I really like you.” I never asked him for another session, so this isn’t me baiting him to push him to say that he wants to see me again. Late Saturday afternoon I texted him asking if he was still planning on coming over, and his response was “:))))).” That was his last communication. So I sent him a text this afternoon telling him that he shouldn’t beg to come over and then act like I died – he needs to be more up front and honest with the next woman (Bye, Felipe!). It’s depressing that he got any of my good hours. Fear not, though – I have been chatting with others on OKCupid and initiating them into my weird and wacky world. One guy is 14 years younger and a great conversationalist but he’s so young. I may use a cane, but I’m not comfortable with being a cougar.

As disappointing as today was, I am happy about one thing: a ghost from the past contacted me through Twitter. I’ll call him Socrates, as he is a deep-thinking man. Socrates found me just by chance when he was searching for a former client’s info, and when I saw that he was following me, I sent him a message. I have actually been trying to look him up for the past few months. Socrates and I met when he was going through an especially difficult time; his business had folded, he was nearly penniless, his family was spiteful and sucking his soul dry, and he didn’t have access to healthcare.

I enjoyed his company despite the turmoil that burdened him and seeped into our time together. Socrates is incredibly intelligent. I could actually hold conversations with him that did not center around sports or the weather. He is much more concerned with the human condition and continuously trying to improve himself and the world around him. But the one thing that broke my heart, as it always does, is hearing that I am fine to have sex with but that person isn’t going to get into a relationship with me. And Socrates gave me that speech. I can’t help but take that personally, no matter if I also realize that it’s not the right time or the right person for me. Some day I’d like for some man to tell me that all of my parts are wonderful, not just the sex parts.

So we entered into a true friends with benefits arrangement. I helped Socrates to pack up his apartment so he could move. I found a sliding fee scale clinic so that he could try to get the healthcare he so desperately needed and wanted, just so he would know that there were options. I also gave him blowjobs he rated as, “Ohmygodthatwasthebesteverthatwasaten.” Socrates was always open and vocal with me, never just saying what he thought I wanted to hear, because he values authenticity over flattery.

Our last contact (and correct me if I’m wrong, because I know you’re reading this, S.) was over email in 2007. Socrates was overwhelmed with every part of his life and not interested in communicating with anyone for the foreseeable future. I was left to wonder if he was okay and how he was surviving because the messages simply stopped.

That brings me to today, and our renewed connection. I am relieved to know that he is in fact okay, and that he has done some serious work on his soul to try to repair some of the damage and to release the parts that are past rescuing. Socrates is also married! He and his wife seem to be true partners and supportive of each other, which is the best anyone can hope for in a loving relationship. Socrates is now in a position to help me with spreading the word about this crazy disease, and I am gratefully accepting.

Is It A Date if You Can’t Actually Go Out?

Posted on by akiwifreund

This has been a tough seven days. Last week was the 19th anniversary of my father passing away; two days later it would have been his birthday. It also would have been my sister’s birthday; we lost her in July the week after I moved to Minnesota. My father’s brother is losing his battle with stage IV throat cancer. And I got my fifth rejection letter from the Mayo, supposedly the #1 neurology/neurosurgery center in the U.S., saying they don’t think they could come up with a name for my disease or a prognosis or a treatment plan.

Like with most major obstacles, I had myself a good cry, and then I called my family and gave them the update on my denied referral. I waited until I had a conversation with my disability attorney; that did not go well either because he seems to think that there is no way I can win my case if there isn’t a name for my disease. Yet his website repeats over and over that when our cases go to court, we should focus on the symptoms and how our quality of life is affected, not the name of the disease.

I have friends all over the U.S. and in locations around Europe, so it’s sometimes easier for me to get the word out on Facebook. I feel a little silly “liking” everyone’s message of support because it feels like I’m fishing for sympathy. However, it’s also nice to know that some of my friends are outraged on my behalf and willing to write/call/tweet in order to call attention to my plight. A few people have stepped forward to say that they have media contacts, so I’m widening my reach with giving them documentation to pass along to their people. The theory is that if the doctors won’t take me, maybe the news will?? My medical coverage is through medical assistance in Minnesota so I would not have any expenses covered if I went to a different state. However, Johns Hopkins has a “remote second opinion” option (for a minimum of $550) and they will review my case without me having to fly to Maryland. I may end up doing this. However, I do not think it’s very effective because it’s one thing to read about my symptoms, and quite another to actually see my issues in person. I have taken to scaring my friends by moving the fluid around in my brain so that my face stops being paralyzed momentarily – aka my “party trick.”

I’m a very social person by nature and being stuck in bed all day and night is really wearing on me and definitely changing my outlook and attitude. Last Friday night I caved and reopened my OKCupid account after a four-year hiatus. I barely had time to update the city when I started receiving messages – I was fresh meat! Generally speaking I don’t reply to obvious copied and pasted notes who claim they like me (without knowing me), but they just restate what they have written in their profiles. I also don’t like to talk to anyone who can’t write a sentence. I know it’s a huge reach to think that I can find anyone willing to just chat and not go on dates, but I have been up front with everyone who has contacted me to let them know that I can’t go out anytime soon. Dare I say I’m lonely??? It feels so whiny to say that. Yet here I am.

I talked to about three of the 20 guys for more than a few messages – most guys were either put off by my request for no penis pictures or my warning that I can’t actually go out. One was far, far too young for me and located a good hour away, but gets kudos for truly creative questions. One was obviously a social recluse and did not do anything outside of his janitorial job, which is really a bit sad. That one would send me messages saying he was lonely and bored and he wanted to come over. I get a serial killer vibe, though, or he’s just not capable of conversation, which is just as bad. He would kill me with social ineptness. I have asked probing questions and he only answers with “yes,” “no,” “ok” and “oh.” I suggested that he check out Meetup because he would never have to spend another night alone and bored if he didn’t want to, and that way it doesn’t solely fall on my shoulders to entertain him. I have enough going on. The third guy was really, really responsive, funny, age-appropriate and not put off by the fact that my bed is getting a lot of my action. I’m actually hoping to meet that one very soon.

The last time I went on a date through OKCupid, it was with a tall, southern gentleman who was ex-military about four years ago – I’ll call him Mr. Army. Mr. Army met me out at one of my favorite restaurants in the Phoenix area. It started out nice enough, though I could tell immediately that he was used to dominating all conversations. I would describe him as being a perpetual mansplainer. Mr. Army was too old to have served in Iraq this second time around, but he made it clear that he had very strong feelings about being over there. I’m a tree hugger and liberal at heart and his very vocal support of George W. Bush and Cheney made my skin crawl.

Towards the end of the meal I explained to Mr. Army that my friend had moved to the U.S. from Iraq twelve years prior to that to marry a man through an arranged marriage, and that she was currently trying to sponsor her parents, brother and sister and their spouses for asylum because they were still stuck in Iraq. Her brother had even been shot in the leg during a failed kidnapping attempt; people in his community knew he had a sister in the U.S., and the kidnappers were hoping to extort money from her. Mr. Army became outraged and asked me, “How do you know that your friend isn’t part of Saddam Hussein’s family? How can you trust her? She has no right to be here!” I told him it was obvious she did not come from some super secret bloodline; she would not sponsor them and put her name on all of the documents if that were the case. She was not being “kept” by anyone through a super secret account. It was an insane exchange. I am not very good at keeping a poker face either.

As I was walking to my car, Mr. Army stopped me to say he wanted to go out with me again. I declined. Did he not see my face??? I’m not certain what we would have fought about on the next date, but I’m betting it would have been about guns or religion. He who squeezes his eyes shut and yells the loudest wins, right? No thanks. I’d rather have a no pride night and sit on the couch for four hours in my pajamas, sprinkle chocolate chips in a jar of peanut butter and eat it while watching “The Notebook.” If Mr. Army is the alternative to that, I’ll gladly stay home.

The Ex from Tex(as)

Posted on by akiwifreund

You know that saying about how you shouldn’t take a dip in the company pool when it comes to dating? (Or maybe the more succinct way of putting that is not to shit where you eat.) Well, I’ve broken that rule many, many times. How are we as adults supposed to meet anyone? And my field was traditionally dominated by men, so it was like shooting fish in a barrel.

I was in the same extremely small department at a large bank (280,000 employees worldwide) for nine of my eleven years with the same employer, and I saw a lot of changes in personnel and practices. My seat was in Arizona; my boss was in California, her boss was in Texas, and we had team members in Mumbai, India. It was decided that our group would add two more people in Texas to take calls from managers and give it the very important name of Escalation Desk so as to give the impression that fires would be lit under the people handling time-sensitive problems. We added these two people at a time that I was doing the work of 2-3 people and another co-worker, also in Arizona, was being pulled to perform special projects.

One of the two people was Mr. Texas. He and another woman were located in our Texas office, and for almost a year, they sat idle because managers weren’t calling in for expedited assistance. After my Arizona teammate and I consistently asked for overtime to complete our work, the boss decided it was time to train the Texas people in our jobs. That was how I met Mr. Texas.

He was infuriating because he was not the type of person to offer help – he preferred to just sit at his desk and do nothing. When we would have our weekly phone-in meetings, he would not participate, and if he was forced to answer questions, Mr. Texas always sounded like we were disturbing his nap.

My work group was pretty relaxed, and it was not rare for us to spill some personal info on our conference calls. We also traded pictures of volunteering and life events. When I finally saw a picture of Mr. Texas, he didn’t look anything like what I thought he would (though I don’t know what I expected at that point). He is about 6’4″, very muscular, and very tan. After he heard some of the team members tease me about my dating woes, Mr. Texas started privately conversing with me on the company instant messenger. We had quite a few “Me too!” revelations about our dating experiences. Eventually we traded phone numbers and started talking and texting during our off hours.

I still remember the first phone call. It was awkward as hell. Here I was talking to this co-worker who drove me crazy with his laziness. I’m not even sure if he picked up on that about me, or if he did, if he actively chose to disregard it because chasing a piece of ass was more important. Obviously I didn’t let that stop me either – I love tall men, especially handsome ones.

We graduated to sexting and hot and heavy phone sessions. I miss those days! It was like making out, or as close as two people could get to that while a whole state separated us. Mr. Texas and I planned our first encounter, which involved him flying over to Arizona and us getting a hotel room (because I had a roommate). At some point it was revealed to me that when he was 15, he and his friends were stupid – they were playing jumping on and off trains, and wouldn’t you know it, his leg got caught under a train. Mr. Texas only had about 4 inches left of his right femur and wore a very long prosthetic that strapped around his hips. He walks very stiff legged because he does not have enough of his femur left to maneuver a leg with a working knee joint.

Mr. Texas and I had a great first weekend together. It was not a hindrance at all that he was missing a leg, because it actually made room for me if I wanted to get my face in his junk. He was very muscular because he was a serious weightlifter. Mr. Texas’ skin felt just like what I imagined one of those hunks in a beefcake calendar would. I was still very self-conscious about my lack of hair, so he never saw me with my wig off, but the fact that two people with prosthetics actually hooked up was hilarious to me. The only time I had to look away for fear of cracking up was when he got up in the middle of the night to pee. Mr. Texas did not strap on his leg just to go a short distance to the bathroom, but instead he hopped there. Imagine this if you can, but this 6’4″ guy was hopping on one massive tree trunk leg across the room to the toilet. I guessed that he kept on his tighty whitey underwear expressly for the same reason women wear sport bras when they are active – his choice of underwear probably kept his dick and balls from bouncing around.

I made the trek to his state the next visit. He has a very large white cat with some black patches named Sugar, and of course I’m deathly allergic, so we got a hotel room. At the end of my visit, we sat on his couch and watched some TV to kill time in between having to check out of the hotel and go to the airport. I had my head in his lap, gasping and growing hives like weeds all over my face and neck. Sugar came over and at first tried to “clean” my hair (my wig!), and when she started getting frustrated by the long fibers, she completely sat on my head. Mr. Texas thought it was rip-roaring funny and refused to shoo her off of my head. By the time we left for the airport, I had looked like I was punched in both eyes and I was snotting copiously, which wasn’t at all attractive.

We took turns visiting each other, alternating who paid for the plane ticket and who paid for the hotel. It was harder to be snappy with him at work because we had been intimate, though I tried hard to remain neutral if someone else in the work group would fight with him. We even talked marriage; he’s never been married, and neither have I, but it was something we discussed as a possibility for us down the road. Mr. Texas was twelve years older than me and held onto this idealized wedding for about thirty years. I remember it had something to do with having twelve groomsmen and twelve bridesmaids, and he wanted the ceremony to be in his parents’ church (which also happened to be where Chuck Norris would attend) – they were hardcore southern Baptists.

Unfortunately, I started feeling like he wasn’t emotionally invested in me. He seemed uninterested in my life away from work and didn’t have much to say to me when we weren’t banging. Mr. Texas also used to complain that the claim “spiritual but not religious” was not a valid belief system; you either attended church or you didn’t – and I didn’t! That shot his big church wedding to pieces.

So one week when I felt like a single woman anyway because of his disinterest, I called it off. Unfortunately, two days later the bank laid him off.

I didn’t hear from him for a couple of years, but then he started texting me again. This time around I know there is no emotional connection at all, he just likes talking about his penis and where he’s going to put it. Mr. Texas also sends pictures of his fat sassy cat Sugar, sometimes even videos of her purring, always signing off by saying that he’d like to pet my kitty. In a way it’s flattering, but in another way it’s exhausting. He doesn’t have any concept at all of what I’m going through. I can’t get excited about Mr. Texas and his dirty talk when my abdomen feels like it’s being stabbed for six hours straight.

What I wouldn’t give to be able to fly to a lover again.