Save The Date

Statistically, Minnesota is one of the worst or the worst state in the U.S. when it comes to wait times for disability processing. I didn’t know this when I relocated from Arizona to Minnesota to try to figure out what was going on with my body. This article from the Minneapolis Star Tribune states the average wait time is around 570 days from filing to have a judicial review. I just got confirmation that my hearing is set for March 28th, which will put me at about 770 days of filing the appeal (and almost 3 years to the day of filing the initial claim of disability). The back log just keeps getting worse.

I’m not sure I would have done this any other way. As horrible as it has been with trying to get doctors to take care of me in Minnesota, I did finally get three diagnoses that I have been missing for years in addition to what I already knew. I forget what my count was when I entered the state, but I’ve seen 64 doctors since July of 2010. This has not been an easy process. There is no clear path.

Thankfully my allergist has already agreed to fill out paperwork for my hearing, and my counselor has as well. I will be meeting with my primary care doctor and pain doctor next month to ask the same from them. I’ve been rejected by every neurologist and neurosurgeon in the area as well as banned in writing by the Mayo, and I can’t go out of state because I’m on Medicaid so it’s not allowed, so I’m not quite sure how that is going to be looked upon by the judge. There’s absolutely nothing I can do about that.

One incredible resource I wish I had stumbled upon before I started this process but am eternally grateful for is the blog How To Get On. There are sooooooooo many links/ideas/resources/testimonials that it sometimes boggles my mind, and I really can’t imagine how many man hours it took her to put it together. It’s unfortunate that the author sometimes gets reported and blocked by Facebook for either posting “too much” (seriously??) or for questionable posts (again – say what??), so we have to keep it circulating so as many people as possible benefit from its content.

2 thoughts on “Save The Date

  1. I am an acupuncturist in practice for 25 years in Maryland. In the last 2 years Ive been actively researching MCAD for my patients and for my poor German Shepherd who came down w eosinophilic gastroenteritis and i had to nurse him back to health over a 7 month period of time. I was able to find his link to MCAD by trial and error.
    It’s a long story, but Im writing to ask you if you have heard of the work of Dr Theoharides Theoharides.? I used his product NeuroProtek on my dog Ben, and that led to his recovery.

    It is an H1,H2 blocker made from rutin and quercetin and has a mast cell stabilizer (shown in research to be more effective than cromolyn sodium) made from olive kernel oil called luteolin. All natural and non toxic.

    Look Dr T. up on his website: mastcellmaster/research.php
    you can find a lot of published research on pubmed about luteolin as well.

    I hope this can help you.
    you can email me if you wish.


    Roseannette Cooper

    Liked by 1 person

    • Thanks, I’m very familiar with Dr. Theoharides. My biggest barrier is that it’s nearly impossible to reverse the sclerosing effect that has happened on my brain meninges, as well as the overgrowth of scar tissue where my shunts used to be and where they are now. If I could reverse the hardening of my meninges, I would be in a much better position.


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