spoonies

Send Up The Bat Signal

Posted on by akiwifreund

From Thursday morning until today at around noon, I was so excited. I felt this enormous surge of energy, and I wanted to do everything – go to the movies, go on job interviews, retrieve my car from where it’s being stored and drive around, go on real dates, go to Costco and buy 30 rolls of toilet paper. I felt like my old self. For 108 hours, I felt capable. I was sitting and standing and walking just like everyone else. The vertigo was still present but I wasn’t running into furniture or doorways.

The weather has been unseasonably warm, so I went on a few walks around my neighborhood for the first time since moving here. The last one this morning was to walk a few blocks to Redbox to rent a few movies. And just like that, the drooping face appeared again. As I was approaching my door, my steps became slower and slower, and all the while I was chanting to myself in my head, “No, no, please no.” I often have to try to explain the sensations to doctors and nurses who haven’t seen me before, and this is the best I have come up with: It feels like a big slab of raw steak has been laid across my forehead and left eye. The weight of it and the paralysis makes it impossible for my eyelids to stay open, and if you look closely, you’ll see my left eyebrow twitching because the nerves are misfiring or losing their connection completely when I try to move it. Everything becomes very blurry and starts swimming in front of me, kind of like what movie directors do to try to portray fainting from the viewpoint of a character. I lose depth perception and peripheral vision. I also become immediately exhausted.

I had seen my sister before I went on my walk and we were discussing the mystery of the symptoms lifting. After I got back, I had to send her a text saying, “Fuck it. Sell the car. It’s back.”

Today we talked about how this has been a really tough year. We lost our oldest sister, and then just a few days later my friend died, and now our uncle is running out of options to treat his stage IV throat cancer. My sister has health issues herself, and though she has told me numerous times that she is happy to help and that she knows this has been difficult for me too, I am fully aware that I am a burden to her. I don’t want this to be my permanent reality.

Some of my friends have gotten involved with getting in touch with people in the TV industry to see if there are news stations or shows that would be willing to feature my story. (I told one person that if I got on “Ellen,” I don’t want a car or cash, I want a doctor.) An uncle’s girlfriend is a freelance writer and we have been in contact with countless publications; I have been turned down by all of them because they want a happy ending. I am still hoping that I can get some exposure and a fire will be lit under someone qualified and knowledgeable enough to deal with this shit.

Oh, and Mr. Friday Night is done. When he was here, he asked me over and over again if he could return on Saturday for some more nookie. Late Friday afternoon, he texted me things like, “Miss me yet?” and “I’ll be back, I really like you.” I never asked him for another session, so this isn’t me baiting him to push him to say that he wants to see me again. Late Saturday afternoon I texted him asking if he was still planning on coming over, and his response was “:))))).” That was his last communication. So I sent him a text this afternoon telling him that he shouldn’t beg to come over and then act like I died – he needs to be more up front and honest with the next woman (Bye, Felipe!). It’s depressing that he got any of my good hours. Fear not, though – I have been chatting with others on OKCupid and initiating them into my weird and wacky world. One guy is 14 years younger and a great conversationalist but he’s so young. I may use a cane, but I’m not comfortable with being a cougar.

As disappointing as today was, I am happy about one thing: a ghost from the past contacted me through Twitter. I’ll call him Socrates, as he is a deep-thinking man. Socrates found me just by chance when he was searching for a former client’s info, and when I saw that he was following me, I sent him a message. I have actually been trying to look him up for the past few months. Socrates and I met when he was going through an especially difficult time; his business had folded, he was nearly penniless, his family was spiteful and sucking his soul dry, and he didn’t have access to healthcare.

I enjoyed his company despite the turmoil that burdened him and seeped into our time together. Socrates is incredibly intelligent. I could actually hold conversations with him that did not center around sports or the weather. He is much more concerned with the human condition and continuously trying to improve himself and the world around him. But the one thing that broke my heart, as it always does, is hearing that I am fine to have sex with but that person isn’t going to get into a relationship with me. And Socrates gave me that speech. I can’t help but take that personally, no matter if I also realize that it’s not the right time or the right person for me. Some day I’d like for some man to tell me that all of my parts are wonderful, not just the sex parts.

So we entered into a true friends with benefits arrangement. I helped Socrates to pack up his apartment so he could move. I found a sliding fee scale clinic so that he could try to get the healthcare he so desperately needed and wanted, just so he would know that there were options. I also gave him blowjobs he rated as, “Ohmygodthatwasthebesteverthatwasaten.” Socrates was always open and vocal with me, never just saying what he thought I wanted to hear, because he values authenticity over flattery.

Our last contact (and correct me if I’m wrong, because I know you’re reading this, S.) was over email in 2007. Socrates was overwhelmed with every part of his life and not interested in communicating with anyone for the foreseeable future. I was left to wonder if he was okay and how he was surviving because the messages simply stopped.

That brings me to today, and our renewed connection. I am relieved to know that he is in fact okay, and that he has done some serious work on his soul to try to repair some of the damage and to release the parts that are past rescuing. Socrates is also married! He and his wife seem to be true partners and supportive of each other, which is the best anyone can hope for in a loving relationship. Socrates is now in a position to help me with spreading the word about this crazy disease, and I am gratefully accepting.

He Looks Good on Paper

Posted on by akiwifreund

One of the hazards about internet dating – and I’ve said it before – is that you can get wrapped up in making your grocery list. Shopping for men! In my 20’s I decided that my ideal mate would be tall with blue eyes, be smart and not have any back hair. The problem with this list is that I left out very important requirements, such as my partner should actually like me (and women in general, no misogyny allowed), pay his own bills, do his own laundry, be willing to help me if I needed it…well, I could go on and on. But after the two live-in boyfriends in Cincinnati, I altered my list a bit.

In my 30’s, I still wanted an educated man with whom I could hold conversations. I also added the need to have a sense of responsibility so that I wouldn’t be stuck with having to take care of everything including bills and hard labor. I mean, when I had to work two jobs to make sure the bills would get paid, or the guys sat on their asses while I hauled heavy stuff or packed for a trip, it was exhausting. I also got incredibly tired of hearing why the boyfriends wouldn’t help clean. Both of them said they didn’t know what to clean, and I had to tell them. I asked them how they thought I figured out what needed to be cleaned? I never got an answer to that question.

So around 2005 I was dating heavily through internet sites. I was very excited to start up a conversation with a guy I’ll name Al. He was a high school history teacher, and he could string complete sentences together and speak in a respectful manner. Al was completely average looking with straight brown hair and blue eyes and a very thin build. I thought he had everything I had been missing previously in other dates and relationships. Al was also very responsible.

Our first date was dinner. The conversation did not flow easily. I tend to be animated when I speak, and he was the complete opposite. I felt a little sorry for his high school students because he did not seem to be an impressive orator. But I thought I was probably being too harsh, and so when he asked me out again, I agreed.

It did not take long for me to reveal to him that I was wearing wigs to cover up my bald head. Al took it well and asked a few questions, but the conversation went much better than I expected, so it was a huge relief. We had more dates at museums and bowling alleys. We did not kiss very much and we never had sex or even got close.

For what ended up being our last outing together, we picked a random music venue at the northern end of Phoenix. Al picked me up and drove us there at exactly five miles per hour under the speed limit the whole way. If you have never been to Phoenix, one important thing to know is that no one who wants to live to see the next day drives under the speed limit – most go 5-10 mph over as a standard. Anyway, that evening’s feature was a singer/songwriter that neither one of us had heard of before, and there were maybe eight people in the audience, but we both really enjoyed the performance. Al even bought the artist’s CD and had it signed.

Afterwards we went back to his house and talked for a while on the couch. Al made his big move and kissed me. I am not a fan of kissing with tongue (especially if my counterpart is a huge producer of saliva and I nearly end up drinking it). Poor Al had no technique whatsoever. It was if a fat worm stuck its head out of a hole and wiggled back and forth a bit. I was startled and consciously fought the urge to do the crab crawl backward. Suddenly, he grabbed my right breast and sort of did a “wax on, wax off” motion. I could not stop myself from making a sort of whimpering sound to match my thoughts, which were along the lines of, “Oh shit, this is very, very bad.”

Al sat back and said, “You know, that is the first time I have heard you respond with passion.” I lost all faith that he would know where any of my important bits were located or what to do with them. I extricated myself and told him I was tired and was heading home.

A few days later I called him and told him that I didn’t think we were a good match. Al was respectful, or stoic, or…gosh, nothing! I am sure he was probably disappointed because he wasn’t getting laid anytime soon, at least not by me, but I couldn’t tell from his voice if he was or not. And that is why I couldn’t carry on. This proves that a list is great as a guideline, but checking items off when they are met does not guarantee a love connection.

I’m in my early 40’s now and I still keep a list. If I would combine all of my previous and present requirements, it would look like this: The person I take on in the next relationship must be tall, have blue eyes, play the guitar and sing, have no back hair, do his own laundry, pay his own bills, give me back and foot rubs, not be a follower of any sports, love the arts, enjoy traveling and have an active passport, be at least a fair cook, be nice to me, be a feminist, not grab my boobs while we’re grocery shopping, take the initiative to clean, love animals but not have any, love kids and maybe or maybe not have any, not steal from me, have a witty sense of humor, chew with his mouth closed, brush and floss every day, be a master of lovemaking skills, and be a good driver.

But since the Keebler elves aren’t exactly making men to my specs, I suppose at this point I’m going to settle for someone being nice to me.

The Broad Squad

Posted on by akiwifreund

CutBanana

The internet is a fantastic invention and I don’t know what I would do without it in my life at this point. I use it to search for rare health cases and symptoms like mine. I use it to communicate with my friends around the world. I watch movies and TV shows via four different streaming services while my laptop is propped over me at a tilt. I’m talking to you stranger dangers, for Pete’s sake.

One of the first ways the internet was initially used for “evil” was that producers and distributors suddenly realized how they could reach a much larger audience to pander their porn.

Another is that it is super, super easy to create a profile and an entire backstory for a person that is not at all based in truth.

Hulu has every episode for the show “Catfish: The TV Show,” produced and distributed by MTV. I was a fan of the movie, and now that I have loads of time on my hands, I am watching that show like I’m loading it up on an IV leading directly to my veins. The movie “Catfish” was made because a guy in his mid-20’s, Nev (pronounced “neev”) started an online romance with a woman long distance, and his brother and their friend taped the progress of his relationship. He is a good looking guy (dark hair and eyes, strong jaw, lovely constant 5 o’clock shadow), and the woman he thought he was talking to was gorgeous with caramel-colored hair and big turquoise eyes. Thought. Nev was crushed and confused when his journey that ended with him meeting this mystery person face-to-face. This is not how he imagined his fairy-tale story would end. Turns out the woman was a middle-aged housewife with special-needs kids who wanted to momentarily escape from her life.

Now Nev’s mission is to help others facing the same dilemma. People write to him because they have been carrying on long distance internet romances with someone who they aren’t sure is being truthful about their appearance, their job, their marital status, their gender, their location, their offspring, their names…you get the idea. “Catfish” is no longer a subject – it’s also a verb.

So, have you been catfished?

Internet dating sucks. I’ve said it many times and I’m sure I will again. At the very least, people don’t like to post their recent pictures, usually because their weight has changed from when they were 17. I get it – I would rather people see me at my best too. I actually haven’t taken any pictures of myself for the past few years because bed rest has not been kind. But I have never lied about my marital or relationship status, the city where I live, my age, my name, my gender, or any other item you can dream up. I don’t tell men up front that I’m bald, but those same men also don’t tell me if they have a 4″ dick that is bent at a right angle.

A good friend I’ll call Svetlana is still braving internet dating, and I am presenting you with just one of her stories with her permission. She had closed down a profile after feeling disgusted and defeated by the men who approached her, but she stayed in touch with a few, including one I’ll call Fernando. Up to this point she has not met him. Fernando had finally asked her out on a date, but Svetlana hadn’t had a chance to accept or decline; instead, she received this message:

Hello Svetlana, I am the girlfriend of Fernando and I don’t think you know anything about it. Since July I live in Germany. 10 days ago I came to his sister’s home in Skokie to visit him for a week, just yesterday I came home. I had seen in his phone and the text messages that he sent to you (unfortunately you are not the only one with who he communicate, at the same day another woman probably from Brasil because it was in Portugese language got from him a love message the same words that he said to me words that he said to me a lot of time, I know that because my friend translated it)…so sad because at that time I was with him, what he would do is ruthless,phony and disrespect. He used me just for his advantage and benefits, he needs european passport to stay legally in Europe and after that study in Amsterdam. He asked me to marry him, now I understand that he wanted just passport and then just cold bloody leave me for another woman. Now I know that he is just liar and cheater, he promised me never to hurt me because my ex boyfriend did it and he knew whats happened in the past to me. I am very angry, disappointed and upset what he did to me, everybody helped and like him cause he looks as innocent and lyal person but he is not like that…unfortunately not! I release my self from him. Why I send you this message? because I want to warn you, no woman deserves this pain. He promised me not to dating you when we stay together but I don’t want to share my life with somebody like him. So enjoy his company.”

First and foremost, Svetlana felt like this took a lot of courage for this woman to reach out to her and warn her. Svetlana has done the same thing when she has discovered men who have been lying and cheating, but sadly, she has had vitriol thrown back at her – other women calling her a slut, whore, desperate, and any other derogatory name you can think of. Second, she responded to the woman and thanked her for warning her, because she wanted nothing to do with men who conduct themselves in this manner. Third, she felt immense relief because this woman did not treat her badly, especially since she had not knowingly become one of many other women he was working on.

How would you react if someone contacted you to warn you that the person with whom you were conversing with or in a relationship with was being duplicitous or dishonest? Would you listen to them rationally, or would you call them names and try to shame them for telling the truth?

Svetlana suggested that she could send a message to Fernando saying, “You think you’re so clever, don’t you?” But really, I thought it would leave much less room for him to wiggle out of if she asked him when he’s planning on moving and who he is going to marry in order to get the proper passport. She did and then blocked him.

My wish is that women would stop buying into this theory and practice that we should compete against each other for the attention of men. Every woman Svetlana warned should have thanked her and cut off all ties to the liars rather than turn against her. I would love to start up a Broad Squad, where we take the time to research things like marital status, number of offspring, jobs, cities, etc., using our favorite tool, the internet (because I can’t very well drive around in disguise and take pictures). Then we warn each other. Then we believe what the other women are saying with proof to back it up. Look, I know we don’t want to think the man who is sticking his dick in us and saying very pretty words could possibly be saying the same to other women, but it’s time for the women to stop hating other women for the lying that men do. And it’s time for men to change their internal recordings from “that bitch messed up my plan, now I have to find new victims” to “I’m sorry, and I will never be a shit again.” Really, wouldn’t we all be happier if we were trying to be our best selves?

The Ex from Tex(as)

Posted on by akiwifreund

You know that saying about how you shouldn’t take a dip in the company pool when it comes to dating? (Or maybe the more succinct way of putting that is not to shit where you eat.) Well, I’ve broken that rule many, many times. How are we as adults supposed to meet anyone? And my field was traditionally dominated by men, so it was like shooting fish in a barrel.

I was in the same extremely small department at a large bank (280,000 employees worldwide) for nine of my eleven years with the same employer, and I saw a lot of changes in personnel and practices. My seat was in Arizona; my boss was in California, her boss was in Texas, and we had team members in Mumbai, India. It was decided that our group would add two more people in Texas to take calls from managers and give it the very important name of Escalation Desk so as to give the impression that fires would be lit under the people handling time-sensitive problems. We added these two people at a time that I was doing the work of 2-3 people and another co-worker, also in Arizona, was being pulled to perform special projects.

One of the two people was Mr. Texas. He and another woman were located in our Texas office, and for almost a year, they sat idle because managers weren’t calling in for expedited assistance. After my Arizona teammate and I consistently asked for overtime to complete our work, the boss decided it was time to train the Texas people in our jobs. That was how I met Mr. Texas.

He was infuriating because he was not the type of person to offer help – he preferred to just sit at his desk and do nothing. When we would have our weekly phone-in meetings, he would not participate, and if he was forced to answer questions, Mr. Texas always sounded like we were disturbing his nap.

My work group was pretty relaxed, and it was not rare for us to spill some personal info on our conference calls. We also traded pictures of volunteering and life events. When I finally saw a picture of Mr. Texas, he didn’t look anything like what I thought he would (though I don’t know what I expected at that point). He is about 6’4″, very muscular, and very tan. After he heard some of the team members tease me about my dating woes, Mr. Texas started privately conversing with me on the company instant messenger. We had quite a few “Me too!” revelations about our dating experiences. Eventually we traded phone numbers and started talking and texting during our off hours.

I still remember the first phone call. It was awkward as hell. Here I was talking to this co-worker who drove me crazy with his laziness. I’m not even sure if he picked up on that about me, or if he did, if he actively chose to disregard it because chasing a piece of ass was more important. Obviously I didn’t let that stop me either – I love tall men, especially handsome ones.

We graduated to sexting and hot and heavy phone sessions. I miss those days! It was like making out, or as close as two people could get to that while a whole state separated us. Mr. Texas and I planned our first encounter, which involved him flying over to Arizona and us getting a hotel room (because I had a roommate). At some point it was revealed to me that when he was 15, he and his friends were stupid – they were playing jumping on and off trains, and wouldn’t you know it, his leg got caught under a train. Mr. Texas only had about 4 inches left of his right femur and wore a very long prosthetic that strapped around his hips. He walks very stiff legged because he does not have enough of his femur left to maneuver a leg with a working knee joint.

Mr. Texas and I had a great first weekend together. It was not a hindrance at all that he was missing a leg, because it actually made room for me if I wanted to get my face in his junk. He was very muscular because he was a serious weightlifter. Mr. Texas’ skin felt just like what I imagined one of those hunks in a beefcake calendar would. I was still very self-conscious about my lack of hair, so he never saw me with my wig off, but the fact that two people with prosthetics actually hooked up was hilarious to me. The only time I had to look away for fear of cracking up was when he got up in the middle of the night to pee. Mr. Texas did not strap on his leg just to go a short distance to the bathroom, but instead he hopped there. Imagine this if you can, but this 6’4″ guy was hopping on one massive tree trunk leg across the room to the toilet. I guessed that he kept on his tighty whitey underwear expressly for the same reason women wear sport bras when they are active – his choice of underwear probably kept his dick and balls from bouncing around.

I made the trek to his state the next visit. He has a very large white cat with some black patches named Sugar, and of course I’m deathly allergic, so we got a hotel room. At the end of my visit, we sat on his couch and watched some TV to kill time in between having to check out of the hotel and go to the airport. I had my head in his lap, gasping and growing hives like weeds all over my face and neck. Sugar came over and at first tried to “clean” my hair (my wig!), and when she started getting frustrated by the long fibers, she completely sat on my head. Mr. Texas thought it was rip-roaring funny and refused to shoo her off of my head. By the time we left for the airport, I had looked like I was punched in both eyes and I was snotting copiously, which wasn’t at all attractive.

We took turns visiting each other, alternating who paid for the plane ticket and who paid for the hotel. It was harder to be snappy with him at work because we had been intimate, though I tried hard to remain neutral if someone else in the work group would fight with him. We even talked marriage; he’s never been married, and neither have I, but it was something we discussed as a possibility for us down the road. Mr. Texas was twelve years older than me and held onto this idealized wedding for about thirty years. I remember it had something to do with having twelve groomsmen and twelve bridesmaids, and he wanted the ceremony to be in his parents’ church (which also happened to be where Chuck Norris would attend) – they were hardcore southern Baptists.

Unfortunately, I started feeling like he wasn’t emotionally invested in me. He seemed uninterested in my life away from work and didn’t have much to say to me when we weren’t banging. Mr. Texas also used to complain that the claim “spiritual but not religious” was not a valid belief system; you either attended church or you didn’t – and I didn’t! That shot his big church wedding to pieces.

So one week when I felt like a single woman anyway because of his disinterest, I called it off. Unfortunately, two days later the bank laid him off.

I didn’t hear from him for a couple of years, but then he started texting me again. This time around I know there is no emotional connection at all, he just likes talking about his penis and where he’s going to put it. Mr. Texas also sends pictures of his fat sassy cat Sugar, sometimes even videos of her purring, always signing off by saying that he’d like to pet my kitty. In a way it’s flattering, but in another way it’s exhausting. He doesn’t have any concept at all of what I’m going through. I can’t get excited about Mr. Texas and his dirty talk when my abdomen feels like it’s being stabbed for six hours straight.

What I wouldn’t give to be able to fly to a lover again.

It’s Raining Johns

Posted on by akiwifreund

This weekend I received two random friend requests on Facebook, both men claiming to be named John. One had no friends listed, his background pic was of an army unit crouching on the ground and his individual photo was of a guy who was about 26 with full sleeve tattoos. There is nothing listed like his hometown or location, only that he is divorced. The second was of a guy who looked middle aged and had about 8 “friends,” all women, and his cover showed him getting into the European driver’s side of a luxury car. Before I accepted their friend requests I did a reverse lookup of their photos to see if they were borrowed. No hits, so I accepted, which is pretty out of character for me. Wouldn’t you know it – they both hit me up within 20 minutes of each other to introduce themselves 24 hours after I accepted their requests.

John #1 (Army): where are you from..
Me: I’m from Minnesota. My page contains a ton of info, but yours has none.
J1: who told you that my is none
wow nice to meet you, I am from Austin,Texas and I am currently stationed now in Afghanistan for peace keeping we need you prayers..
Me (cringing at the prayers reference): I have a friend in Austin. Are you Army, or Marines?
J1: Are you married and you have any kids? and what are you doing for a living……and how old are you
Me: I am not married and don’t have kids, it wasn’t my destiny this life. I’m 41.
J1: i am single divorce my ex cheated on me and i have 1 grown kid and one adopted son…….i am 42 now
Oh I see, would you like to get remarried again…?
Me: I’ve never been married.
J1: i have been in afghanistan fro 14years now
oh Okay, would you like to be in love again..?i am looking fro the right women to get in love with again ….how about you …how about you
Me: Well, the love question is a tough one. I am not sure how this brain disease is going to play out, and because it’s so rare, the doctors don’t know either.
J1: why don’t you want to be remarried again or be in love with someone again
Me: Quite frankly, I don’t know if I will ever be well enough to date again.
J1: that will never be true
Me: You are optimistic? I have had 10 surgeries in 4 years, the doctors have decided to stop operating on me for now.
J1: why dont he operating on you

Okay, at this point I’m thinking there’s a little Google Translate going on!

Me: Because all of the operations have failed to fix the problem. So are you using your Facebook page strictly to find romance?
J1: no i don’t use it
(Except for now??)
J1: i am looking fro the right women to get in love with again ….how about you …
Me: I’m not into women.
J1: why not?
Me:  I’m just not. I see tatts on your profile pic. Where have you been getting them done?
J1: there is no tatts on my profil pic

(I can see that the guy in the picture has tattoos from his shoulders all the way down to his wrists, full sleeves)
Me: I am on a laptop and can see pictures on a larger scale, it looks like you have full sleeve tatts. Is that not correct?
J1: there is not some thing like what you are saying to me
Me: I can see the top of the bicep in the picture.
J1: dont make me to be came angree with you
Me: So you don’t have tattoos?
J1: yes i have but first i did not know what you were saying..What are you looking to meet on here..?
Me: I’m not looking to meet anyone on Facebook. I’m also not doing internet dating.
J1: why
Me: I’m not well enough to date right now.
J1: why dont you want to be in love with me or any one
Me: I have to concentrate on my health right now.
J1: i no thta you have to concentrate no your health now but you can be in love wells concentrate no your health
Do you have Yahoo Messenger Id were we can get to know more about each other..?
Me: I’m sorry, I don’t use Yahoo messenger. I can’t put any energy into dating right now.
J1: Oh Okay, can you go to http://messenger.yahoo.com/ and download it now..?
I was hoping that it was lights out soon for him, since it was about midnight his time when he messaged me…if in fact he was where he said he was.
Then John #2 hit me up:
J2: Hello C____ . you have a good and nice name , i really like you so much to be your and i will like to be friend, Have interest i knowing more about you, am a nice good and honest person 49 years of age . hope to hear from you soon .
Me; Hello John, where are you from?
J2: Am from Brazil but i live in Californian
Me: I noticed you were getting in on the European side of the car in your cover photo.
J2: I took the photo when i was in England , do you like the photo
Me: It’s a great action photo.
J2: Lol … you look pretty

How old are you if i may ask ?
Me: Thanks. I’m not on Facebook to date or make hookups though, just be warned.
J2: Why do you say that ?
Me: Well, I usually don’t accept friend requests from people I don’t know because I post somewhat personal stuff.
J2: But why do you accept me , don’t you like me ?
Me: I am always open to making new friends, but there are some things I post on Facebook that people who don’t know me wouldn’t understand.
J2: I understand that so very well, i don’t get into people stuffs i just like the person you are and i am looking for friendship that’s the reason why i send the request
(Yeah, right!)
J2: Am 49 years of age  How do you see me ? But right now am in Africa for work
(Ah ha – there it is!!)
Me: What are you working on there?
J2: I work as an Contractor and right now u got a work of roads so am making it and directing am also the Supervisor.
what do you do for a living ?
Me: I am not well enough to work now. I’m not sure if I will be able to work again. I have had 10 brain surgeries.
J2: Ohh so sorry to hear that what has gone wrong with your brain ?
Me: It is a rare disease – so rare that I might be the only one with it – and none of the doctors know what it is or what to call it. They have tried 10 operations and have decided for now to stop operating.
J2: How did it go on with you ? Qhat are the observation, i think you are on good track right now and i don’t think there is something wrong with you but i may not understand please explain
Me: You mean, how did I become sick?
When I am upright, the fluid in my brain presses on the nerves that lead to my face and also puts pressure on my brain stem. My face becomes paralyzed and I can’t see, and it also makes me very dizzy and unable to walk.
J2: and how do you get along ? does that have any problem with the way you talk or send message ?
Me: I can’t drive or walk great distances. When I lay down, the fluid moves away from the nerves that it presses on, so I can see nearly perfectly again. So in order to do anything, I have to be laying down flat.
J2: i can send you some african herbs and will heal you but it’s cost
Me: lol – no thank you, no herbs necessary.
J2: You don’t believe in herbs ?
Me: That would be like throwing parsley down your clogged drain.
After that, crickets.
This just reminds me of a Family Guy episode that a friend sent me a long time ago – it has to do with a guy insisting that a few minutes with his penis would cure a woman of all of her problems. I am convinced that is the universal belief around the world.

Get Me to the Greek!

Posted on by akiwifreund

Back in 1999, I was working at a very large law firm in downtown Cincinnati that specialized in representing mortgage companies where borrowers had filed bankruptcy or fallen into foreclosure. I was in the accounting department for the first year, and was responsible for providing payoff and reinstatement figures to borrowers, their attorneys or their prospective new lenders. We handled around 11,000 cases a month, so as you can imagine, it was a fairly large firm and we were very busy. It was a horrible place to work because of both the premise of working for the “enemy” (mortgage companies) when borrowers had fallen on hard times, plus the office manager was a tyrant – there were about 325 of us paralegals who worked under her eagle eye, and she had no qualms about firing people she didn’t like. Do you know how we knew someone was fired? At 4:45 pm, she would announce over the loudspeaker that she wanted to see a particular person in her office, and then immediately after that she would announce that she wanted the supervisor in charge of computer access to call her too. It was hell.

But on the flip side, my co-workers and I had quite a bit of fun. I made some long-term friends who I am still in contact with now. Oh, and if you didn’t know it already, attorneys know how to PARTY. We took over a lot of happy hours. There were all kinds of shenanigans.

One person that I became close with, whom I will nickname Marry Me, was a very pretty young woman with DDD breasts (she didn’t want to lose weight because they would deflate) who did a lot of partying. She was also hopeless when it came to men. Marry Me would spend a night or a day with a guy, and either he wouldn’t leave her place or she wouldn’t leave his, and within a week and a half she was convinced she was in love and they were going to get married. At about the two week mark the guys would dump her and she would be a wreck, and she missed many days because she would call in sick after a breakup.

It’s difficult to imagine now, but back in 1999, we still only had email and Yahoo or MSN messaging. To get a picture from a camera onto a computer was a major feat. Internet stalking wasn’t a “thing” yet – and neither was Google, so she or I would have had no way to figure out just how many of these guys were felons or drug addicts, etc.

We would field about 70 calls in the course of a workday, and Marry Me received a call from a broker whom I will nickname Nice Try. She was between men at that point and decided she liked his voice, so she immediately started flirting with him. She would find excuses to call him (normally we would only talk to borrowers or third parties once, twice tops), and very quickly they started emailing and calling during off hours. Marry Me quickly progressed to phone sex with this guy. Nice Try told her that he had a daughter that did not live with him, and he described himself as being a little overweight with hair that was thinning on top. He was older than us by a good 15 years, but she still felt very connected with him. Unfortunately, he was living in Cleveland, which is a four-hour drive from Cincinnati.

Marry Me started talking about moving in with him and becoming a family with him and his daughter. This was over the course of three weeks. I finally convinced her that before she kept making plans, she ought to meet Nice Try first. I also thought that she shouldn’t go alone (especially since she didn’t have the best track record with men). So we made plans to go up to his condo, and encouraged him to invite a few friends so we could get a feel for his life in general.

All the way up there, we sang Ricky Martin’s “Living La Vida Loca” at the top of our lungs while Marry Me tried to calm her nerves. She was convinced she was meeting her soul mate. I think she may have even told him she loved him. When we finally pulled up to the condo late that Friday night and knocked on the door, we were greeted by Nice Try – who was about 400 lbs. and bald. I’m not even sure if he was honest about his age; I think the only thing he was truthful about was his address. Marry Me was devastated. She was also immediately grateful that I didn’t allow her to make the trek alone and made me promise not to leave her side. Nice Try did successfully round up a few friends to join us, so we immediately did some shots at the condo before going out and toasted to “new friends.”

We went to a bar to dance and drink. Marry Me was gulping down shots like they were Kool-Aid. Nice Try kept trying to grab her hands while we were dancing and pull her close, but then she would grab my hand and hug on me. One of Nice Try’s friends was The Greek, whom I previously mentioned in Three is a Crowd. He immediately understood the situation and offered his support to us. At the end of the night, Marry Me had lost count of her drinks. When it was closing time, we stood outside to regroup, and Nice Try was trying to force Marry Me to make out with him – he was very grabby with his fat fingers and sloppy meaty lips, and Marry Me managed to get out of his grip and run for the side of the building. I followed and she sobbed that she had made a huge mistake. I told Nice Try that she was feeling sick and that he shouldn’t try to make out with her anymore. The Greek stepped in and said that we were driving with him in his car and he would take us back to the condo.

The Greek had obviously not planned on this – the car he brought that night was his Porche, which only had a small little shelf as the “back seat” which was the ultimate middle finger to any couple contemplating having children. Marry Me was in the front and I was wedged in the back sitting sideways. The Greek told us that he wouldn’t leave our sides and that he would sleep on the floor of our room so that nothing happened, and that because we had already planned to be there the whole weekend, he would love it if we stayed the second night at his place in one of his spare bedrooms and he would take us out in style. Of course we jumped on it. Marry Me and I were relieved that the weekend wasn’t a bust after all.

Nice Try was very, very disappointed that Marry Me wasn’t going to sleep with him that night. Instead Marry Me and I shared his daughter’s full size bed and The Greek slept on the floor, as promised. There was another woman in our group who was friends with Nice Try and The Greek and she slept in his bed with him – she was 90 lbs. tops and didn’t take up much room, but by the next morning, we were all sorry for her. Nice Try had horrible sleep apnea and snored loud enough to rattle the windows. He sounded like he was choking and gagging all night and none of us got restful sleep.

I jumped into the shower the next morning while everyone else went downstairs for breakfast, with the exception of Marry Me – she was nursing her hangover. Unfortunately Nice Try saw this as his opportunity to make his move. About five minutes into shower time I heard this loud crash, but I just thought someone had dropped a pan or something while whipping together the food. When I came out of the bathroom, Marry Me was awake and watching me closely. I absentmindedly sat on the bed to put on my socks, but something didn’t seem right…and then I realized that I was not sitting on a flat surface, but one that was slanting. Nice Try had sneaked into our bedroom and climbed into bed with Marry Me and tried to kiss her and feel up her triple-D’s. The bed broke. He BROKE HIS DAUGHTER’S BED. After laughing so hard we were crying, Marry Me and I hurriedly packed and told The Greek we were ready to leave.

The Greek was true to his word. Marry Me and I were given the largest guest bedroom which featured a king size bed. He took us out that Saturday night to a Portuguese restaurant with excellent food, and then we went down to The Flats to party the night away. We were relaxed and relieved. No one tried to grope us, including The Greek and his friends.

When we were ready to leave Sunday to drive back to Cincinnati, The Greek asked if he could keep in touch with me. Our many calls evolved into a long-distance relationship for about nine months, and I drove up to see him or he visited me in Cincinnati on a regular basis. I always chuckled to myself about scoring a boyfriend from that trip.

Unfortunately, our relationship was not destined for the long term either. Being a more worldly and older man (late 30’s at that point), he was always looking for something better, including how to satisfy his appetite sexually – he felt like he had done it all already. I certainly learned a lot from that relationship.

The Professor

Posted on by akiwifreund

Yesterday I received medical records from St. Joseph’s Hospital in Phoenix for all of the 10 surgeries I had there, plus numerous visits in between to the ER. The packet included one entire ream of paper with printed chart notes, EKG readings, surgical notes, allergies, and even my signature on some documents. What they didn’t print out on paper they included on a disc for me. Now that I have to set up a whole new team of doctors to help me through this Magical Medical Mystery Tour, I figured it was best to keep track of things and distribute them myself instead of relying on others to gather the info. It’s a plus that I have a laser copier/fax/scanner/printer here at home so I make sure everyone gets what they need.

Some things were a little tough to read. For instance, nearly every time I told the neurosurgeon or the ER staff that my shunt wasn’t working like it should have been, they would tell me that everything looked fine in my scans and that it must be “something else.” After I would beg and plead with the neurosurgeon to do another surgery so I could function again, he would again tell me that everything was fine and he couldn’t say exactly why I had symptoms, but he replaced everything. One of the times was in February of 2013; Dr. N. was out of the country teaching in Japan, and I went into full failure – face drooping, blurred vision, fatigue, vertigo, and I was walking funny, like a cat with anesthesia from a vet wearing off. One nurse told me to go to the hospital four miles away from my house to see if they could treat me for headache. That hospital ended up doing a nuclear shunt study, which they had NEVER done before – I had to tell the radiologist where to inject the nuclear material in my shunt under live x-ray – and they kept me for six days. At the end of the six days they told me the study was “fine” but opted to transport me to St. Joseph’s because Dr. N. was back in the country. I was at St. Joe’s for another six days, during which time Dr. N. did another surgery on me. Now that I’m seeing what was in the report, Dr. N. actually agreed that the shunt flow was sluggish. It wasn’t my imagination and everything was not “fine.” Suckage. I wish they would trust me more when it comes to knowing what’s going on with my body.

I remember vividly the first day I went to St. Joseph’s when I was still trying to get a diagnosis. At that point I had been to at least a dozen doctors over the course of 10 months. I waited to go to the ER until the day after my birthday – I wanted to have a really good dinner out with friends, because I knew I was probably going to have to go through a little hell. At the time, I was dating this guy I will refer to as The Professor, and he accompanied me to the hospital.

We met through OKCupid. It seemed like he and I had a lot in common. He was educated and was planning his first trip to Europe. His picture was just a face shot, and I could only make out that he was smiling and that he had dark hair. We met in January after exchanging some friendly notes; in person, I was a little startled because he had on blue jeans with a bright white belt and bright white shoes, and the pants were sitting high up on his very rotund belly. The Professor’s hair was also dyed dark brown, which was unfortunate – because the very large bald patch in the back shined through like a pink baboon’s ass. I still wanted to get to know him because I’m much more attracted to brains and a certain amount of worldly experience, and so we fell into dating exclusively.

The differences in our beliefs and backgrounds became apparent over time, as they usually do with anyone you date longer than one night. First, he grew up in the middle of small town Indiana – and was exactly like the people I so desperately wanted to get away from in the little town of 300 I lived in in Minnesota for five years. He was strictly a meat-and-potatoes, salt-and-pepper guy – he refused to eat any vegetables or try anything that had flavor. He hadn’t ever even seen a bagel until he was 24!!! To him, those were exotic. He worked at the law library on the main campus of Arizona State University (ASU) and held a bachelor’s degree, but was re-enrolled for his Master’s. However, ASU let him teach one class: Critical Thinking (hence the use of his nickname “The Professor”). We would laugh over some of the things his freshman and sophomore students would come up with in who exactly they hated in the world but couldn’t explain why. But what really bothered me is that he was in his mid-40’s and his mommy was giving him cash every time he got an “A” grade on a paper, and then he’d get a bigger amount if he got an “A” for an entire class. He bragged about how easy school was for him and how smart he was. I would ask him why his mom was paying him for good grades when he had just said how easy it was for him to get high grades. He did not like that question.

The Professor was also a big fan of comics. I helped him to make a transcript of some of his interviews as he was a contributor for an online publication for comics fans. The Professor would brag about how he was a much better interviewer than anyone else, but after putting together some transcripts for him, clearly he struggled with having an actual conversation and he was asking all of the artists the same exact questions. He was just talking to hear himself talk. I am not a fan of comics myself (despite many artists trying to get me hooked), so having to sit through that stuff was a little tedious.

When The Professor talked about his trip to Europe, I really had to bite my tongue. He was likely going to be scared by some of the cuisine (though in England he would fit right in because everything is boiled), but even more importantly, it was going to be a BICYCLE tour. I knew his weight was going to hold him back; when we were simply driving in the car or watching a movie, I could hear him constantly gasping for air and groaning with the effort. The Professor was a mouth breather and sounded like a monster from a horror film. He also had terrible allergies but refused to take allergy meds because he didn’t want to be a “pill pusher.” I found an OTC brand that dissolves in the mouth and he was in heaven. Even the brands that do not have dissolving tablets manufacture incredibly small tablets, so it’s nothing to swallow them. And since when is taking allergy medicine being a “pill pusher”?

Lastly, The Professor refused to wear antiperspirant or deodorant because he said he didn’t like how it felt. He was about 350 lbs. and like everyone else in a super hot city like Phoenix, he sweated profusely. One time when we sat outside of a restaurant after a meal and enjoyed the sunset, he put his arm around me, and his sweaty pit rubbed that sour smell all over all over my shoulders and wig. I hate having to wash my wig more often than is recommended because the fibers and cap wear out faster.

We had connected at a time when my symptoms were somewhat dormant; I could still see while sitting upright and still drive. However, when I became sicker and sicker and still had to deal with our differences, I debated sending him on his way. It was just exhausting. I am not good at projecting a poker face.

The Professor was with me after I spent a week in St. Joseph’s when the group of doctors filed into my room and told me they decided to operate on me. I cried like a baby after they left the room, and The Professor held my hand and tried to comfort me. But the next week when I was home again waiting to be cleared for surgery, I decided it was time. We sat down on my couch and I held his hand and told him that I didn’t think we were compatible. He told me he expected me to break things off because I would sometimes look at him like he was an idiot. I honestly can’t remember most of the exchange, but I do know that I ended it with telling him that I thought he ought to re-think his stance on deodorant. The Professor then said he didn’t use it because he was allergic to it, and I told him that just because he was allergic to one brand didn’t mean he would be to all brands – I broke out in hives from Secret products, so I went and found one that didn’t do that to me. I also called out the fact that he told me previously that he didn’t like it, not that he was allergic to it, and that’s a big difference.

Last year, when I was having a particularly rough night with pain and medication, I sent an email to The Professor saying that I was sorry about the way that I ended things with him and that I wished him happiness. I didn’t hear back from him, but after doing some searching on Facebook, I confirmed he’s up to about 400 lbs. and is engaged. Good for him.